Category Archives: Dementia Alliance International

Dementia and Rehabilitation by Emily Tan Tan Ong

We are pleased to publish the following article written by DAI member Emily Tan Tan Ong on Dementia and Rehabilitation, or rather, the lack of rehabilitation for people with dementia.

Emily mentions in her article that rehabilitation for dementia is not heard of in her country; most other DAI members also report it is unheard of in their countries.

As our CEO Kate Swaffer says: “If we are afforded rehabilitation after a stroke or other brain injury or medical condition, then we have the same right to be after a diagnosis of dementia. It won’t be a cure, and may not even slow the progression, but rehabilition does improve quality of life.”

I keep the patients alive. Rehabilitation gives them Quality of Life. 

(Dr. Tagio Tumas, Ministry of Health, WHO Rehabilitation 2030 Forum, Geneva, July 2019).

Dementia and Rehabilitation, by Emily Tan Tan Ong

With no means to significantly modify the progression of dementia and no cure in the foreseeable future, the rehabilitation approach is an integral part of living positively with dementia.

Rehabilitation, in its essence, is a set of interventions needed when a person is experiencing limitations in everyday physical, mental, and social functioning due to aging or a health condition, including chronic diseases or disorders, injuries, or trauma [1]. It is estimated that at least 1 in 3 people in the world are living with a health condition that would benefit from rehabilitation [2].

Despite this, rehabilitation has not been prioritized and is under-resourced globally.

A possible explanation could be rehabilitation is often perceived as an expensive and specialized service provided at the secondary care level and needed by those recovering from injury or stroke. Hence, the perception that rehabilitation is a luxury health service in addition to primary health care has caused it to be undervalued and ignored when competing demands for resources and investments.

As a result, people living with terminal, progressive health conditions like dementia, which require long-term rehabilitation services, are left behind when rehabilitation is not part of or accessible at the primary health care level.

Earlier on in my journey living with dementia, I was having difficulties with some of the everyday functioning. I was confused at the public transport interchange, overwhelmed with sequential tasks like cooking and baking, and not able to remember the content of the paragraph I just read.

It is like saying, “Sorry too bad you are diagnosed with dementia but there is nothing we can help you to continue living other than attending Adult Day Care Center or Memories Cafe. ¬†One is told that is the way life is going to be, living with dementia, losing one’s functional and cognitive abilities, and independence.

Hence, it is not surprising many newly diagnosed with young-onset dementia go into depression. It is emotionally tormenting to be alive and not able to do things when you still have insights into who you are, what you value, and how you want to live despite dementia.

Rehabilitation in dementia is unheard of in this part of the world where I live.

The” ESTEEM” cognitive rehabilitation program, a partnership between the National Neuro Institute and the Singapore Alzheimer Disease Association is available to individuals diagnosed with moderate young-onset dementia. Hence, I was left unsupported to cope with my cognitive impairment when Cognitive Rehabilitation (CR) interventions would have helped to ease in transitioning my life to the ‘new normal’ with dementia in a more positive and encouraging light.

I came across the GREAT Cognitive Rehabilitation project of Professor Linda Clare from the University of Exeter when looking for ways to self-help myself.

The program uses a goal-oriented approach to enable people living with mild to moderate dementia to “function optimally in the context of their intrinsic capacity and current health state” [3].

However, the GREAT project is delivered by trained therapists who then work together with each individual to formulate meaningful and intrinsically motivated goals that are realistic and potentially achievable. The drawback is that not everyone can access trained cognitive rehabilitation therapists.

The training materials available are for therapists specializing in cognitive rehabilitation. The content was wordy and conceptual, but I am determined to translate whatever information I could obtain into a self-help Cognitive Rehabilitation strategy. I took ages to read, comprehend the principles, and come out with ways to maintain or regain, or in some cases, compensate for my declining functional ability. It was the best thing I have done to sustain my independence and continue living the life I want. Three years down the road with dementia, I still cook, bake, and enjoy reading. I found that the Cognitive Rehabilitation strategies have enabled me to become stronger in areas I didn’t even consider would be possible. I learned to make bread at home, I regained my ability to use a laptop, and more apt at making Powerpoint slides. The best of all, I conquered my inadequacy and incompetency in writing. I now love to write for my blog.

