Category Archives: Hello my name is

#Hello, my name is Cheryl Day

As we move into the second half of September, DAI continues to share #Hello stories from our members.

Please join us in celebrating life, and working towards a world where people with dementia and their families receive  improved diagnosis experiences and rates, and better care which includes rehabilitation. Of course we all want a cure or a disease modifying drug for even one type or cause of dementia, but the more than 50 million people currently living with dementia and their families also deserve the better care.

Special thanks to Cheryl Day for sharing her story with us today.

Image source: Cheryl Day

Hello My Name is Cheryl Day. 

Working cross culturally in Africa has many challenges and joys. Since 2009 I had been volunteering for SIM (Serving in Mission) in Ethiopia and Zimbabwe as a Horticulturalist (training farmers in conservation agriculture & food security) and a Pastor. I can tell you lots of stories of my adventures.

The joys were many, like opportunity to build new relationships, friendships, making a difference in peoples lives and the impact they had on my own life. Challenges like learning new languages and cultural cues, almost ending up in jail in Ethiopia, living standards and resource availability way different to Australia, and having two very serious back injuries while there. I thought this was about as challenging as my life could be.

While in Zimbabwe, October 2016, I had some unusual health symptoms that I couldn’t make out. In January 2017 I had the regular tests in South Africa for previous health issues, but the tests showed all was fine, but I knew that something was wrong. At the same time my issues started my sister was diagnosed with AML Leukemia back home. I eventually made a trip home in March 2017 to spend time with her and family.

While home I took advantage of better medical facilities to begin investigating my own health issues. At first, they thought my symptoms matched Multiple Sclerosis (MS). There was also a thought that there may be two major conditions happening at once. However, with no certain diagnosis I was given a clearance to return to Zimbabwe and continue the vital work there.

To cut a long story short after returning back to Australia the end of 2017 I finally got an official full diagnosis in May 2018 as test results showed a further decline from 12 months pervious.

Absolutely shattered at the prognosis of a growing list of health conditions and told to get all my affairs in order.

At 51 years old I was diagnosed with a rare condition – the semantic variant of Primary Progressive Aphasia. Plus issues from a Chiari Malformation of the brain, osteoporosis, recovering from a fall in Zimbabwe September 2017 where I had shattered 3 vertebrae in my back (a miracle I didn’t come home in a wheel Chair), and issues from the previous 2013 back injury.

Devastated knowing that this would be the final straw to end a goal of volunteering in Africa long term. (by the way I did get back to Zimbabwe to say goodbye in Sept/Oct 2018). I cried more than I had ever before, felt totally defeated, this was the end of my missionary adventures, the ability to enjoy life and continue to contribute into the lives of others.

One day I was listening to the radio and they were interviewing a lady named Kate Swaffer and her journey with dementia. Of course, my ears pricked up given my current circumstances and I listened intently to the interview.

I grabbed my computer and googled Dementia Alliance International. Becoming involved with DAI and connecting with Kate was the breakthrough I had been praying for and haven’t looked back since.

From the beginning of 2019 the support groups, the informative webinars, the friendships I’m making, the realisation of knowing I’m not alone in this, the opportunity to volunteer and help in advocacy for dementia are lifesaving.

A new focus, new life and new possibilities.

I am learning what I have read in the Bible so many times about living one day at a time and not worrying about tomorrow. I am still capable of many things, have a lot to offer and my passion of empowering people continues, just with a different perspective.

Cheryl Day © 2019

Please help us support more people like Cheryl living with dementia to share their stories and live more positively by donating or partnering with Dementia Alliance International.

#Hello, my name is Valerie Schache

Special thanks to DAI member, Valerie Schache for saying #Hello today, the continuing blog series we are publishing for Dementia Awareness Month/World Alzheimers Month. #WAM2019

Image source: Valerie Schache

Hello my name is Valerie Schache (Val). I’m 67 and I live near Ballina NSW Australia. I have dementia and I continue as the long term care partner for my husband with complex needs since 2004 . I was diagnosed August 2015 when I was 63. I was not supported, just given a dementia drug and ‘bye’. I’m still not tagged; I don’t fit the requirements for NeuRa Frontier etc and am left to my own devices to find a way through the minefield of deficits.

My paid skills were as acupuncturist physiotherapist including complex pain in de-mentia aged care. I’m also a life time farmer. I thank my country upbringing and wise parents who included me in ‘Why is this so’ type of discoveries. I have massive cognitive reserves to cope with the diverse defi-cits says my neuropsychologist assessors. We pioneered in farming and I in allied health and I now pioneer best health practices in the dementia space. 

