Tag Archives: DAI

Join us as we say goodbye to 2021

Please Join Dementia Alliance International as we say goodbye to 2021, and celebrate the new year with a Festive Season Café! 

Altough late postign here, we are thrilled to invite all DAI members, family, friends and partners as well as anyone in the global dementia community to join us for a Special Festive Season Café to celebrate the spirit of the holiday season & ring in the new year! Hosted by the DAI Board of Directors.

This is a virtual celebratory event primarily for DAI members, family, and friends. Everyone is welcome. Please respect our members; it is not a networking opportunity.

DAY/DATE(S):
– Tuesday, December 21, 2021 (USA/CA/UK/EU)
– Wednesday, December 22, 2021 (AU/NZ/Asia)
– Please note this is one event, set in a number of different time zones.

DAY/DATE(S):

Tuesday, December 21, 2021 (USA/CA/UK/EU):

    • 1:00 pm PST
    • 2:00 pm MST
    • 3:00 pm CST
    • 4:00 pm EST
    • 9:00 pm GMT, UK

Wednesday, December 22, 2021 ( AU/NZ/ASIA):

    • 5:00 am SGT
    • 7:00 am AEST
    • 7:30 am ACDT
    • 8:00 am AEDT
    • 10:00 am NZDT

Check your time here if not listed above.

COST TO ATTEND:

  • FREE
  • YOUR DONATIONS ARE GREATLY APPRECIATED:

Support people with dementia this holiday season!

Please donate to DAI or become an Associate or Partner with us!

Without YOUR DONATIONS, DAI could not provide the services we currently provide for members, their families & our global family.

 

 

Early Bird Registration for ADI2022 Closes soon

Dear friends and colleagues,

Following an email from ADI, we just wanted to send you a brief reminder that super early bird registration for their 35th global conference ends this Friday 10 December at 23:59 GMT. As you may already know, ADI 2022 will be taking place online and in London, UK on 8-10 June 2022.

As a hybrid event, our super early bird registration rate applies to both in-person and virtual delegates. By taking advantage of our super early bird discount, you could save up to 65% on their regular registration rates.

For those who are living with dementia, a family carer, student or living in a low- and middle-income country, there are additional reduced rates for both in-person and virtual registrations.

Bursaries for free virtual registration for people living with dementia are currently available, with additional bursaries for in-person and virtual registrants that are living with dementia, family carers and early career researchers, opening soon. A limited amount of travel bursaries will also be made available around the same time.

Contact ADI if you are interested in applying for a bursary by emailing them here: [email protected]

Under the theme of ‘New horizons in dementia: Building on hope,’ the conference will be an opportunity for the dementia community to reflect and look to the future. Leading experts will join us for presentations, debates and roundtable discussions addressing the 7 action areas of the WHO’s Global action plan on dementia, around which the programme is structured.

We look forward to you joining many of DAI’s members, and the global dementia community in London and online!

DONATE TO OR PARTNER WITH DAI TODAY

Young onset dementia: identifying the signs and diagnosis must dos

Earlier this year, one of our members, Natalie Ives from Melbourne presented at the Australian Young Onset Dementia Special Interest Group’s first webinar. Unfortunately, due to an IT issue on the day, it was not recorded well enough to upload tp YouTube, but Natalie has kindly agreed to share her full speech notes with us today.

Thank you Natalie.

Hi and welcome to todays webinar!

My name is Natalie ,I am a devoted mother of two daughters and a teacher by profession .

I am also an advocate and member for Dementia Alliance International, Dementia Australia, and the Australian Aphasia Association. Aside from these important roles, I love to travel; when we aren’t in lockdowns, as well as taking on different art projects in my spare time. 

I will now discuss how my loooooooooooooong journey began from raising my teenage  daughters , to now living with young onset dementia.

I first knew something was different with me when I would have trouble finding the right words to say, or think of them, especially when I had to fill out a form but couldn’t think of the right words.

Now this was different for me , as I had higher education and used to talk academically and writing essays relative ease.

The difficulty with my speech continued and I would start to use google or ask my girls for help when  I had word blanks.

