Category Archives: Dementia Friendly

Spirituality and Dementia

Culturally, it is easier to understand someone in Africa or Nigeria believing a person with dementia has been taken over by evil spirits. What is not acceptable, particularly in a developed country, was to discover recently that some  Christian Leaders are blaming people with dementia for having the disease, telling them they must be sinners.

Unfortunately, DAI has had many members who have had this experience recently, from countries including the USA, UK and Australia. And whilst not all of our members have any kind of Christian or other Faith or Spiritual beliefs, it is definitely not kind, or true, to tell someone they have dementia because they are sinners.

Thankfully, we also know many Churches are actively working towards welcoming people with dementia, and many are even working towards becoming dementia friendly, which is wonderful, but those who blame us for having dementia becasue ‘we are sinners’ need a lot more than education or awareness…

As a way to support our members, DAI decided to the best solution was to host an online non-denominational Inclusive Christmas Worship Service next week.

It is being held for our DAI members (or indeed, anyone with dementia), and their family and friends. Members will have today received details on how to join via email. We hope this will be the first of many, and are thrilled Jim Spiker from Adelaide has agreed no only to get up early to lead it, but was willing to learn about Zoom!

Jim has been involved in Chaplaincy ministry since 1976. He has worked in schools, industry and workplaces, and for the last 17 years, as an Aged Care Chaplain in South Australia. His theological training was with Churches of Christ and he was involved in part-time parish work alongside his chaplaincy work on several occasions. Jim enjoys reading across a broad range of subjects from Terry Pratchett to Neuroscience and a fair smattering of theology and philosophy. He is keen on environmental work and is an active bird-bander in a local conservation park. Jim and his wife Anne love keeping up with their children and grandchildren and often rely on Facebook to read what they are all doing. The current excitement is getting ready for a dachshund puppy to arrive as his 70th birthday present.

One of my friends, also a DAI member and a long time campaigner Ken Casper from Durham in the UK, has written about spirituality on his blog called How feelings change in dementia. It is an interesting read, and I’ve had many discussions with others either gaining faith, or losing their faith after being diagnosed with dementia. It would be a reallyinteresting topic to study further, if I wasn’t already so busy!

We look forward to seeing our members and their partners, families and friends online other next week or the one after (or both!) at our end of year (non denominational worship service, and our non religious) festive season celebrations. If you are a person with dementia, but not a member of DAI, you and your family ad friends are still welcome to join us by emailing us at [email protected]

Best wishes for a joyous festive season, one and all.

Kate Swaffer
Chair, CEO & Co-founder
Dementia Alliance International

DAI visits Taiwan

Last week, invited as the Chair and CEO of DAI, and in my role as the Ambassador for Alzheimer’s Disease International in South East Asia , I visited Taipai. The invitation to visit and support Taiwan was from LiYu Tang, who is the Secretary General of the Taiwan Alzheimer’s Disease Association (TADA) 湯麗玉  台灣失智症協會秘書長. This image was taken on the last day, at the end of the public meeting.

The staff of TADA, and the many others involved in planning this trip were incredibly generous and hospitable hosts, and looked after my BUB and I well, and especially ensured we ate well. The other very important part of this trip was the services of a translator, and on the first meeting, a university professor was able to translate for our meeting which was incredibly helpful, as instead of meeting with only one or two people, about 20 of the staff were also invited.

On the next two days, a beautiful young woman called Victoria Chang was engaged to translate for my sessions, and in one part of the public meeting, I completely forgot I needed her, and spoke for so long it was almost impossible for her to follow! It was incredible to have her support, and her ability to follow me, when I was unable to follow my own notes or slides, made it even more amazing.

The goal for my visit was not specifically to raise awareness of dementia, but partly to empower other people diagnosed with dementia to become advocates, and to work with Taiwan to inform government, policy and services. In the process of my many meetings, the seeds were sewn for the Taiwan Dementia Working Group.

People with dementia who attended the session at the Taipei Family of Wisdom house, a centre for people with dementia to attend and be involved in many different activities, spoke out for the first time publicly of their own experiences after the session there. The next day, in my final public meeting, a gentleman who had travelled from afar, also spoke up, and has also been invited to become a member of the Taiwan Dementia Working Group. It is a very exciting time for people with dementia in Taiwan.

