Category Archives: Dementia Alliance International

Media Release: Human Rights Watch

For Immediate Release

Australia: Inquiry into Rule Putting Older People at Risk
End Coercive Aged Care Practices; Ensure Supportive Intervention

(Sydney, August 19, 2019)

Australia’s parliament should scrap a new rule that allows nursing homes to overmedicate and restrain older people, a group of organizations working for older people’s rights in Australia said today. On August 20, 2019 in Sydney, the Parliamentary Joint Committee on Human Rights will hold a hearing on human rights concerns relating to the new rule. Human Rights Watch, Aged and Disability Advocacy Australia (ADA Australia), and others will appear.

The group includes ADA Australia, Capacity Australia, Dementia Alliance International, and Human Rights Watch.

“The Australian government rule is trying to regulate abusive practices that harm older people rather than prohibit them,” said Elaine Pearson, Australia director at Human Rights Watch. “The opening of a parliamentary inquiry into this matter is a critical opportunity to address the regulation’s serious shortcomings.”

In April, the Australian government introduced a new rule to regulate both physical restraints and overmedication, also known as chemical restraint, in aged care facilities. The use of physical or chemical restraints as punishment, control, retaliation, or as a measure of convenience for staff should be prohibited, in line with Australia’s international human rights obligations.

Authorities should instead make sure that any medical intervention takes place only with free and informed consent, and that medications are administered only for therapeutic purposes. The government should prioritize positive support and intervention for people with dementia, including in aged care facilities.

On May 23, Human Rights Watch sent a letter to the Australian parliament, urging its joint committee on human rights to move to disallow the Quality of Care Amendment (Minimising the Use of Restraints) Principles 2019.

In 2013, the United Nations Committee on the Rights of Persons with Disabilities criticized Australia for allowing practices that would subject people with disabilities, including older people with dementia, to “unregulated behaviour modification or restrictive practices such as chemical, mechanical and physical restraints and seclusion.” The committee called on Australia to end these practices.

In addition to the physical, social, and emotional harm for older people restrained with antipsychotic drugs, the use of such drugs in older people with dementia is also associated with a nearly doubled risk of death. It also limits their ability to eat, communicate, think, and stay awake.

“Older people in nursing homes are at serious risk of harm if this new aged care regulation is allowed to stand as is,” said Geoff Rowe, CEO at ADA Australia. “Australia’s parliament should act urgently to ensure that everyone, including older people, is free from the threat of chemical restraint.”

Human Rights Watch has documented the harm of overmedicating older people living in nursing homes in the United States.

For more Human Rights Watch reporting on older people’s rights, please visit:
https://www.hrw.org/topic/health/rights-older-people

For more information from Human Rights Watch, please contact:

In Sydney, Elaine Pearson (English): +61-400-505-186; or [email protected]. Twitter: @PearsonElaine

In New York, Bethany Brown (English): +1-212-377-9411, [email protected]. Twitter: @bethany_L_brown

For more information from Aged and Disability Advocacy Australia (ADA Australia), please contact:
In Brisbane, Nicola Rodrigues: +61-7-3221-2220; or[email protected]com.au

For more information from Capacity Australia, please visit:
https://capacityaustralia.org.au

For more information from Dementia Alliance International, please contact: In Adelaide, Kate Swaffer, Chair and CEO: [email protected] @KateSwaffer @DementiaAllianc

https://www.hrw.org/news/2019/08/19/australia-inquiry-rule-putting-older-people-risk-0

Webinar: Dementia and Wayfinding, by Noelannah Neubauer

Register now to join us for the next DAI “A Meeting Of The Minds” Webinar, on August 28/29, 2019. We are delighted to introduce Noelannah Neubauer to present on this topic, which some members and families may find contentious. However,  we all agree, for a person who is lost, providing support to ensure their safe return home, including people with dementia is important. After the presentation, there is time for you to ask questions, or express your views.