I want to appeal to policymakers to acknowledge the rights of people living with dementia to rehabilitation services and make it part of the primary healthcare system. It is without a doubt that creating an accessible, dementia-friendly neighborhood help to remove external barriers to participation it is even more crucial to enable people living with dementia to participate in everyday life in a manner that is meaningful and purposeful to them. In this way, it also helps to dispel the public perception of incapacity in dementia.

References:

[1] Cieza A. Rehabilitation the health strategy of the 21st century. Arch Phys Med Rehabil. 2019; 100: 2212-2214

[2] Cieza A. et al.. Global estimates of the need for rehabilitation based on the Global Burden of Disease Study 2019: a systematic analysis for the Global Burden of Disease Study 2019. Lancet. 2020; 396: 2006-2017

[3] Clare L (2017) Rehabilitation for people living with dementia: A practical framework of positive support. PLoS Med 14(3): e1002245. https://doi.org/10.1371/journal.pmed.1002245

Ps. Don’t forget to register for our next “Meeting Of The Minds” Webinar,¬†Disrupted! Resiliently Reintegrating After Stress & Adversity by Dr Kozhi Sidney Makai.

Assoc. Professor James McLoughlin presents here on rehabilitation and dementia at a DAI Webinar hosted in 2016. It is still a hard sell!

 

 

 

 

 

 

 

 

 

World Health Day 2021

World Health Organisation – World Health Day 2021

On April 7 each year, DAI joins the world in observing World Health Day. The theme in 2021 is Building a fairer, healthier world.

We must end discrimination and exclusion.

As COVID-19 has highlighted, some people live healthier lives with better access to health services than other people. These differences are entirely due to the conditions in which they are born, grow, live, work, and age. However, they can also be due to stigma, discrimination, economic status, and other factors such as disability or a disease, such as dementia.

All over the world, people struggle financially, which the pandemic has exacerbated. Some groups struggle with little or no daily income, inadequate housing conditions, poor educational and employment opportunities, gender inequality, age and disability discrimination. They also have little to no access to clean water and air, nutritious food, or health services.

This harms our societies and economies, leading to unnecessary distress, avoidable illnesses, and premature death.

DAI represents the more than 50 million people currently living with dementia. Nearly 60% live in low and middle income countries.

COVID-19 has affected all countries hard, but its impact has been harshest on those communities that were already vulnerable, especially people living with dementia and other disabilities.

Everyone impacted by dementia receives little if any health care. This includes lack of diagnostic support and inadequate support for living with dementia once diagnosed, with interventions such as rehabilitation.

From increased isolation to systemic human and disability rights violations, people with dementia have disproportionately experienced the adverse effects of measures implemented to contain the pandemic.

This is where DAI comes in…

During the pandemic, DAI increased the number of freely available services for people living with dementia by providing even more free, online support groups and other activities for our members in 49 countries. DAI has also continued our global efforts on claiming the human and disability rights for all people with dementia through our international advocacy and policy work.

In recognition of World Health Day, Dementia Alliance International commits to continuing to build a fairer, healthier world.

We will continue to call on leaders to monitor inequalities experienced by people with dementia and our families, and will work towards ensuring that all are able to access quality health services.

As a registered non-profit charity, we rely on the support of people like you. Your donation will help us to provide free online peer to peer support groups for people living with dementia, virtual cafes, and educational webinars, as well as other opportunities for families, care partners, and the wider dementia community.

DAI’s vision is a world where all people are valued and included.

If you do too, please consider becoming a regular supporter of Dementia Alliance International.

Every dollar makes a difference in the life of someone living with a diagnosis of dementia!

We are appealing to you to donate to DAI today.

Thank you.

 

Join us for our 2021 WRAD Cafe

Register now for the 2021 DAI “World Rocks Against Dementia” Caf√©, hosted by¬†Christine Thelker and Kate Swaffer.

  • Tuesday, March 16, 2021 (USA/CA/UK/EU)
  • Wednesday, March 17, 2021 (AU/NZ/ASIA)
  • Please note this is one event, set in a number of different time zones.

IMPORTANT NOTE TO DAI MEMBERS:    You DO NOT NEED TO REGISTER unless you prefer to, as you will ALL be sent the zoom link to join by email.