Gradually ,I started noticing changes in my spacial awareness.

Crossing the road would sometimes be difficult as I would not be able to judge the right point of when to cross . Which my daughters would help me do. Now its funny how my girls had to tell me when to cross the road, as their mother , it was my job to teach them how, not the other way around!

This is when things started to look serious when we moved into our new home and I would start forgetting basic tasks liken how to use my phone or how to cook meals that I cooked effortlessly.

One day, my girls were out with friends during the summertimes I was home alone keeping out of the heat. I had put some eggs pan to boil to make sandwiches later , and that’s when I went blank. All I remember after that was my family friends hovering over me with the paramedics behind them.

I was told later on by family that I had called my daughters in a panic, unable to speak coherently and was not myself .I didn’t know my name or much else about myself at the time when the paramedics were looking at me.

Then I was taken to sunshine hospital and taken to a ward; the paramedics had suspected that I may have had a stroke, so the doctors looked into that .I was poked and prodded, taken up and down for scans to see what could have happened. All of this I don’t remember much, only what I have been told.

I was kept over night for supervision ,but released the following day.the doctors didn’t know what was wrong with me , and let me go with a referral to see a neurologist shortly after.

They said to come back to the hospital if anything should happen again.

unfortunately it did happen again, and I want back to hospital as instructed ,but they said nothing was wrong with me and that I wasted their time calling the ambulance. I was left in the emergency room for 6 hours and was given a script for epilepsy meds (as I found out from my GP)

My GP was supportive of me throughout the whole journey . I went to her to discuss what had happened at the hospital, and to find out if she could get some results from all the tests.

She called and found out that day I went to the hospital that first timer had brain swelling and was not told about it .

After all this all this, I felt alone. I felt. I wasn’t being Hurd or trusted by all these people who were supposed to help.even they didn’t believe at the time . Some of the doctors needed a course in sympathy  and effective communication with human beings .

Terms such as migraines and anxiety were thrown around by the doctors as an easy way of explaining what was wrong with me , since they didn’t know .the neurologist from before said I had mild cognitive impairment and that I should see a nuropsych .from that nothing was concrete .

I was referred to see a psychologist .

If that wasn’t enough the psychologist told me I shouldn’t be there as I wasn’t dealing with mental health issues.

I was left with no where to go 

I had to search by my self for a solution 

I went back to my GP to discuss all of the things that had happened, which was a wise move as she is a proactive doctor . 

I was now being looked after a medical profession who believed me and wanted to help.

The diagnosis of mild cognitive impairment was a umbrella term for dementia, or young onset in my case. A friend of mine with the same condition suggested I contact Dementia Australia ,which I am here with today. I have now been with them since 2019 and now I’m involved with Dementia Alliance International .

I’ve been able to find support I needed through the friendships I have built with people like me who have had a lived experience with dementia.

Recently on my journey I have been diagnosed with my speech pathologist with primary progressive aphasia ,which she said was quite clear from the initial phone call.

All these diagnoses have helped me understand what is going on with me.i finally feel herd and some of my concerns have been validated .which has  reduced my stress heaps .

This journey has been hard , but with the support of my family and friends; a few special doctors; dementia Australia and dementia alliance international ,I am able to embrace my new life living with dementia and aphasia .

From my lived experience, I have a want for change. I want other people who will go through what I have in the future to be supported by the medical community. Dementia and other related issues aren’t taught to doctors of medicine.i believe there needs to be education on these issues within the medical community, so others like me who had no idea what was wrong with them can feel heard and supported.

Please support more people like Natalie who live with dementia by donating to DAI today.

Donate

Welcome to Brain Health Awareness Month

Hello! We are already seven days into Brain Health Awareness Month, and have not yet posted anything about it! Oops!

So, to kickstart this theme, we are sharing an update from a senior leader and member of DAI, Valerie Schache, who recently took over hosting the twice monthly Brain Health Meetigns we hold as part of our Brain Health Hub.