My other meetings were with a number of government or city officials, and the President of TADA, and the aim was to not only give them insight of dementia from the inside out, but to discuss ways in which they could change the experience of dementia for those diagnosed, and on ways to collaborate with each other towards a dementia friendly and dementia accessible and enabling Taiwan.

My schedule was incredibly busy…

Day 1: Depart Adelaide 2pm on April 19, and arrive in Taipei on April 20 at 11:30am (sleep – only on the flight as somehow we mixed up the schedule, and arrived a day later than expected!), and check into the YMCA hotel in Taipei.
Meeting 12.30-1.30pm with Shwu-Feng Tsay Director-General, Department of Nursing and Health Care, Ministry of Health and Welfare, and about 20 of their staff.

Day 2: Pick up at 8am
Meeting 1: 9-10am – Chi-Hung Lin, Commissioner, Department of Health, New Taipei City Government, and a number of his staff.
Meeting 2: 11.30am-12.30pm – Li-Min Hsu, Commissioner, Department of Social Welfare, Taipei City Government, and a number of staff


Meeting 3: 2-4pm – held at the Taipei Family of Wisdom, a relaxed afternoon tea and presentation to family, staff and people living with dementia. I was welcomed and thanked by Li-Yu Tang, the Secretary General of the Taiwan Alzheimer’s Disease Association. My translator Victoria Change learned here how I can no longer follow my own notes, so it was excellent preparation for her for the public meeting!

Day 3: Pick up at 8.50am held at The Home of Christ Taipei
Press conference, 9.30-10.00am
Welcome and introduction by LiYu Tang
Presentation by Te-Jen Lai, President of TADA
Presentation by Kate Swaffer: Human rights of people with dementia
Presentation by Yu-Chin Wu, Legislator
Presentation by Hui-Jiuan Chien, Director General, Department of Social and Family Affairs Administration, Ministry of Health and Welfare
Speech to the public, 10-11:30am with Facebook live broadcasting
Presentation by Kate Swaffer: Living Beyond Dementia
Question from the audience, Kate responds (with the support of Victoria, the incredible translator!)
Presentation by Zi-Long Ku, the Commissioner of Department of Social Welfare of Taoyuan City Government
Closing by Te-Jen Lai, President of TADA
Group photos

It was a very positive, but also very tiring few days, and I was honoured  and deeply humbled by these wonderful people, in particular this living with dementia who found the courage to speak out publicly for the first time. Thank you Taiwan.

Kate Swaffer
Chair, CEO and Co-founder
Dementia Alliance International

Ps. I have added a collage of photographs of the events below. Our next blog, will be about the ADI conference in Kyoto, and brining DAI to Japan!

Empathy: The Human Connection to Patient Care

“Patient care is more than just healing — it’s building a connection that encompasses mind, body and soul. 

If you could stand in someone else’s shoes . . . hear what they hear. See what they see. Feel what they feel. Would you treat them differently?”

CEO Toby Cosgrove, MD, shared this video, titled “Empathy,” with the Cleveland Clinic staff during his 2012 State of the Clinic address on Feb. 27, 2013. Published on February 27, 2013.

This is a reminder to us all to walk in each others shoes before we ignore, criticise or talk harshly to or about…  As we work together, towards dementia friendly and accessible communities, we must keep this uppermost in our hearts and minds.
The power of collaboration, of acceptance, of being able to accept healthy criticism, in order to improve the lives of everyone in our community, including people with dementia and our families, is paramount to the work DAI does, and to all those individuals or organisations working tirelessly to make a difference.
Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has. (Margaret Mead)

DAI Media Release: conference guidelines

Dementia Alliance International is today launching the first edition of our conference guidelines based on feedback from people with dementia and family care partners since 2012.

Of course, it was not possible to receive feedback from the more than 47 million people currently diagnosed with dementia, but we did engage with hundreds of people from more than 12 countries.

Your feedback is important, and if you have ways in which the next edition of this document could be improved, we would appreciate hearing from you.

“Because members of Dementia Alliance International (DAI) have a unique perspective on conferences we decided to assemble responses from post-event informal email surveys of the past four years to see how people with demen a and care partners feel about the access, support, and enablement provided at professional mee ngs of Alzheimer’s Disease Interna onal (ADI) and other conferences or events.