 

About WRAD: DAI members, family, friends, advocates, supporters, researchers, healthcare professionals, and anyone interested in having fun are invited to join our online WRAD Café! We bring the power of music to everyone, and support the global initiatives, the Rock Against Dementia, (WRAD), and the Purple Angel. It is also a chance to destress in these continuing difficult times of COVID-19. Due to the Coronavirus, most live events are still cancelled. Our 2021 WRAD program is almost finalised, and as always, it will be a lot of fun. It includes a number of new and original performances, written and performed especially for the DAI WRAD Cafe. As we have combined it with our monthly Cafe Le Brain, there will also be an update about DAI, and lots of time to chat.

Programme of activities: 

  • Graeme Atkins- Opening Performing ‚ÄúCovid and Us‚ÄĚ
  • Daniel Potts – Performs ‚ÄúMy True Love‚ÄĚ
  • Kevin Bader – Performs ‚ÄúYou are strong‚ÄĚ
  • The ‚Äú Hot Mess Club‚ÄĚ or The Friday – Support Group – Performs – Que Sera Sera
  • Jack Tan Chwee Kimm from Singapore – Performs – Best Friends – On the Ukulele
  • Phylis Fehrs Grandson – Performs
  • James Mckillop and Kevin Bader – Carers Song
  • Dr Daniel Potts to perform – Do you Hear me
  • Phylis Fehr and JJ – Performance
  • Mr. Veerasamy Shanmugam Naidu performs his Indian Classic Musical Performance titled Paadatha Pattlellam –
  • Jennifer Carson & Wally Cox – Perform Theres a hole in my Bucket
  • Dr Daniel Potts to Perform Midnight Angel
  • Phylis Fehr with daughter and Granddaughter – performs
  • Kevin Bader – Pick One Up
  • Graeme Atkins – Closing song

DAYS/TIMES:

Tuesday, March 16, 2021 (USA/CA/UK/EU): 

  • 2:00 pm Pacific
  • 3:00 pm Mountain
  • 4:00 pm Central
  • 5:00 pm Eastern
  • 9:00 pm London/Glasgow/Dublin UK
  • 10:00 pm Paris, Munich, Amsterdam, EU

Wednesday, March 17, 2021 ( AU/NZ/ASIA):

  • 5:00 am Perth, AU/ASIA
  • 7:00 am Brisbane, AU
  • 7:30 am Adelaide, AU
  • 8:00 am Sydney/Melbourne/Canberra/Tasmania/Brisbane, AU
  • 10:00 am Auckland, NZ

The Webinar runs for up to 1.5 hours.

Check your time if not listed above with this link. 

COST TO ATTEND:

  • DAI Members: FREE
  • Care partners of DAI Memers: FREE
  • Healthcare professionals: FREE
  • Researchers: FREE
  • General public: FREE

Register now…

YOUR DONATIONS SUPPORT US IN MANY WAYS:

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 200.00 covers the cost of our monthly Zoom subscription fee
  • $US 300.00 covers the current cost of 3 months of website management fees

PLEASE DONATE TO DAI OR BECOME AN ASSOCIATE OR PARTNER. WITHOUT THEM, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

Support people with dementia: 

THANK YOU

International Womens Day 2021

On March 8 each year DAI joins the world in celebrating and recognising women. The theme in 2021 is #ChooseToChallenge.¬†A challenged world is an alert world. Individually, we’re all responsible for our own thoughts and actions – all day, every day.

We can all choose to challenge and call out gender bias and inequality. We can all choose to seek out and celebrate women’s achievements.¬†Collectively, we can all help create an inclusive world.

From challenge comes change, so let’s all choose to challenge.

In reality, all women and men make a difference, but historically, and even today, women often do not receive public recognition or praise for their work.

DAI represents the more than 50 million people currently living with dementia, and I am one of them, and those with a new diagnosis of dementia every 3 seconds, and whilst dementia is a chronic, progressive terminal condition, it is listed by the WHO as the fifth highest cause of death for women worldwide and is a major cause of death and disability in older persons.

Women make up 2/3 of dementia care supporters and more than 70% in lower and middle-income countries. Unpaid women carers compared to male carers, are also more often unemployed due to their unpaid role; girls who are carers also miss out on education.

Everyone impacted by dementia receives little if any health care, including a lack of access to a diagnosis, nor appropriate support to live with dementia once diagnosed.

Older women, especially widows, can be exposed to what has been termed a ‚Äėtriple jeopardy‚Äô discriminated against as a result of their age, sex and condition (carer or diagnosed with dementia).

The stigma surrounding dementia exists universally, with women more likely to be stigmatised in this way.  Extreme forms of discrimination can lead to women with the condition facing abuse, violence and even death.

