On Day 29 of our #DAI #Hello my name is blog series for World Alzheimer’s Month #WAM2018, we feature DAI member and advocate, Christine Thelker from Canada. Christine is an incredibly active advocate and DAI member, and supports one of our CA/USA support group. She was also featured in our online Art Exhibition this week!
Thank you Christine for sharing your story by saying hello here, and for all that you do for DAI and others. We love you too. Special thanks also to Mike Belleville for finalising the production of Christine’s video, and upoading it into our YouTube Channel.
Lorayne Burgess lives with dementia in the UK, and has been an active advocate in her local area, and now becoming active representing DAI. She will be speaking at the launch of a new OECD report on Dementia in London in May. She is 52 and was diagnosed with FTD 3 years ago aged 48. Life is her hobby and living positively is her goal.
Jerry Wylie is the Vice Chair of DAI, and is very active in his local area in Philomath Oregon in the USA, presenting to organisations, raisign awareness and fundraising for DAI. In July, he commences presenting regular educational sessions to medical students. Jerry is an invited keynote speaker for the ADI Conference in Chicago in July.
Maria Turner and her son Rhys Dalton live in the USA, and will share their experiences of the impact of dementia. Maria, from ger perspective as a younger woman who was working in critical care as a nurse at the time of diagois; Rhys from the perspective of a young man supporting his mother, whilst trying to build up his own career.
Ian Gladstone lives alone with demenita in Adelaide, Australia and will share his experiences of diagnosis, living alone with dementia, and his experiences as an advcate and speaker for the last few years. Unless you’ve already met hi, his sense of humour and ability to live so positively with dementia will surprise you.
Alister Robertson brings us a voice from New Zealand, and of the transition from business man, to living with younger onset dementia, and his involvement in New Zealands first Dementia Advisory Group of people with dementia and a recent invitation to join their Board.
Mike Belleville recently was the IT man behind the scenes of our WRAD event, and is als now in a senior role with DAI as our IT Developer. Mike lives with dementia, and hosts a monthly online Tech Forum, to support people with dementia to use technology.
Christine Thelker from Canada, whose background is working in Dementia Care, lives alone and rather than sharing her personal story of being diagnosed with younger onset dementia aged 56, which resonates with so many others, she will touch on something she feels is so important to living more positively with dementia, and a tool many in Dementia-land could utilize. She wil talk about how technology has improved her well being, and reduced her isolation.
This is your opportunity to listen to a panel of experts with the lived experince of a diagnosis of dementia, from a number of countries. Each panellist will share their story, and the program will be followed by a Question and Answer session, where you can ask questions to the panellists, as well as any other attendees who have dementia.
If you have dementia, you will hear many things you will relate to, and may also hear strategies and examples of how to live more positively alongside dementia, in spite of the daily challenges it throws at us.
If you are a family member of professional (academic or health care professional), this is your opportunity to ask the questions you may have always wanted to ask a person with dementia (if a care partner), a patient or a client, but in your professional or personal carin role felt was not appropriate to ask.
As an academic, you won’t have to go through the process of an ethics application, to be able to engage with our members either!
Please note: this webinar is unlikely to be made publicly available after the event, so to listen and ask your questions, attending in person is your chance to meet people with dementia and ask them your questions. We wanted to make it a very personal and confidential environment for our speakers, to allow them the opportunity to speak openly from the heart.