Category Archives: Videos

Watch our latest Webinar on Preventing, stabilising or reversing dementia

Our very sincere thanks to Dr Dave Jenkins and his partner Miki Okuno for their efforts in presenting to our DAI members and supporters last week on the Bredesen Protocol. They are based in Bali currently, so it really was an effort, as it was 4am for them!

 

We understand there are a lot of people who see this approach as futile, especially if they have been diagnosed many years ago and their dementia has progressed. Perhaps some even see it as a scam.

However, for many of us diagnosed with dementia who have already worked hard changing our lifestyles and improving our health, and who also believe by doing so we may also have slowed down the progression of our individual dementias, it is still hopeful. Make up your own mind, but please do not discount new evidence.

This protocol is based on evidence based research, and hopefully one day, advice for people with dementia on improving our lifestyle, our diet and offering us appropriate disability support and authentic rehabilitation will become the norm, as it is already for most of the other chronic diseases.  Improving well being and quality of life, even if it is not a cure (and even if it does not reverse or stabilise dementia),  has to be a good thing…

It was a very lively Q & A Session following this webinar and which lasted over an hour, although for privacy reasons, we never show that part of the webinar publicly.

To listen to or be a part of the Q & A session, you always have to register for our Webinars and attend.  You can go to our Youtube channel to watch other videos, and go to our events page to register for our next webinar, Dementia 101, by Associate Professor Lee-Fay Low.

Extending CBR to older persons: A global imperative

screen-shot-2016-09-03-at-3-54-36-pmWelcome to October, and hopefully a rest after a huge month of raising awareness and members activities! However we need to kick of this month with a video presentation by Prof. Peter Mittler for the 2nd World CBR Congress conference in Kuala Lumpur last week. We produced a flyer for this event as well, which went into more than 1500 conference bags, downloadable here: extending-cbr-to-older-persons-a-global-imperative-dai-prof-mittler-september-2016. Thank you Peter for all you do for all people with dementia.

CBR VIDEO NOTES (not the full transcript)

Personal message to viewer

YOU CAN MAKE A DIFFERENCE TO THE QUALITY OF LIFE OF PEOPLE WITH DEMENTIA

You can ALL be dementia friends, supporters, champions

IMAGINE a series of concentric circles.

In the middle of the smallest circle is YOU or a PERSON LIVING WITH DEMENTIA.

The next circles include-

– your family

– your neighbourhood

` friends and acquaintances

– where you work and in your organisation

-the OUTER circles are about climate change, inequalities and the UN

– and its international treaties on the human rights of everyone on the planet Including the UN Convention on the Rights of Persons with Disabilities to which 166 countries are now committed in international law.

I’m here because Dem receives worst care in the developed world -even worse in Global South

MY BACKGROUND

I’m Human Rights Adviser to Dementia Alliance International – the voice OF people with dementia.

ID, WHO CBR, HR, CRPD,- CBR from the start; now more relevant than ever-2030

Diagnosis- DAI –Aim live well with dementia;

claim HR-CRPD

CBR approach is ideal for dementia

CBR can support people who may have dem- carry out simple checks, recommend asst

PWD EXPERIENCES AND PRIORITIES

Diagnosis: (v rare in Global South). –Spread the message here; we need to get it into KL Declaration.

QUINN

The UN Disability Convention is a mirror to society. It makes us face up to our own values and it forces us to acknowledge the large gap that still exists between the myth system of our own values and the operations system of how these values are dishonoured in daily practice.

As with all mirrors, we can refuse to look into them; we can look at them but ignore their reflection or we can take notice of our reflection and commit to a process of change.

 

 

DAI “A Meeting Of The Minds”, with Professor Steven Sabat

This week, we have been privileged to have Professor Steven Sabat deliver a presentation to our members and supporters, and we thank him for his commitment to people with dementia and our families, and to our work at Dementia Alliance International. If you missed it, you can now watch the recording here.

Understanding the selfhood of people with a dementia: context is key

By Professor Steven Sabat, presented to DAI members and supporters on October 28/29, 2015.

https://youtu.be/3XxY7kMRSvk

A PDF of his power point slides can be downloaded here: Steven Sabat: Understanding the selfhood of people with dementia – Context is the key

Dementia Beyond Disease: Enhancing Well-Being

Last week DAI members and others were privileged to have Dr Allan Power present a session, Dementia Beyond Disease: Enhancing Well-Being as part of our A Meeting of the Minds Webinar series. Thank you Al, your effort, and deep commitment to improving the lives of people with dementia is appreciated.

Dr Allen Power is an internist, geriatrician, and clinical associate professor of medicine at the University of Rochester, New York, and is an international educator on transformational models of elder care, particularly for those with changing cognitive abilities. Dr. Power is the author of two books, Dementia Beyond Drugs, and the newly released Dementia Beyond Disease. He has served as an advisor and educator for the US government for their antipsychotic reduction initiative. Dr. Power is also a board member and educator for The Eden Alternative, the world’s largest culture change movement for elder care.

You will find his presentation enlightening, and hopefully, if you work in dementia care, culture changing.

Dementia Alliance International (DAI) is a non-profit group of people with dementia from around the world that seeks to represent, support, and educate others living with the disease, and an organisation that will provide a unified voice of strength, advocacy and support in the fight for individual autonomy and improved quality of life.

See the recording of his session here. Apologies it has not been edited to improve the quality.

Dementia Beyond Disease: Enhancing Well-Being

https://www.youtube.com/watch?v=42DvFgXEPKk

We will post his power point slides here as soon as possible but due to my current poor internet connection, they won’t download here!

For those who want to follow Dr Power’s schedule, see his website here http://www.alpower.net/gallenpower_schedule.htm

Membership of Dementia Alliance International is free, and is exclusive to those with a medically confirmed diagnosis of a dementia. Join us at http://www.joindai.org

If you do not have a diagnosis of dementia, but are interested in our work, you can subscribe to our weekly blog or visit us at www.infodai.org

As an unfunded advocacy and support group for people with dementia, we appreciate all donations, and are thrilled to have received one following this last webinar. Thank you.

Video of Master Class 1: I’ve Been Diagnosed with Dementia. What’s Next?

On September 3, 2014, over 20 people gathered online in a “Zoom room” via video conferencing to learn how to plan and take control of their lives after a diagnosis of dementia. Our teachers were two DAI board members, both with dementia: Sid Yudowitch (USA) and Sue Stephen (Canada).

If you missed the class or would like to experience it again, here is the video.