I Thank God for DAI [Dementia Alliance International]. I was unravelling – not supported – not being believed; stigmatized and isolated to near oblivion and self harm.

My first DAI zoom in 2016, with a mob of diverse people globally with dementia—I laughed for the first time post diagnosis as I participated; I didn’t have to pretend in this group. I was encouraged to seek the latest ideas and I improved cognitively with the Bredesen type protocol. I then got angry that the ‘establishment’ weren’t right, that nothing could change a dementia journey. I became motivated enough to give back and educate for inclusion of my dementia disability—my human right; for suitable rehabilitation to keep me well and kindness. I have pre-sented globally nationally and now locally. Facebook has been my ‘work’ pre-dementia so I now also have an active group ‘Val’s journey –dementia is a word not a sentence’ and comment often on other sites. I am gifted at reading research papers and gleaning the nuggets of change for the better from diverse sources. 

Advantages of dementia: yes, there are some.

I’ve found who my handful of friends really are. My personality type changing deficits means I’m now stronger minded. opinionated; my language is colorful, pithy and sometimes to the point. My ‘bull-shit’ meter is accentuated and I certainly won’t be patronised or treated as less because I have a neurodegenerative disease. I tackle things from the front foot.

Yes I can only now do one thing at a time– but then so do most men. Passionate, fearless bold as a hyena I help tackle issues especially if injustice is involved. I can still read a scientific paper of any genre and give you back six points in plain speak to any audience. My considerable savant knowledge is exposed and I’m well read. 

Disadvantages of dementia: yes!

In my ‘bestment’s’ words ‘It’s a pain in the ‘butt’ —I want my old Val back’ – it wont happen this side of eternity but I’m committed to her and we support each other and its ongoing. We are a great team. I struggle to be OK with the flamboyant new me. I have constant grief as I have brain ‘rat gnaws’ and I wonder what’s gone this time and can I get around it!

I hate having disturbed bodily functions; to always be reminded to remember what I need to take especially if I am distracted. I hate needing to pace myself, and accepting increasing support from others.

To be told ‘you don’t look like you have dementia’ – deep breathe Val– that is such an insulting reflex comment—one you would not say to someone with diabetes etc.

I have a DNR bracelet and all our legal affairs are in order so I don’t have to think about that part of the future except with joy at going home. 

I know dementia’s for over fifty years, observation and then worked as an acupuncturist physio for 32 yrs; a decade in a locked dementia ward and since 2005 have supported dozens of friends to die with dementia. But I say dementia should be rare—not an epidemic. 

What’s changed since the 1950’s?

Lets consider plastics, diesel fumes, atomic bombs, margarines and cholesterol issues/reduction and less sleep /increased stress and now obesity. It’s onset can be slowed even preventable with diet, BP/ Weight control. I say ‘If great grandma wont recognize it , its not food’ e.g. margarines. Hundreds of us in dozens of countries are creating a quiet revolution of change- confounding the ‘experts’ by reversing /slowing dementia– bringing hope to those able to follow a personalized precise protocol.

Back to basics of having health gut biomes for a healthy brain. Removing allergens including foods and environmental toxins especially mold. Team Val use hair analysis blood tests supplements and other hands on best practice to improve me holistically. Being mindful, stress controlled, sleeping soundly, very kind to yourself and at peace with those around you. Live in the moment as it is your pre-sent. I have hope, I have significantly improved in many markers since 2015 and I have dementia. 

Final words…

Its not the future I would have chosen, but we are making the best of this deal and giving back . We laugh and love freely. I aim to ease the life of all the other thousands pre and post dementia diagnosed. I’ve always smashed ‘glass ceilings’ so I’m breaking down the myths /assumptions about de-mentia, boldly and in every avenue presented to, or created by me. 

Don’t be like dementia, it doesn’t discriminate, it is a disability, and it is unkind. Be aware not to discriminate, be inclusive and be especially kind to all, and do everything to slow or prevent the onset of dementia for your own sake. 

Valerie Schache © 2019

Please help us support more people with dementia to share their stories and live more positively by donating or partnering with Dementia Alliance International.

#Hello, my name is Dr Ting Fei Ho

On Day 6 of Dementia Awareness Month (World Alzheimer’s Month), we share a daughters heartwrenching story of her mother. This year, we decided as part of the #Hello daily series of blogs to try and more fully represent people living with dementia, but also to share some stories from family members as well.