Governments, international civil society and partners around the world must get behind this global challenge and unite for a world where no woman is left behind because of her dementia, and you can join with us on March 8, 2021 by donating to support our work.

Gendered barriers to mobility and accessing justice lead to isolation and exclusion.

Understanding intersecting forms of gender- and disability-based violence, exploitation and abuse against women with disabilities including forced medical and psychiatric interventions.

Women with disabilities experience this type of abuse at disproportionately higher rates than others, and in unique forms owing to ingrained discrimination and stigmatization.

It is estimated that women with disabilities are 1.5 to 10 times more likely to be physically or sexually abused by a family member or caregiver than other women.

Women with disabilities are often excluded from national laws and policies and remain marginal to global discussions and agreements relevant to their empowerment. The global women’s agenda seldom takes into consideration the issues and concerns of women with disabilities.

In addition, women with disabilities are also neglected within the disability movement and the mainstream women’s movement. Stand-alone policies on women with disabilities remain limited; they are often excluded in policymaking and decision-making processes.

More often, women and girls also are the main informal family care partners for people livign with dementia, so not only do more women get diagnosed with any types of dementia they do the lions share of the informal care.

#ChooseToChallenge

About International Women’s Day

“International Women’s Day is a global day celebrating the social, economic, cultural and political achievements of women. The day also marks a call to action for accelerating gender parity. Significant activity is witnessed worldwide as groups come together to celebrate women’s achievements or rally for women’s equality.

Marked annually on March 8th,¬†International Women’s Day (IWD) is one of the most important days of the year to:

  • celebrate women’s achievements
  • raise awareness about women’s equality
  • lobby for accelerated gender parity
  • fundraise for female-focused charities”

Please donate to Dementia Alliance International today, as the charity directly supporting women living with dementia and their families.  Thank you.

Review of Webinar – Living with Dementia by Bobby Redman

DAI “Meeting Of The Minds” Webinar –¬†Living with Dementia: Supporting those who have it and care partners,¬†by Laurie White.

Review by Bobby Redman, Vice Chair, Dementia Alliance International

Another successful Meeting of the Minds Webinar took place on the February 24th / 25th, with 147 registering to attend.  Although not everyone who registered, made it to the presentation by Laurie White from Dementia Care Consulting, there were 55 attendees, with a good mix of people living with dementia, care partners, health care professionals and researchers.

Laurie‚Äôs extensive experience, in working with people with dementia and their families became clear during her presentation: Living with Dementia ‚Äď Supporting those who have it and care partners. Her perspective showed empathy and insight into the world of people living with dementia and their care partners.

Although we are all aware that peoples‚Äô experience of dementia differs and not everyone thinks and acts in the same way, I could relate to many of the quotes and suggestions made by Laurie. Her focus on the ‚Äúhumanity of the person‚ÄĚ, recognising that we all have our own stories and urging carers to put themselves in the shoes of those living with dementia, who may feel that they are still the same inside, was heart-warming.

For me, the recognition that dementia is not all about memory was particularly meaningful, as this is often missed by health professionals, who often fail to identify the real issues because they are constantly measuring for loss of memory.

I also enjoyed her perspective on how to communicate better with people living with dementia, reminding people to meet our personal needs in that area ‚Äď a true person-centred approach.

Laurie clearly captivated the audience judging by the numerous questions following the presentation. Laurie generously responded to queries, both related to her presentation and the many other questions about unrelated areas, thrown her way.  Without a doubt there are still many, out there, seeking a better understanding of dementia and a practical presentation, such as this, hopefully, provided this, as well as some insightful ideas on providing supportive care.

For those who missed the presentation, Laurie has given us permission to share her PowerPoint.  This is available now, and a recording of the actual presentation, which covers a great deal more that will be available down the track, once edited.

Download Laurie’s slides here.

Donate to DAI today to ensure we can host more free webinars like this for you!

Dementia and Employment, by Emily Tan Tan Ong

Dementia and Employment: Give us a chance to remain employed

By Emily Tan Tan Ong, DAI Member living in Singapore

Living with neurodegenerative disorders like dementia does not mean individuals suddenly lost their functional capacity and work skills upon diagnosis.

Unless it is Rapid Progressive Dementia, many of us continue to live well for a very long time as long as we do our part to stay physically fit, mentally active, socially engaged, and eat well.

