Tag Archives: Living the U.S. National Dementia Plan by Jerry Wylie

DAI in Chicago #3

Today, we bring you DAI’s Vice Chair Jerry Wylie’s recent Plenary speech from ADI Chicago. Sit down, grab a coffee and put on your seat belts. It is a fabulous, if not challenging ride, especially so for health care professionals and providers, so get yourself ready, relax, and tune in to watch it now here, or later on our YouTube Channel.

Living the U.S. National Dementia Plan

Presented by Jerry Wylie

This is not Jerry’s full speech notes, but a blog he wrote very recently, that goes well with it, and covers many of the key messages in his speech. He also presented his speech again at our monthly Webinar yesterday, so those who could not attend ij erson, could hear him live online.

“Living well with Dementia may well be, the best lived experience of my life now that I have recovered from being inhumanly treated”.

What? Inhumanely treated? How, when and why? Read on……

First, our diagnosis is delivered “Without Any Referrals” to support or disease education. No discussion of rehabilitation and No words of encouragement, No mention of hope, how diet & exercise could help. We are given absolutely nothing, zero, nada. To this day, we are still being told to get our affairs in order and, here are some drugs that might help with your symptoms, temporarily.

The end result; we are “delivered directly into suffering” from depression by the very doctors who are paid to keep us well.

Not long after this wonderful experience, most of us, are “abandoned by one or two members of our own family”.

Below, is a chart that shows exactly how  we process this situation. We no longer have the ability to properly process what happened and, because we need family more than ever, we are driven even deeper into “long term & unnecessary suffering”.

It took me 1.5 years of preventable, unnecessary suffering, to fight, scratch and claw my way out of the most miserable, vegetable like existence of my life.

“THIS IS NOT JUST MY STORY”!

It’s the story of 50 million other people living with Dementia as well. This treatment is our standard treatment world wide, perhaps, due solely to ignorance.

I can confidently say “The only time” a person with Dementia “really suffers” before end stage, is when we are either unintentionally or, intentionally mistreated. Period.

Clearly, this is cruel, unusual and unacceptable abuse. Clearly this is a violation of our human rights.

When someone is caught abusing a pet, it immediately becomes a huge media/news event and people get arrested. When 50 million people are abused by our doctors and sometimes by family members, nothing is reported and no one is as much as reprimanded.

When harsh words are spoken to us, we can’t process what you said but, we “cannot forget” how you made us feel. Once again, we are unintentionally or, intentionally pushed into“constant, ongoing grief” that we cannot shake off or even come close to processing. Unexplained, it is a life sentence of pain at a time when we desperately needed the opposite.

This is the truth. This is the debilitating, mentally abusive, harmful & “INHUMANE TREATMENT” that is currently happening about every 3 seconds somewhere to virtually defenseless people.

NO,  STOP & THINK about this! 50 million people today plus, “10 million more people” every year. This may well be the “Most Inhumane Tragedy of Our Century”!

Now, feel free ask me why I am such a boisterous advocate for people living with Dementia and our Human Rights.

I dare you to ask me why people with Dementia suffer.

“Living well with Dementia may well be, the best lived experience of my life now that I have recovered from being inhumanly treated”.

Jerry Wylie © 2018

DAI Webinar: Living the U.S. National Dementia Plan

 

For DAI’s August monthly “A Meeting Of The Minds” Webinar, as some of us have been in Chicago attending the ADI Conference, we thought we’d bring some of Chicago and the conference to you!

Hence, our presenter is DAI’s Vice Chair, Jerry Wylie, who was an invited Plenary speaker on Day 1 of the ADI Conference.

Living the U.S. National Dementia Plan

About the Webinar: Jerry is an advocate living with dementia, and the Vice Chair of Dementia Alliance International. He was an invited Plenary speaker on Day 1 at the recent ADI Conference in Chicago.

At this DAI Webinar, we will bring Chicago to you, as Jerry has agreed to re-present his very impressive keynote speech.

In this presentation, Jerry shares his personal perspective on his involvement in contributing towards the development of the National Plan to Address Alzheimer’s disease through his work with Ian Kremer (LEAD). This session will address the following key points: momentum achieved in development and implementation of plan; inclusion of individuals impacted by dementia; importance of funding to achieve plan goals.

He also shares how he believes that he was SET UP FOR FAILURE… With NO SUPPORT to live positively with dementia, and how this almost resulted in him taking his life due to the hopelessness this left him. He shares what is in the US National Plan, and what is missing, in a way that is poetrful, with messages that speak clearly to everyone, includign pplicy makers.

About our presenter, Jerry Wylie:

Jerry Wylie was diagnosed with dementia at age 62 in June of 2015. Jerry was Helicopter Crew Chief in the US Army between 1971-1974. He studied Criminal Law at Pikes Peak Community College and Linn-Benton Community College and was the founding Member and Past President of West Salem Rotary Club. Jerry had a 40-year career in Business Management specialising in business growth and increasing profitability.

For Jerry, not having a college degree meant always having to “work” his way up. For a highly specialised division of ICI Americas, Jerry worked his way up to US Western Region Manager, having charge of 1/3 of US and 1/3 of Canada to include manufacturing, distribution and sales of products for repair and restoration of major concrete structures such a bridges, dams and concrete road ways.

Jerry later managed and grew two local Commercial Construction Companies to the point that their owners were able to retire comfortably. He then took on the task of starting a New Branch of a Home Construction Company in a new territory. He was able to take that business from building zero to 70 houses per year in just 5 years, during this last recession.

In 2014 Jerry began having issues with short term memory, multi-tasking and organisation. In June of 2015, Jerry was diagnosed with dementia.

Jerry is a current Member of Dementia Alliance International (DAI) Board of Directors, an active guest speaker at Rotary Clubs across Oregon and works with the Oregon Alzheimer’s Association. This November will mark 44 years of marriage to his wife, Kathy.

Please note: this webinar may not be made publicly available after the event; the Q & A sessions are never made publicly available to view.

Wednesday, August 22, 2018 – times (USA/UK/EU/CA):

  • 2:00 pm Portland/San Francisco USA
  • 4:00 pm Des Moines/Chicago USA
  • 5:00 pm New York USA
  • 11:00 am Honolulu
  • 5:00 pm Toronto CA
  • 2:00 pm Vancouver CA
  • 10:00 pm London/Glasgow UK
  • 11:00 pm Paris, Munich, Amsterdam, EU

Thursday, August 23, 2018 – times (AU/NZ/JP/IND/TWN):

  • 6:30 am Adelaide
  • 7:00 am Brisbane/Sydney/Melbourne/Canberra/Tasmania
  • 5:00 am Perth/Taipei
  • 9:00 am Auckland, NZ

The webinar runs for up to 1.5 hours.

Register here…