Today, for the first of our carer stories, we share that of a daughter living in Singapore, who has been fighting for the rights of her mother who lives in a residential aged care facility (nursing home) in Western Australia. Ironically, this story also highlights the denial of many human rights, and abuses of an elderly mother in Western Australia, part of a country where there is a currently Royal Commission into Quality and Safety into Aged Care! Thank you Ting Fei for sharing your mothers story.

Image source: Ho Ting Fei

Hello, I am Ting Fei. I am my mother’s voice for her dignity, personhood and justice. My mother has numerous medical issues, and is also diagnosed with dementia (but she suffers from neglect and abuse). She now lies immobile, helpless, with severe muscle contractures, in an aged care facility in Perth, WA, Australia.

My mother is a 90 year old Chinese lady, widowed in 2012. In July 2016 she walked (with a frame), fairly independent and able to perform basic tasks of daily living, into this nursing home. But, in less than two years, she is reduced to total dependency on full support for her daily living in a wheelchair. How did all these happen in a place her guardians (EPGs) boasted as a “5-star hotel resort style” aged care facility? What has gone wrong?

Here are some of the grotesque facts behind the scene at this river-front “resort”:

  • Her sons first denied the diagnosis of cognitive impairment and promptly brought her to change her will. They took control of her finances and issued a debit card in her name. Within a year, my mother suffered two falls in Perth. The second one was what prompted the sons to place her in this “resort”.

There was a history of “mild” stroke and delirium before the second fall but the medical records on this mysteriously disappeared. There was a warning about risks of falls but this was never heeded. Once she was in this “resort” her sons, who also applied to be her guardians, left almost all care to the general practitioner (GP) and care-givers at the home.

  • The GP has this strange conviction that all declines in general health, cognition, mobility, ability to feed an swallow, loss of muscle mass etc are part of the natural process of ageing. Hence no further management is necessary unless for acute conditions and emergencies. He does not believe that a geriatrician can better manage my mother in her state of dementia and failing health. So my mother was never prescribed any form of medication for her dementia; no post-stroke rehabilitation and no systematic follow up for her failing health.

But this GP does not hesitate to prescribe heavy doses of Panadol to my mother. He later added Endone (an opioid drug) to my mother, for her painful muscle contractures, with no adherence to safety protocols or monitoring of side effects over several months.

  • The care coordinator at the home who professes to be a trained sports physiologist believes that physiotherapy is harmful for my mother. Hence no active or passive physiotherapy was prescribed for her.

Under such care, my mother rapidly deteriorated in her mental, physical, and nutritional state; from being mobile to full dependency on a wheelchair, in less than two years after admission to this home.

There were a series of unexplained and poorly documented falls resulting in bruises and injuries, including one with frontal impact to her right eye ball. She suffered pressure sores with one deep chronic sore on her left ankle that only healed after more than one year. She suffered recurrent skin blisters and bruises over her body and limbs and also recurrent urinary tract infections. Her puffy face from over-dose of steroids was bragged as a sign of good nutrition with weight increase. Many more healthcare issues occurred that are too lengthy to describe.

What dignity is there when she is found soaked with urine dripping from her wheelchair, being undressed by two African men, with food left for hours in the mouth…..?

What person-centered care is there when she is isolated in a place where she had language limitations and where she does not get her familiar Chinese food?

What quality of life is there when she only gets a wheelchair/bed to sleep on, a roof over her head and three meals that she hardly can eat?

In three years I exhausted almost all avenues of help that I can ever think of in WA, a state that has no law against elder abuse. Where there is no law there is no prosecution for offenses and no protection.

My pleas for better quality of care and protection against abuse fell on deaf ears. Despite all the evidences available, no one was interested to know. The State Administrative Tribunal and the Supreme Court both concluded that my mother is happy and wishes to stay at this home; that her guardians and doctor have always looked after her best interest.

WHO defines Elder Abuse as “a single, or repeated act, or lack of appropriate action, occurring within any relationship where there is an expectation of trust which causes harm or distress to an older person”.

In the hands of people my mother loves and trusts, these are the tragic experiences she silently suffers ……. “a scandal beyond belief” indeed.

Ho Ting Feo © 2019

Footnote: Many public self advocates are regularly accused of not having dementia, or are chastised for ‘grossly misrepresenting’ dementia. Most are, however, well aware of what is ahead of  them, which could be the same as it is for Ting Fei’s mother.