Title: Dementia and Wayfinding
Presenter: Noelannah Neubauer, PhD, MSc, BHK

  • Wednesday, Aug 28, 2019 (USA/CA/UK/EU)
  • Thursday, Aug 29, 2019 (AU/NZ/JP/SGP/TWN)

Please note: this is one event, set in a number of different time zones.

About the Webinar: The changing face of dementia and missing person incidents: The International Consortium on Dementia and Wayfinding

The number of lost and missing person incidents involving those living with dementia has been on a rapid incline in recent years. Despite the increasing number of available strategies to lessen this issue, research focusing on managing and preventing lost incidents among those living with dementia is limited and few key stakeholders, such as persons with dementia have been involved. International collaborations looking at this issue from a global scale has also yet to be explored. This has led to the formulation of an international consortium on dementia and wayfinding. Co-founded by two PhD students in Canada and Scotland, the International Consortium on Dementia and Wayfinding serves as a knowledge mobilization hub for more than 8 countries and includes persons with dementia, care partners, community organizations, police, health professionals and researchers. The goal of the consortium is to help people living with dementia go out and about safely in their local neighbourhoods without fear of stigma, getting lost, or going missing. We plan to do this by doing research and sharing best practices from around the world. These measures will help people live their lives safely, without restricting freedom.

About our speaker:

Noelannah Neubauer is an incoming Post-Doctoral Fellow in the Faculty of Applied Health Science at the University of Waterloo in Canada. She recently completed her PhD August 2019 in the Faculty of Rehabilitation Medicine at the University of Alberta under the supervision of Dr. Lili Liu. She is the co-founder of the International Consortium on Dementia and Wayfinding, is a member of WYLD, and is Highly-Qualified personnel with AGE-WELL NCE. Her research focuses on identifying strategies that balance safety and autonomy among persons living with dementia that are at risk of getting lost.

Wednesday, August 28, 2019 (USA/CA/UK/EU):

  • 11:00 am Honolulu
  • 2:00 pm Pacific
  • 3:00 pm Mountain
  • 4:00 pm Central
  • 5:00 pm Eastern
  • 10:00 pm London/Glasgow/Dublin UK
  • 11:00 pm Paris, Munich, Amsterdam, EU

Thursday, August 29 2019 (AU/NZ/JP/SGP/TWN/CHN):

  • 6:30 am Adelaide AU
  • 7:00 am Brisbane/Sydney/Melbourne/Canberra/Tasmania AU
  • 5:00 am Perth AU/Taipei//Beijing
  • 9:00 am Auckland, NZ

The Webinar runs for 1.5 hours. Check your time if not listed above with this link.

COST TO ATTEND:

  • DAI Members/Care partners: FREE
  • Employed persons: DONATIONS APPRECIATED

WE INVITE YOU TO DONATE TO, OR PARTNER WITH DAI NOW

The Global Voices of Dementia: Resources for self-advocacy

July 16, 2019

The global voices of dementia self-advocacy

Dementia Alliance International (DAI), the Alzheimer’s Society UK,  and the 3 Nations Dementia Working Group (3NDWG) have worked in partnership to develop two resources to educate, inspire and empower more dementia self-advocates.

This project was initiated, to support others with dementia to not only be inspired, but to develop some of the skills to become self-advocates.

The project partners consulted with dementia working groups and individuals who are already active dementia advocates in different countries. This was done to identify the barriers to self-advocacy, which can include: confidence, accessibility, discriminatory language, stigma and lack of engagement from others. The project also identified existing resources to support dementia self-advocates and highlighted some of the gaps that exist.

Self-advocacy is about having a voice – being able to represent yourself and express your views and needs. Self-advocacy supports the human rights of people affected by dementia and also gives our movement a more powerful and united voice.  

As part of the project two resources were created:

Christine Thelker’s story

The first time I spoke publicly, I was nothing short of terrified, and totally lacking confidence in my ability. Living with dementia means your abilities change, your confidence plummets, and mostly due to how others treat you. So advocating and finding my voice, through DAI, I have blossomed, and I encourage others to get involved and use their voices, and taking part in this project was one way I can try to make a difference for others.