In other words, we asked if such events are dementia friendly, accessible, and accommoda ng for people of all ages and disabilities.”

You can download the full report here supporting-and-accommodating-people-with-dementia-at-conferences-and-other-events_2016, or email us for printed copies at [email protected]









World Alzheimer’s Month 2016 wrap up

IMG_4978We have attempted to shared as many #RememberMe stories as possible for World Alzheimer’s Month 2016, all either highlighting some very personal experiences of living with dementia, or some of them about some of the  brilliant local, regional, national or worldwide advocacy some members are involved in.

Whether it is global, or simply helping the person next door, it is important work. Sharing a personal story via a blog, or at you local town hall or church, is just as important as making a video thy is shared more publicly. It is not a competition of who is doing more, or of the best.

There are simply not enough days in World Alzheimer’s Month to share them all, which also means we have many members stories to continue sharing over the next few months! What we did was to sent out messages to members to send in their stories, and the ones we have shared this month are simply from those members who responded. We have not even been able to add them all during September, but will endeavour to do so over the next few weeks.

That does not mean, of course, that there are not many other brilliant stories of excellent advocacy to share. Less than 5  years ago, there were not so many people with dementia actively working so publicly as advocates; today, we could (if we had the funds to employ someone!), write a daily blog every single day of the year, as so many are all over the globe are now doing wonderful things.

People with dementia have been sharing their own stories, in their own ways, of ‘Living with dementia’ for some time now. Each person’s way of raising awareness of dementia is important, whether it is a blog here or elsewhere, an article in a magazine, an event of some kind, a documentary or at a conference.

And all of these stories or advocacy work should be shared widely; this is in part what advocacy means.

We all have really important issues including reactions of close family and friends, coping with disability due to dementia, and even issues such as stigma, isolation, loneliness and discrimination to share, but also there are many stories of living well with dementia, in spite of it. These are equally as important, and just as important, are the events which may have limited or broad outreach, as raising awareness is.

So to end our series of daily blogs for #WAM2016 #DAM2016, we are highlighting a few things our members and others have been up to this month.

Wendy Mitchell, Jennifer Bute, Chris Roberts, Keith Oliver, Larry Gardiner and others in the UK have been involved in a documentary being made for Japan out living with dementia.  Wendy lives in York and writes a great blog, including this one about having the Japanese film crew in her home recently. DEEP and YoungDementiaUK have been very include wiht a lot of activities this month as well, including hosting a conference.

There have been so many conferences in so many parts of the world this year for #WAM, we would need to write a book to cover them all. Nigeria perhaps was the most important one of all, as the less developed countries are needing so much more support to raise awareness than the developed countries; in fact, even for people to get a diagnosis is a major concern for them!

Chris Roberts and his wife Jayne and daughter Kate from Wales had a BBC documentary made about their story of dealing with dementia, and it was great news to read on Facebook it has been picked up by an agency for global distribution. Chris has also been nominated as a finalist in the National Dementia Care Awards and we wish hm luck again this year.  You can view Chris’s documentary here…

Other members have been busy as well, and we celebrate again the prestigious Inaugural Richard Taylor Memorial Advocates Award won by Mick Carmody this year.

Some of our Aussie members such as Eileen Taylor and John Quinn and their care partners have been busy including working on a Dementia Friendly Community project. You can see a video of John Quinn talking about living with dementia here. Edie Mayhew and her partner Anne Tudor have also been very busy in Ballarat working on a campaign in their home town of Ballarat called Bigger Hearts.

It is not possible to cover everyone’s stories or activities today, and if we headed to America and Canada to give a preview here today, it would take too long to write, let alone read!

Susan Suchan though, has been involved in a documentary of her life and what it is like having dementia, and in particular living with the condition known as Primary Progressive Aphasia.

You can read more about Susan’s documentary here…

In our final blog for World Alzheimer’s Month 2016, we apologise to those we have not (yet) recognised for their advocacy or other efforts, but we hope you will think about sending us your stories for future blogs here.

It has been a very busy and productive month all over the world as we collectively raise awareness of “Dementia from the Inside Out”!

Edie Mayhew and Anne Tudors “Bigger Hearts” Campaign story

In our continuing series of daily #RememberMe stories  for World Alzheimer’s Month 2016 #WAM2016, we share DAI member Edie Mayhew and her partner Anne Tudors “Bigger Hearts” Campaign story. It is an exciting project happening in their local community, full of love, inclusion and a while of community commitment to improving the lives of everyone.

