Tag Archives: Helga Rohra

Thank you to the outgoing DAI Board


On 15/16 November, DAI held it’s this Annual General Meeting, and sadly¬†we had a number of resignations, but also a number of nominees to fill the vacancies;¬†This year, for the first time, we had more nominees than vacancies. Some members have resigned for health or personal reasons, and others as they have felt it time to allow new members to take leadership positions. Perhaps the most important¬†thing as leaders that we can do, is pass the baton to new members.

It is an exciting time for DAI, and this week, as Chair, I would like to specifically thank the outgoing board members. In the next few weeks we will be providing our first formal Annual Report for our members as well, and I am thrilled to know that Dementia Alliance International, an advocacy and support group, still remains of, by and for people with dementia, and is making excellent progress.

Thank you to the outgoing Board 2016 members 

We extend our deepest thanks and sincere gratitude to Susan (Sue) Stephens, who has served on the board since we started on January 1st, 2014.¬†DAI started with seven co-founders, from four different countries, and¬†Sue is one of our founding members from Canada. Sue’s wisdom, intellect and humour has been invaluable to us, and we know our¬†friendship will¬†continue. Thank you Susan, from us all.

Special thanks also to our outgoing Vice Chair Helga Rohra, Board members Leo White and Jeanne Lee, and outgoing co-opted board member Mary Radnofsky. Whilst we are sad to see you move off of the board, we accept and understand your personal needs to step down, for health or personal reasons.

Sue, Helga, Jeanne, Mary and Leo: we greatly valued working with you on the board, and know we will still be in contact with you as your DAI family.

DAI has been honoured to have you all working more closely with us, and have been humbled by your friendship and work for all DAI members, and for all people with dementia globally.

The commitment to DAI and vision of all of our out going board members has been truly commendable, and we will miss you all greatly as board members. Being a board members brings with it a commitment in time and energy, and a loyalty to our organisational mission and vision, but does not prevent members from being active in their own local or national dementia communities. I have no doubt many of you will continue to work tirelessly for the good of all people with dementia in your own communities.

Next week, we look forward to introducing you to our new Board members for 2017.

Sincere thanks from us all,

Kate Swaffer
Chair, CEO & Co-founder
on behalf of the DAI membership

Introducing Board member Helga Rohra

Vorstand  HR 1 (2)Helga Rohra, our friend and a Dementia Alliance International Board member from Munich Germany was diagnosed with LBD about 8 years ago. She has given us the honour of sharing her story here.

After one year of struggle and hiding because of the stigma connected to dementia there was a big turn in her life.

Meeting strong advocates in dementia at an International Conference of ADI in London 2012 she got a strong belief. She started to stand up and speak up for all of her fellows touched by dementia in Germany. She now remains busy  lecturing about what it feels living with dementia, focusing on the still existing abilities.

Her demand was inclusion from the very beginning after getting diagnosed, and her¬†book (in German and Romanian language) entitled:”Stepping out of the shadow”¬†highlights these demands.¬†Ever since she is also a speaker at Conferences of ADI and AE.

With the foundation of the European Dementia Working Group of people with dementia in 2012 a milestone in dementia history was set as the second Dementia Advisory Group was formed. She is the first Chair of this group. Her home country Germany awarded her in Dec.2014 the Commitment Award on national and international level.

An incentive for Helga for new projects together with dementia friends all over the world.

As dementia, we know no borders and TOGETHER we are strong!

The picture above shows Helga together with great advocates and two other Board Members, Chris Roberts and Agnes Houston at AE Conference in Glasgow/2014.

Thank you Helga for sharing your story.

Editor: Kate Swaffer