#Hello, my name is Bobby Redman

On Day 5 of Dementia Awareness Month / World Alzheimers Month, we share Bobby Redmans story.  Thank you Bobby.

Note: as many members of  DAI prefer to call it this month Dementia Awareness Month, so that anyone who does not have the Alzheimer’s type of dementia does not feel excluded.

Image source: Bobby Redman

Hello, my name is Bobby Redman.

In 2015 at the age of 66, I was given a provisional diagnosis of mild cognitive impairment / fronto-temporal dementia after experiencing a range of symptoms, including a noticeable change in my ability to perform day to day tasks, some communication issues (both in speech and in my ability to follow conversations); and changes in my personality, picked up by close friends.

Since then, in spite of my scans identifying some shrinkage of the brain, with gaps appearing in my frontal lobe, the neurologist has been reluctant to confirm the diagnosis, given that “I am functioning too well” (His words not mine). I believe that some doctors are reluctant to give the diagnosis of dementia, thinking that they are being kind. With no cure being available, at this stage, they seem to think that an early diagnosis is pointless.

This is frustrating for those of us living with dementia that don’t see a diagnosis as an end, but as an opportunity to develop a support plan to include available interventions to assist us to maintain our levels of functioning.

Recent psychometric testing has confirmed what I have been telling the specialists for a while, in that my cognitive skills are significantly declining along with indications that my motor cortex is impacted, resulting in a decline in my motor skills. This confirms that I have a neurodegenerative disorder, and further tests are underway to see if they can give it a name – this would be far more important if there was any treatment / cure for the condition.

Before retirement, a year prior to my diagnosis, I practised as a psychologist, working with people with a disability. Much of my work was working with people and their carers to develop programs to assist people to function to their highest capacity, on a day to day basis.

This professional skill is why, I believe, that I continue to function “too well” in my doctor’s viewpoint. Trust me, it is not easy to be observing my own decline and capacity and to continually be looking for ways to re-habilitate myself, it would be wonderful to have a professional doing this for me, but the mental focus required for this is part of my personal program, so I don’t complain.

As I start to slip and am obviously less competent than I had been, some of my regular friends are starting to realise that things are not going as well as they appear. I am lucky, many of them are stepping forward and offering support – coming from a strong volunteering background, many of my friends, whom I have volunteered alongside are good, kind people wanting to help.

They don’t always fully understand, and I have to get better at letting people know what sort of things would help me….I am trying!

My newer friends are those who I have met through our work in dementia advocacy. This group of friends are like a global family; a family who you know is there to back you up when you are having a bad day. Without organisations like Dementia Alliance International (DAI) and Dementia Australia , I am unlikely to have ever got to know these people and who’s to say that I would be feeling as positive about my daily living if this had been the case. I thank my lucky stars, each day, that I have this group of amazing people on whom I can count – they give living well with dementia, real meaning.

Bobby Redman © 2019

Please help us support more people with dementia to share their stories and live more positively by donating or partnering with Dementia Alliance International.

#Hello, my name is Jacqui Bingham

On Day two of our #WAM2019 #Hello members stories, we are delighted to share the story of one of our members in the UK, Jacqui Bingaham. Thank you Jacqui.

Hello. My Name is Jacqui Bingham and am 66 years of age.

Image source: Jacqui Bingham

I was working at a large Funeral Directors for 12 years and had studied at Bath University for the Foundation in Funeral Science Degree. I was unusually forgetting things and the company gave me disciplinarys instead of support. In 2016 I resigned feeling that I was a liability.

It took a long time for my General Practitioner (GP) to send me to the Memory Clinic. In 2017 I was diagnosed with young onset Alzheimer’s Disease.

It was a relief, as know I had an answer.  I have learnt strategies to help with reminding me to do things . But as I have depression, anxiety and other long term health conditions I am trying to manage I found I needed more psychological support. This is something I feel is important as we go though the grief process.
I find I need to be by own advocate and fight for my needs to be met.
I started painting and was asked to do one for an Exhibition. I painted my brains and inside  are pieces of a jigsaw and a piece labelled Memory painted in black is replaced by a piece is bright yellow labelled art..and so on. Showing that as I lose parts of my cognitive self so they are being replaced by creativity. (There is a photo of Jacqui’s painting, added at the end of her story).
I am involved in research and help with End of Life Projects and give short talks.
I have applied for a Churchill Fellowship Grant to go to USA to gain inspiration from their Art Therapists who trained in Alzheimer’s Disease. Then to return and inspire others.
I get a lot of support from my peers .
Copyright: Jacqui Bingham 2019

Please help us support more people with dementia to share their stories and live more positively by donating or partnering with Dementia Alliance International.