However, there is one aspect of positive living that we need support and understanding from society. “Forced” retirement is the hardest blow to us with young-onset dementia. Many diagnosed with YOD have to quit because of their cognitive decline in particularly executive function skills.

There will be certain aspects of the functional capacities, which are no longer able to function at an optimal level. Skills like planning, time management, being organized, multitasking are commonly affected by cognitive deterioration. While it does impacts an individual’s productivity, efficiency, and effectiveness as a worker, the skills and experiences can compensate for functional declines.

The term “workability” refers to the relationship between an individual’s resources and job scope. According to the work ability model by the Finnish Institute of Occupational Health, there are four interrelated tiers: with a base layer consisting of personal health and functional capacities; the next layer is competence and skills; followed by the third layer personal values, attitudes, and motivation; and the topmost layer is work, referring to work scope, work environment, organization, and leadership.

Hence, it would be useful for any workplace to consider and decide the kind of work intervention needed to keep their employees living with mild cognitive impairment (MCI) or young-onset dementia (YOD). Beyond economic benefits, retaining the occupational role is vital to provide a sense of purpose in life and maintaining self-worth.

For this to work, the collaboration between the affected employee and the Human Resource Department is crucial. The employee has to feel safe enough to disclose the level of functional capacity without being discriminated against and judged.

The negative attitudes, which often based on stereotypes and myths, include people with dementia are unteachable and burdensome to have further worsened the employment situation. This perception can influence management decisions and implications for employee retention and retraining for job fit.

With an inclusive work culture and willingness to support affected employees to maintain their workability, this is a feasible practice. It is also a vital public health policy for the government to work on with the increasing cases of young-onset dementia over the years.

Reference:

Keeping people with dementia or mild cognitive impairment in employment: A literature review on its determinants by Fabiola Silvaggi et al., International Journal of Environmental Research and Public Health, 29 January 2020.

Webinar: Living with Dementia – Supporting Those Who Have It & Care Partners

You are invited to join us for our next “Meeting Of The Minds” Webinar, Living with Dementia: Supporting Those Who Have It & Care Partners, presetned by Laurie White, who has a¬†Masters of Social Work, MSW, and has been a¬†Dementia Specialist for 35 years.

Living with Dementia: Supporting Those Who Have It & Care Partners

Presented by: Laurie White, Master of Social Work (MSW) and Dementia Specialist for 35 years

DAY/DATE(S):

  • Wednesday, February 24, 2021 (USA/CA/UK/EU)
  • Thursday, February 25, 2021 (AU/NZ/Asia)
  • Please note this is one event, set in a number of different time zones.

About the Webinar: Using real life (anonymous) experiences of people with dementia, family care partners and professionals working in the medical and social service arenas, Laurie will help participants:

  • Understand what it feels like to have dementia
  • Connect with a person with dementia through effective communication strategies in the early, middle, and late stages
  • Explore how building on old strengths and interests can bring meaning to people in all stages of dementia

About Laurie White: After Laurie received her Master of Social Work from the University of Michigan 35 years ago, she dedicated her career to helping people with dementia, their care partner(s) and health care professionals. Laurie developed one of the first early stage groups in the country for people with dementia and facilitated these groups for 20 years. She has presented at conferences nationwide to help care partners understand and cope with the common challenges, changes and choices during the course of dementia. She co-authored Coping with Behavior Change in Dementia and Moving a Relative & Other Transitions in Dementia Care. (Dementiacarebooks.com) Laurie lives in Santa Rosa, California.

Wednesday, November 25, 2020 (USA/CA/UK/EU):

  • 1:00 pm Pacific
  • 2:00 pm Mountain
  • 3:00 pm Central
  • 4:00 pm Eastern
  • 9:00 pm London/Glasgow/Dublin UK
  • 10:00 pm Paris, Munich, Amsterdam, EU

Thursday, November 26, 2020 ( AU/NZ/ASIA):

  • 5:00 am Perth, AU/Taipei/Singapore
  • 7:00 am Brisbane, AU
  • 7:30 am Adelaide, AU
  • 8:00 am Sydney/Melbourne/Canberra/Tasmania/Brisbane, AU
  • 10:00 am Auckland, NZ

The Webinar runs for up to 1.5 hours.

Check your time if not listed above with this link.

