Tag Archives: WAM2021

Patience by Rose Ong

DAI continues to observe World Alzheimer’s Month #WAM also now referred to by many people and organisations as Dementia Awareness Month #DAM and World Dementia Month, by highlighting stories about, or written by our members, who all live with a diagnosis of dementia.

Today, we are delighted to hear from Rose Ong who lives in Canada. Rose is a member of Dementia Alliance International (DAI), and a co-founder and member of The YODA Group, associated with Memory Lane Home Living, a Canadian charity advocating for the rights of dementia affected adults in our community. Thank you Rose.

Patience

A poem written by Rose Ong
on August 15, 2021

I know you think I’m crazy sometimes
And question my judgement
On every decision I make
But if you want to show me your support
Learn to accept me as I am,
With all my faults and errors
Don’t scold me like a child
Just cover for me and let me believe
In the patience found in Love

I remember when you were small
When you began to use the words
I would say, or words you heard others use
Most times they fit the context
Of what you wanted to say, but,
Occasionally, they were way off the mark
I would just smile and ask
“Do you know what ‘convoluted’ means?”
Your sheepish grin; another teachable moment

You say, now, that I should know better
When I burn toast at breakfast or forget
My lunch in the microwave or wake at noon
So many repetitive items are jumbled in my mind
And like you were once, I would ask for patience
Because I deserve your forbearance
Not only because I am your Mom or Nana
I am a human being; faulted and flawed
Sheepishly giving you a teachable moment

So when you think I’m crazy sometimes
And question my judgement
On every decision I make
If you want to show me your support
Learn to accept me as I am,
With all my faults and errors
Don’t scold me like a child
Just cover for me and let me believe
In the patience found in Love

Rose Ong

Since you’re here, please donate to DAI today

By donating, you will ensure we can continue our work supporting people diagnosed with dementia, our families and the broader dementa community of researchers and professionals.

 

WE CAN by Terrie Montgomery

 

 

In 2021 DAI once again observes World Alzheimer’s Month #WAM also now referred to by many people and organisations as Dementia Awareness Month #DAM and World Dementia Month, by highlighting stories about, or written by our members, who all live with a diagnosis of dementia.

Today, Day 3 of WAM, we are delighted and proud to publish an article written by DAI board member, Terrie Montgomery from the USA, an excellent piece focused on what people with dementia CAN still do.

Thank you Terrie.

“My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style”. Maya Angelou

WE CAN

By Terrie Montgomery 08//25/21
We have added this collage of images and quotes, as it beautifully represents the amazing woman and friend that Terrie is to so many of us.

Some times I find myself asking the question, “Where do I go from here”.  Have you ever ask yourself that question?  Yes/No?  In my case, I ask it quite frequently because living with dementia, can cause us to wonder.

“Where do We go from here”; When we notice changes occurring in our life.  For example our memory is becoming shorter, or we can’t concentrate or multi-task or we tend to a back track often or find ourself saying, “What was I doing or looking for?”  Hence, we begin to feel frustrated that we are slowly losing that perfect 10 ego we once were so proud about, slowly slip away!  Sound familiar?

Now let’s change gears!

We do NOT or should NOT dwell on what we use to be able to do, when we still CAN do so much more.

Yes, so much MORE!  For example, perhaps we may have a hobby, that we always wanted to do and still have not started, why not start doing it now?  Or we always wanted to (Fill in the blank).  Again, why not do whatever we CAN right now? What are we waiting for?

Some may think, it sounds easy to me but it is NOT that simple! That is a absolute truth but we have to instill in our mind as we travel through our journey to be satisfied with what we still have, and CAN remember.  THINK ABOUT IT!

We CAN distinguish what’s right, We CAN breathe, We CAN recognize our name, We CAN distinguish morning from night, and more importantly we CAN learn what to eat to improve brain functioning….and “How can we do that”?   Just do it! Take time to DO things we normally may not do or feel we CAN do and that is: add research to our daily to do list. It is as easy as 1,2,3  to get started.

Finally, here is a link that may have some valid pointers that we CAN incorporate in our daily routine to improve our brain health and keep us fired up!  Even if we can’t remember something earlier, YES WE CAN certainly learn something new today!

Let’s “Do this”!

Have a day that is just like “You”… totally awesome!

Terrie Montgomery, Dementia Advocate
Living with Younger Onset Alzheimer’s
Board Member, DAI  Dementia Alliance International
Advisory Board, DAA Dementia Action Alliance

Since you’re here, please donate to DAI today

By donating, you will ensure we can continue our work supporting people diagnosed with dementia, our families and the broader dementa community of researchers and professionals.

Conversations on the impact of Stigma on QoL of people with dementia

 

 

 

In 2021 DAI observes World Alzheimer’s Month #WAM which is also now referred to by many people and many organisations as Dementia Awareness Month #DAM or World Dementia Month, by highlighting stories about, or written by our members, who all live with a diagnosis of dementia.

On Day 2 of WAM, and as a part of our Dementia Awareness Month blog series, we invite you to listen to DAI board member, Mrs. Emily Ong from Singapore, in conversations with other people living with dementia, on the impact of stigma  on the quality of life (QoL) of people with dementia.

Conversations on the impact of Stigma on QoL of people with dementia

Since you’re here… we’re asking viewers like you to support our members, by donating to our organization.

With more than 50 million people living with dementia, and the Coronavirus pandemic causing everyone to operate in a virtual world, our work has never been more important.

Donating or partnering with DAI will make a difference to the lives of people with dementia globally. Please donate today. https://www.dementiaallianceinternational.org/donate-or-partner/

Membership of, and services provided by Dementia Alliance International is FREE, and open to anyone with a diagnosis of any type of dementia. Join DAI here: www.joindai.org

Read our newsletters or regular blogs, by subscribing here: www.dementiaallianceinternational.org

About DAI: Dementia Alliance International (DAI is a non-profit group of people with dementia from around the world seeking to represent, support, and educate others living with the disease that it is possible to live more positively than advised with dementia. It is an organization that promotes a unified voice of strength, advocacy and support in the fight for individual autonomy, improved quality of life, and for the human and legal rights of all with dementia and their families.

Welcome to Dementia Awareness Month 2021

 

 

Welcome to World Alzheimer’s Month 2021, now also referred to by many people and an increasing number of dementia advocacy organisations as Dementia Awareness Month or World Dementia Month.

On day 1 we are thrilled to present a song written and performed by one of our members, Graeme Atkins from NSW Australia.

World Alzheimer’s Day by Graeme Atkins

Since you’re here… … we’re asking viewers like you to support our members, who all live with a diagnosis of dementia, by donating to our organization.

With more than 50 million people living with dementia, and the Coronavirus pandemic causing everyone to operate in a virtual world, our work has never been more important.

Donating or partnering with us will make a difference to the lives of people with dementia: https://www.dementiaallianceinternational.org/donate-or-partner/

Membership of, and services provided by Dementia Alliance International is FREE, and open to anyone with a diagnosis of any type of dementia.

Join DAI here: www.joindai.org

Read our newsletters or regular blogs, by subscribing here: www.dementiaallianceinternational.org

About DAI: Dementia Alliance International (DAI is a non-profit group of people with dementia from around the world seeking to represent, support, and educate others living with the disease that it is possible to live more positively than advised with dementia. It is an organization that promotes a unified voice of strength, advocacy and support in the fight for individual autonomy, improved quality of life, and for the human and legal rights of all with dementia and their families.