Val writes:

Brain Health Hub is a very special arm of Dementia Alliance International. It came about when a number of enthusiastic people kept on talking about the benefits of the Bredesen type protocol.  It was then suggested we start our own group, which still meets fortnightly on a Tuesday morning for me in Australia.

I’ve contributed to the hub from the beginning  and continue to be passionate about the latest  research /science-based evidence but also people’s testimonials on what has changed their dementia journey. Most has been for the better but if an action hasn’t been wise or helpful re health or supplements;  that is also discussed.  The strength of the group is that no question can’t be asked.

In line with DAI principles, medical advice is not given but suggestions are made to discuss with your relevant health professional if this advice is suitable for you.

I’m Valerie Schache now 69- I’m called Val and I was diagnosed in 2015 as a  Young Onset Dementia. I have a mixed dementia and keep confounding experts as like many in the Brain Health Hub we have reversed some dementia symptoms, stabilised others and keep chasing  improvement.  I prefer  the guidance of Functional Integrated Medicine – aka a multi modal holistic approach of precision medicine.

My background – I grew up on a farm is South Australia and pioneered many things in farming and my 32 years in my physiotherapy profession. The most notable is to be the first acupuncturist physiotherapist in public health in all of Australia in 1989. TCM Traditional Chinese Medicine acupuncture helps  staying well with health  co- morbidities including dementia. I was a rural/ remote physio until moving to Ballina NSW  in 1987 and practiced till 2005.

Dementia deficits have not affected my considerable physiotherapy and acupuncture knowledge.  I can still read a scientific paper of any genre and give back six points in plain speak depending on my audience.  I have taken courses at our local University to distinguish fake science from credible research and findings.

I’m passionate about making a better way for people being diagnosed with MCI or dementia to be able to have a future and a hope. I didn’t laugh until I found DAI zoom support groups in 2016.

Being part of Brain Health Hub had allowed me to continue to   be a community educator for best practice and outcomes. It has given me great joy to see the likes of co- founder Maria Turner Paula Wolfert and Chrissy Theilker helped.  Bill Yeates is a fellow Aussie scientist  with insights and scientific approach.

I’m honoured to host the  DAI Brain Health Hub group. We welcome new people to come and join as they are able.  No questions can not be asked. I’ve found deep friendships develop over the time as we share triumphs and sorrows.  We have each other’s back and kindness covers all we do.

Meeting formats sometimes include a theme or specific topic, a video or a guest speaker.   The group is driven by the members ideas, themes, suggestions and most importantly, their needs.

Everyone is welcome!

People with and without dementia can join these meetings, whether you are supporting your own brain health, looking after someone with dementia, or simply interested in it. Please contact  us here to receive the emails with dates and login details.

Thanks Val!

Watch now – Disrupted! Resiliently Reintegrating After Stress & Adversity

DAI’s “Meeting Of The Minds” April Webinar, Disrupted! Resiliently Reintegrating After Stress & Adversity, by Dr. Kozhi Sidney Makai is available to watch now! The feedback we received during the session was extremely positive, and Kozhi’s presentation topped up the “resilience, gratitude and optimism tanks” for those who attended!

  • “He’s fabulous! I could listen to him all day”
  • “So grateful for this, so important for all to hear.”
  • “Loving how he affirms what DAI and us are doing well. Love how narrativews help reduce our stressors.”
  • “Happy to join …  My takeaway: Be positive. Stay positive. Keep moving forward. Try look for a positive every day, even though some days we have to try harder.”
  • “I am loving this session. One of the best sessions yet – well done DAI”
  • “I so needed to hear all of this today!  Thank you Kozhi for sharing your gift.”
  • “Off to buy on axe now “

 

About this presentation: Dr Makai shared how stress has become ubiquitous in our vocabulary. We’re stressed about work, school, our children, our finances, and, yes, we’re stressed about stress. What if you could transform your stress into power? And your anxiety into opportunity? Disrupted! walks you through the psychological, emotional, and physical opportunities that lie dormant within stress; and gives you the tools to trigger the release of tremendous personal power. Dr. Makai expertly wove scientific research with real-life stories to show you how to not just go through stress and adversity, but to grow through it.