Register here…

COST TO ATTEND:

  • DAI Members: FREE
  • Care partners of DAI Memers: FREE
  • Healthcare professionals: FREE
  • Researchers: FREE
  • General public: FREE

YOUR DONATIONS SUPPORT US IN MANY WAYS:

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 200.00 covers the cost of our monthly Zoom subscription fee
  • $US 300.00 covers the current cost of 3 months of website management fees

Supporting DAI directly supports people with dementia:

We look forwawrd to seeing you soon.

THANK YOU!

Introducing our new Chair, Alister Robertson

Alister Robertson, NZ

As we celebrate our 7th birthday this week, we are also delighted to introduce Dementia Alliance International (DAI) member Alister Robertson as our new Chair.

Alister has been a member since 2016, and has recently stepped down as our Vice Chair, to take on the role of Chair.

We are truly delighted to introduce Alister Robertson as our new Chair to  you. Alister has been a member of Dementia Alliance International (DAI) since 2016, and has recently stepped down as our Vice Chair, to take on the role of Chair.

Alister is taking over from Kate Swaffer who continues as a board member, and the CEO.

About Alister: Alister’s new leadership role has been endorsed and welcomed by the Board of Directors and by our members, and is recognition of the hard work Alister has done globally for our members, and in New Zealand where he is on the Board of Alzheimers New Zealand and a member of their Advisory Group.

He has a strong commitment to supporting people with dementia to have a voice, and to be included locally, nationally and globally.

Alister graduated from Lincoln University, Canterbury New Zealand in 1978 with Bachelor Agricultural Commerce. Spent the following 30+ years in the rural finance sector lending money to the primary sector.

In 2009 Alister and his wife, Charlene decided they would like to do something together, given their four sons had finished their schooling and were doing their own thing. Alister and Charlene resigned from their respective jobs, sold their newly built home and purchased a Motel in Taupo, which they sold four years later.

They then moved to Napier, Hawkes Bay (2013) to be closer to their son and his family. They had a retail and café business until Alister’s dementia diagnosis.

Alister’s father had Alzheimer’s and Alister was diagnosed with younger onset Alzheimer’s in 2014, aged 60 years. He endeavours to follow the advice of trying to maintain a healthy brain by way of diet, remaining socially involved, good sleep, staying mentally active and exercise. Alister is a keen cyclist, which is his main mode of transport and this helps keeping him fit.

Alister participates in the various activities provided by DAI and would like to see more Kiwi’s become active members of DAI, as well as more people with dementia globally to join for peer-to-peer support, and to get involved in the global work done by DAI.

Help people with dementia to continue to be included, to be supported and to have a voice, by donating today. 

Thank you.

You are invited to DAI’s 7th birthday Cafe

You are invited to the January 2021 virtual DAI Cafe Le Brain to help us celebrate 7 years of DAI’s advocacy and progress.

DAI Celebrates 7 Years

Hosts: Christine Thelker, Wally Cox and Kate Swaffer

Speakers include: Mr John Sandblom, Co founder and Treasurer, Dementia Alliance International, Mr Glenn Rees, Chair, Alzheimers Disease International and Ms Bethany Browne, Human Rights Advisor, International Disability Alliance.

Everyone is welcome.

DAI members will receive the zoom link to join by email.
All others will need to register here please.

DAY/DATE(S):

  • Tuesday, January 26, 2021 (USA/CA/UK/EU)
  • Wednesday, January 27, 2021 (AU/NZ/Asia)
  • Please note this is one event, set in a number of different time zones.

About the Cafe: Every month, DAI hosts a virtual café for its members and their families and supporters, and we have been doing so now for over 7 years!

Each January, we take this opportunity to celebrate our birthday together, and we invite you to join us. From small and humble dreams of global advocacy and human rights, and now, for dementia to be managed as a disability, alongside providing weekly peer to peer support and brain health sessions, we have achieved a lot!

This is your opportunity to hear from others who will share where we have been, acknowledging the work we have done, and dreaming together for our future. Our vision is for all people to be valued and equally included, including people with dementia and our care partners.

Everyone is welcome.

DAI members will receive the zoom link to join by email.
All others will need to register here please.

