Hello: our voices matter

This page is dedicated to the voices of people with dementia, where members share their personal stories of being diagnosed, and then living with dementia. Our members will, in their own unique ways, share with you, the good, the bad, and sometimes, the downright ugly. We are sharing with you from the deepest recesses of our minds and hearts, in the hope that you become not only more aware of dementia, but of the human cost of this condition, but we also want others to know, there is a lot of living to do after the diagnosis, and it is not all doom and gloom.

Our hope is that these stories bring hope to others facing dementia, and that in sharing our stories, we collectively can give each other strength to face the unknown together. It is not a future we predicted, nor necessarily one that we wanted, and certainly, not one that any of us chose. We have discovered, dementia does not discriminate as anyone at any age can be diagnosed, but is not always a negative experience.

Dementia changes lives, of that there is not doubt, but many also feel they have also been given many gifts since being diagnosed with dementia. In September for World Alzheimer’s Month 2018, DAI ran a series of Hello blogs, now listed below.

The #Hello blog series was inspired by the late Dr Richard Taylor, one of our co-founders. He was once asked, “What should I say to a person with dementia?”, and answered by saying, “Try Hello.”

Hello, my name is Eileen Taylor

Hello, my name is Peter Mittler

Hello, my name is Agnes

Hello, my name is Peter Berry

Hello, my name if Jerry Wylie

Hello, my name is Christine Thelker

Hello, my name is Veda Meneghetti

Hello, my name is Wally Cox

Hello, my name is Wally Cox

Hello, my name is Bob Murray

Hello, my name is Davida Sipe

Hello, my name is Tracey Shorthouse

Hello, my name is Tomofumi Tanno

Hello, my name is Nina BÁČKOVÁ

Hello, my name is Kris McElroy

Hello, my name is Roger Marple

Hello, we are the Selwyn Singers

Hello, my name if George Chong K.L.

Hello, my name is Carole Mulliken

Hello, my name is Phyllis Fehr

Hello, my name is Dennis Frost

Hello, my name is Jeff Borghoff

Hello, my name is Myrna Norman

Hello, my name is Alister Robertson

Hello, my name is Jennifer Bute

Hello, my name is Maria Turner

Hello, my name is Carol Fordyce

Hello, my name is David Paulson

Hello, my name is Julie Hayden

Hello, my name is Mike Belleville

Hello, my name is Mdm Hui-Su (Amy)

Hello, my name is Howard Gordon

Hello, my name is Dick Watson

Mary Beth Wighton: A changing melody

Mick Carmody: People can live well: even people with dementia

Dr Jennifer Bute: Dementia as a gift

Kate Swaffer: Dementia My New World

Maggie Weidmark: Sharing my experience with dementia

Sue Stephen on living with PCA

The late Richard Taylor PhD: Alzheimer’s from the inside out

Richard Taylor PhD: Not acting the way that’s expected

The late Dena Dotson, How would you feel if you encountered this?

Of, By, and For People with Dementia

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