About Dr Kozhi Makai: Kozhi Makai Worldwide, an idea studio focused on using behavioral science to help others thrive — especially in the workplace. Dr. Makai passionately lives out his purpose as a performance psychologist to organizations and as a Special Duty Officer in the United States Navy Reserve. He earned his Ph.D. in Applied Management & Decision Sciences from Walden University and his Psy.D. in Clinical Psychology from CalSouthern University.

It is not too late to donate or partner with DAI.

It is through donations that we can continue to provide free membership and services for members, and free webinars for you.

International Day of Families 2021

International Day of Families (IDF) 2021 Theme: Families and New Technologies

On May 15 each year, DAI joins the world in observing the UN International Day of Families (IDF).

This year it focuses on the impacts of new technologies on the well-being of families. Megatrends including new technologies, urbanization, migration, climate change and changing demographics are dramatically reshaping our world.

These megatrends impact families around the world, including the families of people living with dementia.

It is up to all of us to ensure digital technologies support the transition towards sustainable development and enable the well-being of all people.

Technology is critically important to the work that DAI does.

As an early adopter of Zoom, DAI has been providing free online support groups and educational webinars for seven years. For people with dementia – and their families – as well as education through zoom for professionals, researchers, ehlth care professionals and the whole community – these events really matter.

Digital technologies like video conferencing and social media make it possible for people with dementia and their families to stay connected in an ever-changing world.

At Dementia Alliance International, we believe in a world where all people are valued and included.

If you do too, please consider becoming a regular supporter.

Your donation helps provide free online support groups for people living with dementia, and free community educational opportunities for families, friends, care partners, and the wider dementia community. Every dollar makes a difference in the life of someone living with a diagnosis of dementia!

And if you work with people with dementia, or know someone with dementia, please refer them to join DAI for free services and support, especially the ‘life-saving’ peer to peer support groups.

THANK YOU

Introducing our new Chair, Alister Robertson

Alister Robertson, NZ

As we celebrate our 7th birthday this week, we are also delighted to introduce Dementia Alliance International (DAI) member Alister Robertson as our new Chair.

Alister has been a member since 2016, and has recently stepped down as our Vice Chair, to take on the role of Chair.

We are truly delighted to introduce Alister Robertson as our new Chair to  you. Alister has been a member of Dementia Alliance International (DAI) since 2016, and has recently stepped down as our Vice Chair, to take on the role of Chair.

Alister is taking over from Kate Swaffer who continues as a board member, and the CEO.

About Alister: Alister’s new leadership role has been endorsed and welcomed by the Board of Directors and by our members, and is recognition of the hard work Alister has done globally for our members, and in New Zealand where he is on the Board of Alzheimers New Zealand and a member of their Advisory Group.

He has a strong commitment to supporting people with dementia to have a voice, and to be included locally, nationally and globally.

Alister graduated from Lincoln University, Canterbury New Zealand in 1978 with Bachelor Agricultural Commerce. Spent the following 30+ years in the rural finance sector lending money to the primary sector.

In 2009 Alister and his wife, Charlene decided they would like to do something together, given their four sons had finished their schooling and were doing their own thing. Alister and Charlene resigned from their respective jobs, sold their newly built home and purchased a Motel in Taupo, which they sold four years later.

They then moved to Napier, Hawkes Bay (2013) to be closer to their son and his family. They had a retail and café business until Alister’s dementia diagnosis.

Alister’s father had Alzheimer’s and Alister was diagnosed with younger onset Alzheimer’s in 2014, aged 60 years. He endeavours to follow the advice of trying to maintain a healthy brain by way of diet, remaining socially involved, good sleep, staying mentally active and exercise. Alister is a keen cyclist, which is his main mode of transport and this helps keeping him fit.

Alister participates in the various activities provided by DAI and would like to see more Kiwi’s become active members of DAI, as well as more people with dementia globally to join for peer-to-peer support, and to get involved in the global work done by DAI.