Programme:

  • Introductions and welcome by Kate Swaffer
  • Graeme Atkins performs, Happy 7th birthday DAI
  • Introducing our new Chair, Alister Robertson from New Zealand
  • Board update, Alister Robertson
  • DAI ‘(W)re-creational Officer, Graeme Atkins performs the DAI 7th birthday song, written by him
  • DAI’s global advocacy, and the value of our collaboration with ADI, by Glenn Rees
  • The importance of human rights and the CRPD for people with dementia, by Bethany Browne
  • An overview of the last 7 years (with images), hosted by Christine, Kate and Wally; you will hear from others including co founder Amy Shives and our long term volunteer Sarah Yeates

We will hear from a number of members and guests, inluding some of our co founders, volunteers and other special guests, including:

Mr John Sandblom, who is a co-founder of Dementia Alliance International (DAI), board member and the current Treasurer, and was instrumental in helping to set up DAI.

Mr Glenn Rees, who is the outgoing Chair of Alzheimer’s Disease International, and a former Chief Executive Office of Dementia Australia.

Ms Bethany Browne, who is the Human Rights Advisor to the International Disability Alliance, and formely worked for Human Rights Watch, including writing two reports on the excessive use of chemical restraint in nursing homes in the US and Australia.

Everyone is welcome.

DAI members will receive the zoom link to join by email.
All others will need to register here please.

DAY/DATE(S):

Tuesday, January 26, 2021 (USA/CA/UK/EU):

  • 1:00 pm Pacific
  • 2:00 pm Mountain
  • 3:00 pm Central
  • 4:00 pm Eastern
  • 9:00 pm London/Glasgow/Dublin UK
  • 10:00 pm Paris, Munich, Amsterdam, EU

Wednesday, January 26, 2021 ( AU/NZ/ASIA):

  • 5:00 am Perth, AU/Taipei/Singapore
  • 7:00 am Brisbane, AU
  • 7:30 am Adelaide, AU
  • 8:00 am Sydney/Melbourne/Canberra/Tasmania/Brisbane, AU
  • 10:00 am Auckland, NZ

The Webinar runs for up to 1.5 hours.

Check your time here if not listed above.

COST TO ATTEND:

  • FREE
  • YOUR DONATIONS ARE GREATLY APPRECIATED

PLEASE DONATE TO DAI OR BECOME AN ASSOCIATE OR PARTNER WITH US. WITHOUT YOU, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & OUR GLOBAL FAMILY.

Support people with dementia:

Everyone is welcome.

DAI members will receive the zoom link to join by email.
All others will need to register here please.

THANK YOU

Join us to celebrate the end of 2020!

Join us to celebrate the Festive Season and the end of 2020!

This is your invitation to join us at our December Virtual Festive Season Cafe, which is being hosted by Christine Thelker, Janet Duglas and Wally Cox.  It has been a truly challenging year for everyone, and we are grateful for our DAI family and friends, and look forward to sharing this time together.

Please note, this virtual cafe is for DAI members, our families, our friends and DAI supporters. Everyone is welcome.

  • Tuesday, December 22, 2020¬†(USA/CA/UK/EU)
  • Wednesday, December 23, 2020 (AU/NZ/ASIA)
Reminder: this is one event, set in many time zones
The zoom link to join will be provided closer to the day.
The cafe will commence with a welcome and time for introductions, followed by a quick update on the latest DAI news from the board. It will follow with lots of fun and friendship!

Christine and Janet have planned a fun programme, including a surprise visit from Father Christmas, live music from Graeme Atkins, and a beautiful song written by DAI member James McKillop and performed by his friend, Callum McNab.

Wally will hopefully keep us all on track with his wonderful sense of humor.

Tuesday December 22, 2020 (USA/CA/UK/EU):
  • 1:00 pm PST
  • 2:00 pm MST
  • 3:00 pm CST
  • 4:00 pm EST
  • 9:00 pm GMT, UK
  • 10:00 pm CET, Germany
Wednesday December 23, 2020 (AU/NZ/ASIA):
  • 5:00 am Perth AU/Singapore, SGT
  • 7:00 am AEST, Brisbane
  • 7:30 am ACDT, Adelaide
  • 8:00 am AEDT, Sydney/Melbourne
  • 10:00 am NZDT, Auckland
Our virtual Cafe runs for up to 1.5 hours; check your time here if not listed above.

We look forward to seeing you very soon!

Christine, Janet and Wally
On behalf of the DAI Board of Directors
Dementia Alliance International

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Note: we¬†sometimes use voice recognition software for correspondence‚Äč and newsletters; ‚Äč‚Äčhence¬†there may be some grammatical errors or spelling mistakes, for which we thank you for your understanding.