Alzheimer’s from the Inside Out, by Dr Richard Taylor

It would have been the late Dr Richard Taylor‘s birthday today (perhaps tomorrow if you are in the USA), and to honour his memory, and his influence on the lives of so many people with and without dementia. we are re-posting a video of him speaking at the first ADI conference DAI members attended, in Puerto Rico in 2014.

Alzheimer’s from the inside out

Watch and listen at the 53 second point of this video…  Richard talks with sincerity, but also with some cynicism about why he believed he was offered an award and invited to speak at the awards event. This is still happening to most people with dementia  today.

https://youtu.be/il9f_YnOZlM

His speech notes are on the original DAI blog published after the conference

Hello, my name is Peter Berry

Following on from the World Alzheimer’s Month series of #Hello blogs, we continue to share our members stories. Peter Berry from the UK has been doing a weekly video podcast about his experience of living with dmentia, now up to his 70th. This one was  focuses on the difficulties of a diagnosis, and stigma. Thank you Peter for giving us permission to share your 25th video here.

Dementia Awareness: difficulties of a diagnosis

Peter Berry on Twitter 
Peter Berry on YouTube
Studio Interview with Peter Berry representing DAI

Hello, my name is Eileen Taylor

Eileen with her husband Dubhglas presenting at the STRiDE Workshop in London 2018

Following our #DAI #Hello my name is blog series for World Alzheimer’s Month #WAM2018, we are continuing with our stories, as we have many more than 30 to share with you.

September was an exceptional month for our members, some whom for the first ime, had been given a voice through these blogs.

Therefore, today, we feature DAI board member and secretary, Eileen Taylor from Australia. Eileen also co hosts the Monday Australian support group. She and her husband Dubhglas are also co founder of a local advocacy group in Brisbane, the Dementia Advocacy and Awareness Team (DAADT) . Thanks Eileen for sharing your story and for all you do for everyone with dementia.

I am still Eileen

Hello, my name is Eileen Taylor. I was diagnosed with Familial Younger Onset Alzheimer in 2009 aged 59. I was the same age my Dad when he was diagnosed with dementia back in the 1980’s. Both he and his brother in the UK died with a diagnosis of Alzheimer’s in 1994.

Back then, Alzheimer’s wasn’t really discussed, and we didn’t know how to recognise the signs. My Dad struggled to focus and sometimes couldn’t remember what happened the day before. His doctor just put this down to being eccentric and told us there was nothing to really worry about.

Throughout his long and distressing struggle with dementia, my Dad regretfully was never told the truth about his illness.

While I am now trying to live well with dementia, it was very different when I was first diagnosed in 2009. Then, I noticed I was becoming a little forgetful, but it was nothing too major. I didn’t really take too much notice until one day I saw a documentary on TV about the genetic link to dementia.

Because of what had happened to my Dad, I thought that I needed to know, so I had a genetic test to find out the truth. Not just for myself, but for my two sons and my grandkids too – I thought they had right to know if the gene was in our family.

At first the doctor didn’t think there was any reason to know, after all I was below the age when most people start to show symptoms. But I pushed for it, and I’m glad I did, because it enabled me to catch it early and to be a part of several clinical trials to find answers.

When the results of my genetic test and other assessments revealed that I did in fact have the gene and had Alzheimer’s, the news was initially “mind-blowing”. I was devastated, it was a “surely not me!” moment. I was only 59. It was the worst thing to happen to me. It was at that moment when I actually felt the pain in my chest after hearing news that broke my heart. On reflection it was like:

“Imagining you wake up one morning and your computer has been switched from a PC to a Mac, and the keyboard is suddenly Azerty. You are now trying to write a paper with that, while your hands are cuffed together, and your head is in a bucket of Jelly.”

Nevertheless, after my diagnosis, I chose to engage in, not give in, but to fight for a cure and to support other people as well as their families living with dementia. I was determined not to remain silent (as what had happened with my Dad) but to speak out and talk to people and help them to understand what it is like to live with dementia.

Parallel to the trials, the Dementia Alliance International (DAI) became my lifeline, an oasis in a sea of medical denial and indifference I had seen from some health professionals. It gave me a voice to speak out and I was accepted unconditionally into the group I joined.

Now, thankfully, I am a part of the DAI Board, serving as their Secretary, Advocate and on-line support group facilitator for the Australian and New Zealand people.