 After being diagnosed, and left with virtually no supports, other than ‘go home, get your affairs in order, or, get ready to die’, well, that wasn’t good enough for me. It took over a year for any support at all was provided. Luckily, I found my own support with Dementia Alliance International, which importantly, is an organisation run completely by and for people living with dementia. Being part of this project makes me hopeful that not only will we encourage more self-advocates, we will all start working together.

Hilary Doxford’s story

Back in 2012, I somewhat reluctantly ‘fell’ into self-advocacy and my participation grew from there. My initial worries and fears would have been reduced had I had access to the resources this project delivered. Six years on, I still find this information helpful.

I’m very pleased to have been involved in the development of these resources and very happy to see the advocacy knowledge and activity happening around the world being pulled together. I hope others find them as useful as I have. I hope they enable people thinking of self-advocating to go to places they never thought possible because everyone who speaks out makes a difference.

5 Top Tips from self-advocates

 “Don’t be afraid of your symptoms it does really legitimize what you’re trying to present if people do see that you do have some of the symptoms with the dementia” Dennis Frost, Australia

“Humour makes up for all the fumbles we make along the way and just, you know, I talk from my heart – so that’s probably the biggest piece is you have to talk from your heart .” Christine Thelker, Canada

“Be true to your experience, who you are and your voice. The rest will follow from there.” Kris McElroy, USA

“To someone who is thinking should I advocate or shouldn’t I – try it and see!” Agnes Houston, Scotland.

“The first few times that you speak out publicly you’re terrified of not remembering what you want to say but then you find out every speaker is the same and that even people without dementia are like that.” Kate Swaffer, Australia.

For more information or support, or to get involved with local or global advocacy, contact the project partners for more information:

The inspiration for this project evolved from conversations between Kate Swaffer from Dementia Alliace International (DAI) and Amy Little from The Global Alzheimer’s & Dementia Action Alliance (GADAA), after conversations on how to better support capacity and abilities inDAI members, all who are  people diagnosed with dementia, who have not only lost, but are continuing to lose some abilities.

With the appropriate support, it is very evident people with demenia can still, and do, live very meaningful lives, for much longer than told to expect, if diagnosed in the earlier stages of dementia.

By working together, the impact of self advocacy makes a much bigger difference.

Global self-advocates who feature in the film and supported the project (Left to Right): Amy Su, Dennis Frost, Kate Swaffer, Kris, Christine Thelker, Agnes Houston, Hilary Doxford, Petri Lampanen and Veda Meneghetti.

 

 

 

Dr Daniel Potts, “Learning from Patients and Families”

In May 2019 DAI was delighted to host one of our “A Meeting Of The Minds”  Webinars, “Learnings from Patients and Families”, presented by Dr Daniel Potts.  We thank Dr Potts sincerely for giving up his time, and sharing his incredible insights, expertise and learnings, as well as his own deeply personal story. You can watch it now, if you missed attending on the day.

About the webinar: A neurologist and care partner for his father, Lester, who became an artist after the diagnosis of Alzheimer’s disease, Daniel Potts found his life and practice have changed because of the experience with his father. He feels the experience has produced greater empathy, compassion, and understanding, which has increased his own effectiveness as a physician and educator. Dr. Potts will highlight his experience with his father, show some of Lester’s art, will speak about specific ways his practice has changed, and will give some suggestions that may be helpful for other providers. Additionally, he will discuss some realistic expectations persons living with dementia and care partners should have of their providers and looks forward to gaining knowledge and understanding from the webinar audience, as well.

If you are watching this and are employed or in a financial position to support DAI, please consider donating to us.

In doing so you assist supporting more Webinars like this one, as well as people living with dementia globally.

Thank you.

Register now for DAI’s July Webinar: Dementia as a Disability

We invite you to register now for DAI’s “A Meeting Of The Minds” Webinar, July 24/25, 2019, with presenter and DAI Board member, Christine Thelker from Canada.

 

 

 

 

 

 

Please note: this is one event, set in a number of different time zones.

