Tag Archives: World Dementia Council

BILL GATES INVESTS IN DEMENTIA DISCOVERY FUND

VIDEO MESSAGE FROM BILL GATES AND MEDIA RELEASE FROM THE WORLD DEMENTIA COUNCIL:

Read the GatesNotes post here:  http://b-gat.es/2hZ4qXS and watch this accompanying video in which Mr Gates talks about the areas he believes need focus in order to alter the course of Alzheimer’s disease:

World Dementia Council welcomes boost for research on disease-modifying therapies

“Respected philanthropist Bill Gates has invested $50 million in the Dementia Discovery Fund (DDF). This is Mr Gates’ first investment in dementia research, and a personal one, sparked by experience of Alzheimer’s in his family, which, in turn, spurred him to spend time learning about the disease. Alzheimer’s is the most common of the diseases causing the symptoms of dementia.

Through this investment, Mr Gates recognizes that dementia is one of the most urgent health and economic challenges facing the world today. It has enormous human and financial impacts. Despite this, we currently lack drugs to prevent or cure the condition. With increasing prevalence rates globally, the need for effective disease-modifying therapies is pressing.

The G7 Dementia Summit in London in December 2013 set ambitions to identify a cure or disease-modifying therapy for dementia by 2025 and seek innovative ways to significantly increase investment in dementia research. The World Dementia Council, established after the Summit to lead global action towards the ambitions, endorsed the creation of an innovative public-private equity fund to accelerate progress to these ends.

Launched in 2015, the DDF invests in pioneering research and companies to speed up the discovery and development of disease-modifying therapies. It is the world’s first-ever dementia-focussed venture capital fund.

Dr Yves Joanette and Raj Long, respectively Chair and Vice-Chair of the World Dementia Council, welcomed the announcement. Dr Joanette said, “We are delighted that Bill Gates is joining the global race to defeat dementia and applaud his foresight. His very significant investment is timely as we are up against the worldwide clock to slow-down or halt the diseases that cause dementia. Bill Gates’ involvement is a major boost in enabling further and faster progress in breakthroughs on which effective new treatments will depend. Such treatments are a crucial component of the wider global agenda on prevention and cure, and improved care for people living with dementia.”

World Dementia Council Global Care Statement

Following the adoption of the WHO Global Action Plan on the Public Health response to Dementia in May, it is pertinent to give our members an update on some of the work of the World Dementia Council. As Chair of DAI, I am a full member, and as the work of the world Dementia Council evolves, we will have more to report. For now, I’d like to highlight a small piece of work done by the Care Global Team of which I am also a member of.

Announced by the WDC on May 25, 2017;  

The Global Care Statement sets out two Calls to Action, which are designed to help ensure these rights. These call for all of the world’s governments and governing bodies to adopt, implement, and ensure high-quality, person-centered care and support for people living with dementia; and for all health and social care systems to fund and provide access to high-quality, person-centered dementia care and support services.

It also includes eight important Principles of High Quality Care and Support, including for individuals to receive a timely and accurate dementia diagnosis; for people living with dementia to be treated with dignity and respect; for communities to be inclusive of people living with dementia and encourage their engagement in the community; for dementia care to be person- and relationship-centered and based upon continuous assessment and individualised planning; and for people living with dementia and their care partners to be active participants in care planning and decision making.

The principles also express the need for medical and care professionals to be knowledgeable of all aspects of dementia and to work across disciplines to ensure a holistic approach to disease management; and for care coordination and collaboration to occur between all care providers, including in monitoring and evaluating the care and support provided.

You can download the full Care statement here.

There are many academics and professionals publishing articles and writing books on improvng care,  in the acute, residential and community care, and I’d recommend looking up books by Dr Shibley Rahman and Dr Al Power.  Many people with dementia have also published books, and are full of anthropologcal evidence of their experiences, and what they want in their care.  If you purchase through Amazon, you can donate to DAI via Amazon Smile.

Have a great day!

Kate Swaffer, Chair, CEO & one of eight co founders of DAI

 

Open letter to DAI members

Dr Shibley Rahman, an academic in dementia based in London, and strong supporter and friend of Dementia Alliance International has written an Open Letter to the members of our organisation, as published below, and also attached as a PDF Open letter to Dementia Alliance International.

I think this particular topic, and his letter is so important, it has helped make DAI history; for the first time since commencing our weekly blog series, this is our second blog published in the same the week. Thank you Shibley for your praise and support of our work, and for your deep concerns. He also published an excellent blog yesterday about it here.

Open letter to the Dementia Alliance InternationalOpen letter to the Dementia Alliance International

Open letter to the Dementia Alliance International

The World Dementia Council

This week the Executive members of our Board have held an Extraordinary meeting in order to respond to the World Dementia Council regarding their lack of inclusion of people with dementia.

They met this week, and I sincerely hope Dr Acosta who offered to represent our views was able to present our statement, and that we receive a response from them.

It is only mid week, but this is so important, I decided to publish a DAI blog about it today. It was also blogged about yesterday here.

Disappointingly, “About us without us” continues to be the norm, rather than the exception.

Dr Gillings

 

 

 

 

Furthermore, this statement by Dr Gillings is seriously misinformed; people with dementia all over the world, as Dementia Alliance International and other groups of ppeople with dementia are highlightin, are and can speak up and advocate and activate for themselves.

Editors note: Until we receive a response, I am now witholding the statement we wrote to the World Dementia Council, originally published in this blog.