I am also an advocate and co-founder with the Dementia Awareness Advocacy Team (DAAT), as well as an advocate and active participant with Dementia Australia (DA) and serve on several dementia committees.

Doug, my husband has supported and helped me to live positively with my dementia by externalizing it.

I am not the problem, the problem is the problem, and in my case it’s Alzheimer’s dementia.

My dementia externalized is; my “Dark Cloud!” It helps me come to terms, that I am not my Dementia, my Dementia is my Dementia, I am still Eileen.

Eileen Taylor © 2018

DAI’s vision: “A World where people with dementia are fully valued and included.”

Help us support people such as Eileen. Become a DAI Sponsor or Associate today.

Hello, my name is Peter Mittler

Image source: Peter Mittler

The #DAI #Hello #WAM2018 blog series have been very popular, hence we intend to continue them at least weekly for some time to come. We have many new members joining DAI each week now, and want to continue to give everyone with dementia a platform to have a voice, if they want one.

As is it important to talk about progress (or not), today, therefore we begin October with an article by DAI member Professor Peter Mittler. Peter says #Hello with a reflections on our human rights.

Peter has worked tirelessly for most of his professional life for the rights for people with disabilities, and for the last few years has devoted his attention to the rights of people with dementia, sharing his extensive expertise and knowledge, and is friendship and commitment to the 50 million people currently living with dementia. Thank you Peter. We are humbled and honoured to have Peter as a member, and thank him for his continued focus on the rights of us all; DAI is deeply indebted to you.

Hello, my name is Peter Mittler

MY REFLECTIONS ON OUR HUMAN RIGHTS

My human rights journey began shortly before my 7thbirthday when Hitler’s army marched into Austria and street thugs wearing brown shirts and swastikas arrested thousands of Jews, closed their shops and businesses and stopped me and other Jewish children going to school.

My story is told at length in a memoior, Think Global Act Local: A Personal Journey (2010). It now needs a new title:  Act Local Think Global because the responsibility for taking action on human rights rests with each and every one of us.

The United Nations Organisation was founded in the wake of the Holocaust and the loss of hundreds of million lives in World War 2.  Under the inspirational leadership of Eleonor Roosevelt, the UN produced the Universal Declaration of Human Rights in 1948 for everyone on the planet.  That Declaration provides firm foundations for the legally binding Conventions on the rights of specific groups who were experiencing inequalities and discrimination: women, children, ethnic minorities and last but not least disabled people.

Although the UN has officially recognised people living with dementia as persons with cognitive disabilities, governments have not included us in the implementation of the CRPD or other Conventions. This is nothing short of systemic discrimination which will only end if we insist and persist in the demand for our human rights on the same basis as people with other disabilities.

  • What can be more important than our human rights?
  • What is worse than decisions about us without us?
  • Why do governments and decision makers ignore us?

Since March 2015 when Kate Swaffer first demanded access to the CRPD at the World Health Organisation, I have worked with her and many others to secure our rights but we have very little to show for our efforts.

The UN supports us but our governments continue to ignore us. Dementia Alliance International and Alzheimer’s Disease International helped inform the World Health Organisation’s Global Action Plan for a Public Health Policy in Dementia (2017).  It is a good plan but it is not clearly based on the General Principles and substantive Articles of the CRPD. Furthermore, very few governments have acted on it.

There now needs to be a campaign to use the CRPD in planning supports and services in the wider context of the UN’s Action 2030 Sustainable Development Goals.

Will it happen?

Over to you!! 

Peter Mittler © 2018

 

DAI’s vision: “A World where people with dementia are fully valued and included.”

Help us support people such as Peter. Become a DAI Sponsor or Associate today.


 

Hello, my name is Jerry Wylie

On the final Day of the #DAI #Hello my name is blog series for World Alzheimer’s Month #WAM2018, we feature Jerry Wylie, DAI’s Vice Chair and an advocate from Philomath, Oregon, in the USA. Jerry is a committed and very active board member, and supports two of our peer to peer support groups, as well as co-hosting our Action Group and wekly Brain Health Meetings.

Thank you Jerry, from everyone, for saying hello again here to support this series, and for all that you do for DAI and others. Jerry has also set up a local face to face support group where he lives, which now has more than 20 members. We are very proud of him, and grateful for his hard work. This is his story.

It is a matter of our Civil Rights

DAI & Jerry Wylie © 2018

DAI’s vision: “A World where people with dementia are fully valued and included.”

Help us support people such as Jerry. Become a DAI Sponsor or Associate today.