Thank you Edie and Anne, for sharing your story with us here…

Edie Mayhew presents at the "Bigger Hearts" campaign launch
Edie Mayhew presents at the “Bigger Hearts” campaign launch

“Anne and I would like to share our “Bigger Hearts” Campaign with DAI members.

It was launched in our home town, Ballarat on 30th August, 2016. The project partner’s include, Dr Catherine Barrett of @celebrateaging, Alzheimer’s Australia Vic and Ballarat, Ballarat City Council, Carer’s Respite and Neighborhood House, Ballarat North  (where our YOD weekly art classes take place). The major sponsor for the project is Australian Unity (our Consumer Directed Package provider) who will cover amongst other things, the cost of a project film.

The title of the project comes from a conversation Anne and I were having some time after the ADI Perth Conference. Anne was talking about how much our lives had changed since my diagnosis and that dementia had been quite transformational in many ways. She talked about the experiences we’ve had and the amazing people we’ve met. When she eventually drew breath, I said “Our Hearts are Bigger”. Anne was stuck for words!!! Since then we’ve distributed hearts to those present at all my presentations.Those in the “Quiet Room” received a heart in Budapest so they’ve travelled to many parts of the world. We moved from recognising dementia making our hearts bigger to inviting others, particularly dementia care workers, to engage their hearts in what they do so that their hearts would also be bigger.

Now we’re asking the Ballarat community to open their hearts to be more dementia aware and dementia friendly. I said we were a sub-culture wanting to be mainstream, not stigmatised, ignored or hidden away. I said we had work to do about increasing awareness and knowledge of dementia in our city, but we couldn’t do it without their support and assistance.

We were delighted the Mayor (who launched the campaign) and Deputy Mayor were present as well as a strong representation of locals. Janet Dore, a local with much corporate experience was MC and we’re delighted she will chair the Dementia Alliance to be formed at the end of October. Janet and I played cricket together in our 20’s!

We have three thousand postcards and five hundred posters distributed strategically throughout the city asking people to write down on heart shaped cards, what they think dementia is and how they suggest Ballarat could be more dementia. The responses will be used to inform the Dementia Alliance. We’ve also distributed lots of badges. A local hotel is having their staff wear the badges for the month of September. They were very keen to hear ideas about situations that arise at the bar at times.

Further activities include an event where people with dementia are paired with someone who wants to know more (a story catcher), to have a conversation about what the person living with dementia wants them to know and understand. We’re anticipating this to be powerful indeed and parts will be filmed. Ballarat City Council is also putting a group of staff though a dementia awareness experience. There is an event at a secondary school and primary school and another with Australian Unity.

An important part of the project is a weekly meeting at The Turret cafe for project partners and anyone else who may be interested to come along to chat, have a coffee, return or take more postcards, give feedback and so on. We’ve discovered a nurse engaged in a dementia research project through the process. The final event at the end of October will be an overview of the campaign, showing the film and signing people up for the Dementia Alliance and Bigger Hearts Club (similar to DAGs).

Something which has shocked and disappointed us during the planning process is the realisation that many local people with dementia, supposedly 1758 in Ballarat at the moment, are reluctant to participate in dementia awareness raising community events.

We’re still working our way through this reality. Some explanations: diagnosis is clearly not happening early enough; a collusion of silence and avoidance exists around people who have dementia, (we were shocked to learn that many people are not told by professionals and family that they have dementia); people with dementia have internalised societal views of helplessness, hopelessness and uselessness and alienate themselves from an active and satisfying community life because they feel shame. We were told time and time again, “They’re not ready yet”.

The experience of many of us with dementia is that socialisation and broad participation enhances wellbeing. There are so many DAI members living a satisfying and meaningful life as you all know. The challenge we face now is to first get PLWD to join others in a similar position in a dementia friendly cafe or pub. We do have some support in this. More than thirty community partners have signed up to Bigger Hearts.

At the moment we’re planning ways to break down some of these cultural barriers that have existed here for generations. It’s just going to take time and we need patience and clever ideas. That’s where Catherine Barrett comes in.