Help people with dementia to continue to be included, to be supported and to have a voice, by donating today. 

Thank you.

Bobby Redman shares why she is glad she found DAI #DAM2020

Wow! It is already Day 12 of Dementia Awareness Month 2020, and our daily vlog/blog series continues. We really hope you have enjoyed hearing from people diagnosed with dementia from around the world again this year!

DAI member Bobby Redman from the Central Coast in Australia shares why she is glad she found DAI. Bobby is a very active advocate and volunteer, including co-hosting three DAI peer to peer support groups, leading the DAI Action group; she is also a member of the board.

Thank you Bobby. We are very glad you found DAI!

Since you’re here…

… we’re asking readers like you to support our members, by donating to our organizaton.

With more than 50 million people living with dementia, and the Coronavisus pandemic causing everyone to operate in a virtual world,  our work has never been more important.

Every contribution, however big or small, is so valuable to our work of supporting people diagnosed with any type of dementia to live more positively, and with a greater sense of hope.  Thank  you.

Please join the Monday Science Podcast fundraiser to support more people with dementia like Bobby.

 

Emily Tan Tan Ong shares why she is glad she found DAI

On day 8 of the #DAI Dementia Awareness Month series of blogs or vlogs on why members are glad they found DAI, and  why DAI is Life Changing, Emily (Tan Tan) Ong shares with us why she is glad she found DAI.

Emily also shares how DAI has so positively impacted her self avocacy and courage, and her advocacy for others also living with dementia in Singapore and beyond. #DAM2020

Thank you Emily. We are glad you joined DAI.

 

Reminder: the Monday Science Podcast Dementia Series is Fundraising for DAI

#DAIisLifeChanging

Webinar: Human Rights as a Practice Model in Residential Aged Care

We invite you to join us for our September 2020 “Meeting Of The Minds” Webinar,  Human Rights as a Practice Model in Residential Aged Care, presented by Daniella Greenwood.

  • Wednesday, September 23, 2020 (USA/CA/UK/EU)
  • Thursday, September 24, 2020 (AU/NZ/Asia)
  • Please note: this is one event, set in a number of different time zones.

Human Rights in residential aged care have never been so important!  At this time of the Coronavirus pandemic, when lockdowns and other restrictions have been enforced on families and residents, the many breaches of human rights these people already face have increased.  On top of that, the number of deaths in aged care due to this pandemic is truly tragic. Please do join us for this inspiring speaker, and an innovative and new way of supporting people living in residential aged care (nursing homes).

Register here…

Wednesday, September 23, 2020 (USA/CA/UK/EU):    

  • 2:00 pm  Pacific
  • 3:00 pm   Mountain
  • 4:00 pm   Central
  • 5:00 pm   Eastern
  • 10:00 pm  London/Glasgow/Dublin UK
  • 11:00 pm  Paris, Munich, Amsterdam, EU

Thursday, September 24, 2020 ( AU/NZ/ASIA):

  • 5:00 am  Perth, AU/Taipei/Singapore
  • 6:30 am   Adelaide, AU
  • 7:00 am   Sydney/Melbourne/Canberra/Tasmania/Brisbane, AU
  • 9:00 am   Auckland, NZ

The Webinar runs for up to 1.5 hours.

Check your time if not listed above with this link.
Donate to DAI or become an Associate or Strategic Partner.
Volunteer for DAI: [email protected]

Register here…

YOUR DONATIONS SUPPORT DAI IN MANY WAYS:

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 200.00 covers the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 300.00 covers the current cost of 3 months of website management fees

PLEASE DONATE TO DAI OR BECOME AN ASSOCIATE OR PARTNER; WITHOUT YOUR SUPPORT, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

Support people with dementia:

THANK YOU

**************************************************************************

You can view videos of previous DAI “A Meeting Of The Minds” Webinars on the on the DAI YouTube Channel

Please note: Whilst we usually publish the recording of the event on YouTube afterwards, it does not include the Q & A sessions, and occasionally, we do not publicly publish recordings of your online Webinars at all, so if you don’t register to attend, you may miss seeing our events.