Category Archives: Human rights

Dr Al Power – Living with dementia: New perspectives

This week we are adding the recording from the webinar by Dr Al Power held in January this year. Al discusses information and his thoughts about drug use and misuse, and he challenges the “BPSD” concept, and shares so much more. You will find it enlightening, perhaps confronting if yo work in dementia care, but extremely informative. Our sincere thanks to Al for his continuing support of people with dementia.

You can download the power point slides here Dr Al Power DAI A Meeting of the Minds Webinar 27-28 Janury 2016

DAI Webinars and events are held to support everyone connected to dementia, whether the person diagnosed, our care partners, or the professionals and research community who work to support us and improve our lives.

If you are in paid employment, please consider donating the registration fee of $35.00 that you would have been asked to pay if you had attended on the day.

Press Release: Kate Swaffer joins WDC

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Date: February 25, 2016, Immediate release

DAI Chair, Kate Swaffer becomes a member of the World Dementia Council

Dementia Alliance International (DAI) Chair Kate Swaffer from Australia has today officially become a member of the World Dementia Council, the second person with dementia to join this council. This is an important and significant appointment for DAI, and for people with dementia globally.  She joins another DAI member, who is also Vice Chair of the European Dementia Working Group, Hilary Doxford from the UK.

In light of our work towards full access for people with dementia to the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which is a global tool for achieving social change, this second appointment is particularly significant. Article 19 of the Convention is the right to live independently and to be included in the community.  DAI successfully advocated for many months to have at least one person with dementia on this Council, and it is very encouraging today to announce this second appointment.

DAI is the global voice of people with dementia, and seeks to represent the more than 47.5 million people currently diagnosed with dementia, and every new person diagnosed every 3.2 seconds, and this appointment shows progress towards fuller inclusion in those things that are about  us. Whilst our membership is  not yet represented in all countries, we do now have members in a growing number of non English speaking countries, and as membership grows, so will our collective voice.

 “Nothing about us, without us”

Susan Suchan on living with dementia

This week we ar sharing the first of our video series of our members speaking out about living with dementia, about how they feel, and how others can better support them. Special thanks to Susan Suchan for sharing this with us. You can read more of her story here.

Celebrating International Day of Persons with disAbilities

 

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It is the International Day of Persons with DisAbilities, and it is wonderful as the Chair of Dementia Alliance International to have won a National disAbility award in Australia in this space, as your representative. You can read about that and watch a video of it here, and see a picture of all the winners if you re interested.

For the first time (as far as I have been able to discover), it is the very first time that dementia and disAbility have been fully in the same space, and with the work and advocacy many have been doing locally and globally, some for many years, to ensure that people with dementia are eventually recognised under the United Nations Conventions of the Rights of Persons with DisAbilities CRPD), this is a significant award for all people with dementia.

The theme for the International Day of People with DisAbility 2015

Inclusion matters: access and empowerment for people of all abilities.
The  Sub-themes for IDPD 2015 are:
  • Making cities inclusive and accessible for all
  • Improving disability data and statistics
  • Including persons with invisible disabilities in society and development

Alzheimer’s Scotland have a Charter of Rights, and have done some work in this space, but globally, people with dementia have been left out from recognition under the CRPD. This is, in the opinion of many of us, a breach of human rights, and it is outrageous and an oversight we have not had advocacy organisations more actively working towards our recognition as people with disAbilities.

We fit easily into the category of their sub theme this year, as persons with invisible disabilities, and recognition under the CRPD will change the sector due to the fact there is legislation, already in existence, that gives us some level of protection against things like physical or chemical restraint, and institutional abuse.

For a bit more information about the day, the UN says: “The annual observance of the International Day of Disabled Persons was proclaimed in 1992, by the United Nations General Assembly resolution 47/3.

The observance of the Day aims to promote an understanding of disability issues and mobilize support for the dignity, rights and well-being of persons with disabilities. It also seeks to increase awareness of gains to be derived from the integration of persons with disabilities in every aspect of political, social, economic and cultural life.”

Editor: Kate Swaffer