DAI member, Edie Mayhew, Dr Catherine Barrett & Anne Tudor
DAI memEdie Mayhew, Dr Catherine Barrett & Anne Tudor

Before the launch ended, Gorgi Coghlan, a children’s choir and musicians sang and played, “I will remember You, Will You Remember Me”. It was really beautiful and so special.

Follow us at Celebrate ageing: Bigger Hearts

Hope you’ve not experiencing September exhaustion.”

Warm wishes from Edie & Anne.”

Kiama DFC project wins WHO Award

screen-shot-2016-09-16-at-3-42-19-pmThis post was first published by DAI co-founder Kate Swaffer earlier this month, but it needs to be published here in celebration of the incredible achievements of the Kiama Dementia Friendly Community Project.

Hence, as part of our daily series for World Alzheimer’s Month 2016 #WAM2016 #DAM2016,  we celebrate and salute them all here.

In June of this year, the Kiama Dementia Friendly Pilot Project which was started as a joint project between Alzheimers Australia, the University of Wollongong and the Kiama Municipal Council, is celebrating. It is striving hard to ensure the Kiama Municipality more inclusive for people living with dementia won a prestigious National Award for Local Government in the Disability Access and Inclusion category.

Many of us in Dementia Alliance International, and beyond, have been saying we have felt it to be the GOLD standard of any dementia friendly community project that any of us have seen or heard of. It seems, the world Health Organisation agrees.

In part, this is because early in the project they set up a Local Dementia Advisory Group (lovingly known as the DAG’s), made up of people with dementia supported by their care partners or friends and significant others, to guide and inform the project. Inclusion in this project has not been tokenism, and they are constantly stretching to find ways to ensure it reaches more than a select few.

When global advocate from Scotland, also a member of DAI, and an inaugural member of Scottish Dementia Working Group Agnes Houston visited Kiama in May, she said; “I have heard others call the DFC initiative in Kiama the gold standard. Now I understand why!”

Full and equal inclusion in everything that is about us, and being supported to live independently in our communities, with support for the disabilities caused by dementia, is not only desirable, it is our basic human right.

Kiama have just recently won another award, this time an International one from The World Health Organisation (WHO). WOW! Read the article in the Kiama Independent Kiama Dementia Friendly Project project wins WHO award

They were recognised for the efforts of Kiama council’s Health Plan and in particular the Kiama Dementia Friendly Project.

Kiama councillor Kathy Rice recently received the council’s award at the seventh Global Conference of the Alliance for Healthy Cities at Wonju City, South Korea. “It’s a great honour to be able to receive this award from the WHO in recognition of Kiama council’s best practice in health,” Cr Rice said.

“The presentation of the award before 500 international delegates has also extended the worldwide recognition of the Dementia Friendly Kiama Project*.”

The first activity of the project featured researchers from UOW learning what it is like to live in Kiama for people with dementia. This guided subsequent work such as:

  • Improving signage, access to transport, businesses and other services;
  • Access to community activities and reduction of the stigma associated with dementia;
  • General community education and specialist education for local medical services and businesses.

It is thrilling to hear that funding has been secured to continue the project into the next phase, moving from a Dementia Friendly Community to a Dementia Enabling Community. and the local University in Wollongong has continued on with a project called Dementia Enabling University Strategy to ensure dementia education become part of all programs there.

The Kiama Dementia Friendly Project commenced in July 2014 when Kiama council was approached by Alzheimer’s Australia and the University of Wollongong to take part in a pilot that would see Kiama work towards being one of Australia’s first Dementia Friendly Communities.

Webinar: The Dementia Friendly Kiama Community Pilot Project

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Your next online Webinar “A Meeting of The Minds”, is being presented by Nick Guggisberg and DAI member Dennis Frost, “The Dementia Friendly Kiama Community Pilot Project”

July 27, 2016 – 1.30 PM (PDT – San Francisco) USA
July 28, 2016 – 6.30 AM Sydney (AEST)  AUSTRALIA

Please note: we have set up this event based on the time zone in Australia, to ensure the registration system does not close ahead of the Webinar – but  – it is being held on July 27 in the USA/UK/EU and July 28 in Australia/NZ/Japan.