About the Webinar: DAI recently held a Side Event at the 12th Session of the Conference Of State Parties (COSP) on the Rights of Persons with Disabilities (CRPD). This webinar will highlight the event, focusing on why dementia must be managed as a disability and why people with dementia are rights bearers as all others, such as universal heath care including rehabilitation. The panel included a group of eminent speakers, and was a rich discussion on dementia as a disability, on people with dementia as rights bearers, and of the rights of all, including people with dementia to rehabilitation and other services, and to full and equal access to the CRPD

The overarching theme was social inclusion and health, two determinants of well-being, both of which are being systematically denied to people with dementia all around the world. Dementia had never been represented formally in a Side Event ever before at the COSP, hence why DAI felt it was so important.

Our disabilities may be more invisible than many others, but we are still, even in 2019, being stigmatised and discriminated against on a daily basis, and we hope this event will be the start of change for the more than 50 million people currently living with dementia, and every person being newly diagnosed every 3.2 seconds.

As an organisation DAI continues to work towards others joining our campaign that dementia is a condition causing acquired cognitive and other disabilities, and for full and equal access to the CRPD and other Conventions, so that no one is left behind, including people with dementia. Rehabilitation, and all other health and disability services and support are essential for maintaining independence and dignity, for longer, and whilst dementia is a terminal condition, we should not all be ‘dying at diagnosis’.

About our speaker: Christine Thelker, a current board member of DAI, is from Vernon, British Columbia, Canada and at 59 says, her sense of humour has grown, since her diagnosis of dementia. She is a Board member of Dementia Alliance International, and previously worked for the Interior Health Authority for 13 years in various sites, including in dementia care and of life care. She advocates for families and patients and for better training for workers in dementia care. She also advocated for better working environments for the employees. Christine designed and taught a program to nursing students at the local colleges on end of life care and dementia care, and designed a program on unattended sorrow, which was in relation to all the deaths workers saw and the cumulative effects. She believes it has many similar effects on people diagnosed with dementia and doing more work around that. Widowed at 47 and then diagnosed with Vascular dementia at 56, Christine is still advocating, using her voice to help others. She loves working with Dementia Alliance International (DAI) and believes whole-heartedly that it helps keep her living well with her dementia. Her motto since being diagnosed is “I’m not done yet”.

Register here…

Wednesday, July 24, 2019 (USA/CA/UK/EU):

  • 11:30 am Honolulu
  • 2:30 pm Pacific
  • 3:30 pm Mountain
  • 4:30 pm Central
  • 5:30 pm Eastern
  • 10:30 pm London/Glasgow/Dublin UK
  • 11:30 pm Paris, Munich, Amsterdam, EU

Thursday, July 25, 2019 (AU/NZ/JP/SGP/TWN/CHN):

  • 7:00 am Adelaide AU
  • 7:30 am Brisbane/Sydney/Melbourne/Canberra/Tasmania AU
  • 5:30 am Perth AU/Taipei//Beijing
  • 9:30 am Auckland, NZ

The Webinar runs for 1.5 hours. Check your time if not listed above by using this link:

COST TO ATTEND:

  • DAI Members/Care partners: FREE
  • Employed people: DONATIONS APPRECIATED
  • Full time Students: DONATIONS APPRECIATED

Register here…

Donations are appreciated.

“Staying engaged without driving”

In April 2019 DAI was delighted to host one of our “A Meeting Of The Minds”  Webinars on an important topic, “Staying engaged without driving”, presented by Dr Jacki Liddle and Dr Theresa Scott, both from Queensland.  Our sincere thanks to them both for giving up their time and sharing their expertise on this topic.

About the webinar: Some people say that stopping driving is the “hardest thing” they face in living with dementia. Our research has explored people’s experiences related to stopping driving, the involvement of health professionals and key times when support is needed. The talk will draw on this to cover ways to prepare, decide and adjust emotionally and practically to life without driving. It will highlight ways to stay engaged in the community and in meaningful activities. It will also show advice for health professionals and family members for ways they can assist people who are retiring from driving. The CarFreeMe program is an example of an education and support program helping people with stopping driving, and we will give an overview of this and ways people could get involved.

Watch the recording of this important presentation here:

Download the slides here: How to stay engaged without driving 

About the speakers:

Jacki Liddle is an Occupational Therapist and Research Fellow. She is involved in researching life transitions, ways of supporting community engagement and ways of measuring meaningful outcomes. Her research with people living with dementia includes codesigning technology and supporting community mobility, particularly after driving cessation.

Dr Theresa Scott is an NHMRC-ARC Dementia Research Development Fellow and a Psychologist at The University of Queensland. Her fellowship research is focused on the complex issues around dementia and driving. She is particularly interested in how driving cessation might be better managed in primary care settings and in supporting people living with dementia who are transitioning to retirement from driving

Summary of the DAI Side Event at #COSP12

Left to right: Antony Duttine, PAHO/WHO; Christine Thelker, DAI Board member, Kate Swaffer, DAI Chair/CEO, Bethany Browne, Human Rights Watch, Arlene Pietratanton, ASHA, CEO and Jans Monbakken, GRA
Left to right: Antony Duttine, PAHO/WHO; Christine Thelker, DAI Board member, Kate Swaffer, DAI Chair/CEO, Bethany Browne, Human Rights Watch, Arlene Pietratanton, ASHA, CEO and Jans Monbakken, GRA

We hope the time spent by DAI members and our volunteer last week in New York attending the 12th Session of the Conference Of State Parties (COSP12) on the Convention on the Rights of Persons with Disabilities (CRPD) will  have far reaching benefits for all people with dementia, now and into the future.

It is imperative we all work towards ensuring that dementia is recognised by all as a condition causing acquired cognitive and other disabilities, and therefore one that people diagnosed with dementia must be provided with full and equal access to the CRPD and other Conventions, and to Universal Health Care.

Here, we highlight  the link to the live recording of the DAI Side Event, and provide the DAI Side Event Concept note and the DAI Handout provided on the day. Please share and download as you wish.

We also wish to thank the United Nations and the World Health Organisation for supporting our event, and acknowledge our co sponsors, the Australian Government, the International Disability Alliance, Alzheimer’s Disease International, Human Rights Watch, the Global Rehabilitation Alliance and the World Hospice and Palliative Care Alliance.We also thank our two sponsors, Alzheimer’s Disease International and Boehringer Ingelheim.

We especially thank Ms Catalina Devandas Aguilar, the UN Special Rapporteur on the rights of persons with disabilities for her opening remarks, and all other speakers.

It was a rich discussion on dementia as a disability, on people with dementia as rights bearers, and of the rights of all, including people with dementia to rehabilitation and other services, and to full and equal access to the CRPD

The overarching theme was social inclusion and health, two determinants of well-being, both of which are being systematically denied to people with dementia all around the world. Dementia had never been represented formally in a Side Event ever before at the COSP, hence why DAI felt it was so important.

Our disabilities may be more invisible than many others, but we are still, even in 2019, being stigmatised and discriminated against on a daily basis, and we hope this event will be the start of change for the more than 50 million people currently living with dementia, and every person being newly diagnosed every 3.2 seconds.

As an organisation DAI intends to continue to work towards others joining our campaign that dementia is a condition causing acquired cognitive and other disabilities, and for full and equal access to the CRPD and other Conventions, so that no one is left behind, including people with dementia.  Rehabilitation, and all other health and disability services and support are essential for maintaining independence and dignity, for longer, and whilst dementia is a terminal condition, we should not all be ‘dying at diagnosis’.

A number of blogs were published last week, including the statements made by Kate Swaffer and Christine Thelker.

 

Elder Abuse is everybody’s business

June 15  is World Elder Abuse Awaness Day, and as more than 90% of people living with dementia are over the age of 65, it is certainly a very relevant issue for our members and their families.

Hence, like many other organisations Dementia Alliance International joins the world in speaking out against all forms of abuse, neglect, segregation, incarceration, institutionalisation and exploitation of all older adults.