Register here…

Many people with dementia now see the Kiama DFC Pilot Project as the GOLD STANDARD of any Dementia Friendly Community project or initiative in the world. Please join us to find out why. 
Last month, Nick Guggisberg and Melissa Andrews, on behalf of the project, received a National Local Government Innovation Award in the Access and Inclusion category. 
Congratulations to them, and to the full team behind the pilot project, as well as the members of the Southern Dementia Advisory Group (alias, the Kiama DAG’s), led by Dennis Frost.

About the Webinar session: This Project is a partnership between Kiama Council, The University of Wollongong (UOW), Alzheimer’s Australia and the Kiama Community. The project uses an Action Research model to track progress, and works within a community development framework.

Basic Structure of the Project

  • Kiama Dementia Alliance – individuals, service & peak organisations, and people with dementia.
  • Dementia Advisory Group – People with Dementia (PWD) and their carers/supporters/partners, who advise on and oversee the whole project including participating in all education sessions.

Having an active Dementia Advisory Group from the outset makes this project unique.

Action Plan includes:

  • Training volunteers to support PWD to participate in community activities,
  • Information sessions, public lectures and education to raise awareness,
  • Making the local environment more accessible

Project Objectives:

  • Increased community awareness and understanding of dementia
  • Broadening of opportunities for social participation for PWD
  • Dementia-friendly organisations & businesses
  • Improvements to the physical environment through using the UOW Environmental Audit Tool
  • Mapping of Dementia-friendly organisations and places

Already there is anecdotal evidence of substantial progress towards these objectives.

Initial research surveys conducted at the start of the project will be repeated in 2016 to measure change in the Dementia-friendliness of Kiama.

About Nick: Nick spent the first half of his adult life experiencing broader Australia, playing and teaching music throughout the whole continent while largely based in Alice Springs.  Nick drew on his broad range of life experiences during his studies to hone and shape these experiences and insights into skills and knowledge that he could apply professionally as a Social Worker. Since graduating with a Social Work degree, Nick has largely worked in the Community Development field working with Social Housing Tenants, managing a Youth Service, managing a Foster Care program, and currently works as the Manager Community & Cultural Development for Kiama Municipal Council. It is in his role at council that Nick oversees the council’s involvement in the Dementia Friendly Kiama Project. As a Social Worker, social justice is at the heart of everything Nick turns his attention to, so when the opportunity to facilitate Kiama Council joining the partnership with Wollongong University and Alzheimer’s Australia to pilot dementia-friendly strategies in Kiama, Nick jumped at the opportunity.

About Dennis: Dennis was diagnosed with younger onset Front-Temporal Dementia 3 years ago at age 59. Prior to that worked part time as a teacher in TAFE and part time as IT support engineer in TAFE as well as running his own  IT support business for 25 years. Since diagnosis Dennis has been working tirelessly to promote awareness of Dementia, to advocate for people with Dementia and to break down social stigmas associated with dementia. Dennis is chairman of the Dementia Friendly Kiama Project’s Dementia Advisory Group (and some might say a real DAG). In April 2016 Dennis will travel to Budapest, Hungary to share the successes of the Dementia Friendly Kiama Project  to the 31st International Conference of Alzheimer’s Disease International.

Wednesday July 27, 2016 (USA/CA/EU/UK):

Start times:

  • 1.30 p.m. Pacific Time (San Francisco);
  • 2.30 p.m. Mountain Time (Denver);
  • 3.30 pm Central Time (Chicago; Des Moines)
  • 4.30 p.m. Eastern Time (Washington DC);
  • 1.30 p.m. Vancouver, Canada;
  • 10.30 a.m. in Honolulu, Hawaii;
  • 9.30 p.m. in the UK;
  • 10.30 p.m. in Paris and Budapest

Thursday July 28, 2016 (AU/NZ/JAPAN)

Start times:

  • 6.30 a.m. in Brisbane; Sydney, Canberra, Melbourne;
  • 4.30 a.m. in Perth;
  • 6.00 a.m. in Adelaide;
  • 8.30 a.m. in Auckland, New Zealand;
  • 5.30 a.m. in Tokyo, Japan

The WEBINAR will run for 1.5 hours.

To check the time in your city, if not listed above, please open the link here:

You will receive an email confirmation that contains login details and instructions on how to join the online Webinar. 

Please note: Attending our events supports everyone connected to dementia, whether the person diagnosed, our care partners, or the professionals and research community who work to support us and improve our lives.