Our Elders matter.

The World Health Organisation says “… Because the numbers of older persons are growing, the amount of elder abuse can be expected to grow with it. While the taboo topic of elder abuse has started to gain visibility across the world, it remains one of the least investigated types of violence in national surveys, and one of the least addressed in national action plans.

Elder abuse is a global social issue which affects the health and human rights of millions of older persons around the world, and an issue which deserves the attention of the international community.”

The WHO Key Facts on Elder Abuse state:

  • Around 1 in 6 older people experience some form of abuse, a figure higher than previously estimated and predicted to rise as populations age worldwide.
  • Rates of abuse may be higher for older people living in institutions than in the community.
  • Elder abuse can lead to serious physical injuries and long-term psychological consequences.
  • Elder abuse is predicted to increase as many countries are experiencing rapidly ageing populations.
  • The global population of people aged 60 years and older will more than double, from 900 million in 2015 to about 2 billion in 2050.

A study done by Comparitech on the prevalence of Elder Abuse in the USA is deeply concerning, and we imagine studies inmost countries are likely to be much the same.

Key findings:

Only 1 in 23.5 incidents of elder fraud are reported to authorities, according to a 2011 report from the New York City Department for the Aging and Cornell University. Here are some of the key findings at a national level, based on that figure:

  • 1 in 10 elderly people in the US fell victim to elder fraud in the last year
  • More than 5 million incidents of elder fraud occur every year in total
  • The average loss per case reported to Adult Protective Services is $2,415
  • In total, losses due to elder fraud total $27.4 billion each year
  • 38% of fraud cases target the elderly
  • Debit cards were the most common product involved with elder fraud cases (32.9%), followed by credit cards (11.6%) and bank deposit accounts (10%)

Elder abuse is not unique to any country, and in Australia there is currently a Royal Commission in to Aged Care.

An article Australia’s elder abuse scandal ‘beyond belief’ published in September 2018, the following is of great concern.

Community leaders say the true scale of elder abuse is unknown but anecdotal evidence has suggested it is a dark and deep-rooted problem.

“It is a scandal beyond belief,” says Reverend Bill Crews from Australia’s Uniting Church.

“How we can behave to one another – when we are not watched by others – is beyond belief. It started with young people. It is now with old people. We are a society where love is vanishing and the inevitable outcome of that is a lot of pain.”

The rights of persons of any age, with any condition must be upheld, and it is very clear this is not the case for people with dementia,  or indeed older persons who require any form of assistance or care.

Elder abuse is everybody’s business!

 

DAI Statement by Christine Thelker #COSP12

Christine Thelker

DAI Board member Christine Thelker was listed to make a Civil Society Statement on behalf of Dementia Alliance International and our Strategic Partners Alzheimer’s Disease International on Wednesday of this week during Round Table 2 of the 12thSession of the Conference Of State Parties on the Convention on the Rights of Persons with Disabilities, also the session being co-chaired by Kate Swaffer.

Round Table 2: Social Inclusion and the Right to the Highest Attainable Standard of Health

Read the full stament here which was prepared ij response to the theme of the session. Unfortunately the session was cut from 3 down to 2 hours, so she didn’t get to make the statement on the day. However, there was an opportunity to make a shorter verions of it at a Side Event yesterday, which we will share soon, including with a video of her speaking. The recording of our Side Event, Dementia: the leading cause of disability is also available online now.

Prepared Civil Society Statement:

Distinguished Chairs, speakers and delegates

Thank you for the opportunity to make this statement on behalf of Dementia Alliance International, the global voice of 50 million people living with dementia and Alzheimer’s Disease International today, who are our strategic partners.

As partnering international organisations, we collaboratively advocate for the rights of all persons with dementia and their families.

The 2030 Agenda sets out an ambitious goal vision to reach and empower those left behind.

As one of the 50 million people with dementia, I am being left behind.

Furthermore, women and girls are disproportionately affected by dementia. More women than men live with the condition, they provide the majority of care support and they also face the greatest stigma.

Women also make up 2/3 of dementia care supporters and more than 70% in lower and middle income countries. Older women, especially widows, can be exposed to what has been termed a ‘triple jeopardy’ discriminated against, as a result of their age, sex and condition.

I am here today to ask you to help me claim my rights as a person with disabilities to empowerment and social inclusion and the highest standard of universal health care.

Articles 19, 25 and 26 of the CRPD respectively address my rights to live independently in my own home in the community, without fear of being institutionalised and segregated, due to health and disability services and support not being in place to support me to live independently.

As a person with acquired cognitive disabilities that may cause communication, personality or other changes to my capacity to function without support, I demand my right to non-pharmacological support to live with a high quality of life, and am not chemically or physically restrained.

The lack of education and awareness of dementia of health care professionals and service providers, compromises my right and ability to access adequate services. Article 25 clearly states I must be able to access health care. Currently, people with dementia are being denied this.

Secondary to my dementia, as a person with younger onset dementia, I am being further denied support to live well in my community, support to maintain independence and access to health care.

It is therefore imperative we ensure health care providers are adequately educated in dementia, and those of us living with it are supported as people with cognitive and other disabilities to live a high quality of life in our community.

This is our fundamental right.

Governments, international civil society and partners around the world must get behind this global challenge and unite for a world where no one living with dementia is left behind.

Thank you.

Christine Thelker

Board Member
Dementia Alliance International

Join us online today for the DAI Side Event: Dementia as a disability

Please join us online today for the DAI Side Event being hosted at the 12th Session of the Conference Of State Parties (COSP) on the Rights of Persons with Disabilities (CRPD). Dementia: The leading cause of disability.

The overarching theme is of social inclusion and health, which are two of the determinants of well-being, both of which are being systematically denied to people with dementia all around the world, including in the developed countries. UN Web TV

Watch live UN Web tv at the following times:

  • Thu, 13 Jun 2019 at 6:45 am Pacific Time
  • Thu, 13 Jun 2019 at 7:45 am Mountain Time
  • Thu, 13 Jun 2019 at 8:45 am Central Time
  • Thu, 13 Jun 2019 at 9:45 am Eastern Time – LIVE IN NYC
  • Thu, 13 Jun 2019 at 2:45 pm London, UK BST
  • Thu, 13 Jun 2019 at 3:45 pm Brussels, Belgium CEST
  • Thu, 13 Jun 2019 at 11:15 pm Adelaide, Australia ACST
  • Thu, 13 Jun 2019 at 9:45 pm Perth, Australia AWST
  • Thu, 13 Jun 2019 at 11:45 pm Sydney/Melbourne/Brisbane, Australia AEST
  • Fri, 14 Jun 2019 at 1:45 am Auckland, New Zealand NZST

Speakers

We will hear from an eminent list of speakers, on the rights of persons with any type of disability, including dementia, to full and equal access to the CRPD, and specifically on the right to rehabilitation and to Universal Health Care:

Mrs. Catalina Devandas Aguilar, UN Special Rapporteur on the rights of persons with disabilities: opening remarks

Christine Thelker, DAI Board Member:“Dementia as a disability”

Bethany Brown, Researcher, Older People’s Rights, Disability Rights Division, Human Rights Watch: “Violations of the rights of older people with dementia”

Arlene Pietranton, American Speech-Language-Hearing Association: “Rehabilitation for dementia and aphasia”

Mr. Antony Duttine, Regional Advisor in disabilities and rehabilitation, Pan American Health Organization/World Health Organisation (PAHO/WHO): “QualityRights” 

Jan Monsbakken, Global Rehabilitation Alliance: “The Rights to Rehabilitation for All”

Kate Swaffer, Dementia Alliance International, Chair/CEO: Closing remarks

Please check your time here if not listed above: https://www.timeanddate.com/worldclock/fixedtime.html?msg=DAI+CoSP+Side+Event+June+2019&iso=20190613T0945&p1=2416&ah=1&am=15