We charge a minimal fee of $45 USD for anyone who is employed. Most will be able to claim the cost of the tickets as a tax deduction.

Students are charged $15 USD – please send proof of your student ID to [email protected]

We have to rely on an HONOUR registration system, and trust that if you are employed, you will not instead register as an unemployed family supporter (carer).

The modest fee for this webinar supports your education and our community, and also supports our work, which directly enables people with dementia to more proactively and positively support themselves.

Register here…


If you need a certificate of attendance, please email us at [email protected]

The Webinar is FREE for people with dementia and unemployed family carers.

Your donations are always appreciated and do make a difference:

  • $7.00 USD covers the average cost of one of our monthly bank fees
  • $50.00 USD covers the average of the cost of our monthly Zoom subscription fee
  • $100.00 USD covers the average monthly cost of the MailChimp subscription
  • $300.00 USD covers the current cost of 3 months of website management fees

Option: Our nonprofit partner, PayPal charges us a transaction fee to cover fees and other processing costs, to securely process your donation. Please consider adding an additional small amount to your donation so 100% of your donation amount goes to Dementia Alliance International. Donations can be made here

Dementia Friendly Kiama, by Dennis Frost

Dennis Frost is a member of Dementia Alliance International and also the Inaugural Chair of the Southern Dementia Advisory Group in Kiama NSW, which guides the DFC pilot project between the Kiama Council, University of Wollongong and which Alzheimer;s Australia were also involved in nationally. Many consider this to be the gold standard dementia friendly communities project globally.

Dennis is from NSW and was a keynote speaker at the ADI20-16 conference in Budapest this year titled Dementia Friendly Kiama, which you can view here:


Please note: If you are watching this free video, and are employed or can afford to donate the fee you would have paid to attend on the day of $45 USD, please donate here –

DAI is a non-profit group of people with dementia from the USA, Canada, Australia and other countries that seek to represent, support, and educate others living with the disease, and an organization that will provide a unified voice of strength, advocacy and support in the fight for individual autonomy and improved quality of life.

Membership of Dementia Alliance International is free, and open to anyone with a medically confirmed diagnosis of any type of dementia.

Join DAI here

Or you can subscribe to our newsletter or weekly blog here

YOUR donation ensures there will be ‘Nothing about us, without us’.


Wishing you all a happy and safe festive season


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The Board of Dementia Alliance International wishes our members and supporters a happy and safe festive season, and we very much look forward to seeing you online or in person somewhere in 2016.

It is the festive season for many, and we take this opportunity to wish you all a wonderful time with your families and friends, and hope you stay safe.

It is worth remembering, it is not always a joyous time for everyone, so be kind and gentle on yourselves, and with each other.

Living with dementia: new perspectives

Our blog today also follows the email we sent inviting you to attend the Webinar, A Meeting of The Minds – Living with dementia: new perspectives –  with Dr Al Power in January 2016.

You can register for it here…

Happy 2nd Birthday

Two weeks before the event with Dr Power, we will celebrate our 2nd birthday with an online global celebration, and you will receive an Zoom meeting link early in the New Year.

Keep the date free: Wednesday January 13 / Thursday January 14, 2016 (USA/AU)

It will be a fun and exciting time, and we have much to celebrate. Perhaps the best thing to celebrate is the fact we are growing from strength to strength, with membership, and a louder global voice.

There were (perhaps still are) many doubters that people with dementia could set up and run their own group, including providing FREE membership and FREE services top others with dementia, all done with very little funding. Be proud . We certainly are.

Wear a hat, make a cake, do what ever you feel will make it fun for you.

If you live in the same town or area as other members, get together on the day, and join in as a group. Join forces with other DAI members in person. Have fun, and keep making a difference to not only you down life, but to the lives of others.

Our new Board of Directors

We will introduce our new Board of Directors early in the new year, and look forward to a very exciting year for people with dementia globally as we move towards a world where there really is “Nothing about us, without us.”

Please note:

There will be no Board meeting or Members Open meeting in January 2016, but instead a shared  celebration and an opportunity to meet the new Board members. All formal meetings like this will resume in February.

Best wishes from the 2015 outgoing and 2016 incoming Board members of Dementia Alliance International.

Chair and Editor: Kate Swaffer