Category Archives: A Meeting of the Minds

Join us for WRAD 2020

ATTENTION: DAI members, family, friends, advocates, supporters, and anyone interested in having fun are welcome to join our online event!  Join us for soon DAI’s 2020 ANNUAL WORLD ROCKS AGAINST DEMENTIA (WRAD) & CAFE LE BRAIN
  • Wednesday, March 25, 2020 (USA/CA/UK/EU)
  • Thursday, March 26, 2020 (AU/NZ/ASIA)

This is one event, set in a number of different time zones, as listed below.

Your hosts are Wally Cox and Alister Robertson

DAI ‘s vision is that all people are valued and included. We also have a strong philosophy that working together makes us all stronger. We believe by doing so, we will achieve more tangible change for all people with dementia and our families.

This includes having fun together!

Through hosting the online WRAD event, we bring the power of music to everyone, and support the global initiatives, the Rock Against Dementia, WRAD, and the Purple Angel.

It is also a chance to destress if you are feeling concerned about COVID-19. Due to the virus, most live events have been cancelled. Thankfully, DAI members are used to online events, so everyone is safe…

Our 2020 WRAD program is almost finalised, and as always, it will be a lot of fun. It incudes some new original performances, written and performed especially for the DAI.

As we have combined it with our montly Cafe Le Brain, there will also be an update about DAI, and lots of time to chat.

Opening and closing live performances are once again by the incredible Graeme Atkins, who supported by his wife, is a wonderful example of living positively, alongside the very real and daily challenges of a diagnosis of dementia. His songs are original, and DAI is grateful to have his friendship and support.

JOIN USING THIS ZOOM LINK: https://zoom.us/j/160487058
Meeting ID: 160 487 058


HOSTS: Wally Cox and Alister Robertson

CURRENT PROGRAMME:

  1. Introductions and welcome
  2. DAI updates
  3. Live performance by Graeme Atkins: 6 Years On For DAI
  4. Vince Zangaro: Isolation
  5. Dr Al Power: Happy Wanderer
  6. Mind to Beat, Beat to Mind: Drumming song
  7. Live performance by Graeme Atkins: It’s Dementia
  8. Open discussions

DATES/TIMES:
Wednesday, March 25, 2020 (US/UK/EU/CA):

  • 1:30 pm Pacific Time, PDT
  • 2:30 pm Mountain Time, MDT
  • 3:30 pm Central Time, CDT
  • 4:30 pm Eastern Time, EDT
  • 8:30 pm London, GMT

Thursday, March 26, 2020 (AU/NZ/JP/IND/TWN):

  • 4:30 am Perth, AU / Singapore, SGT
  • 6:30 am Brisbane, AEST
  • 7:00 am Adelaide, ACDT
  • 7:30 am Sydney, AEDT
  • 9:30 am Auckland, NZDT

The event runs for up to 1.5 hours.
Check your times here if not listed above.

JOIN HERE: https://zoom.us/j/160487058
Meeting ID: 160 487 058

Our WRAD event is also an annual fundraiser, which helps us to continue to provide free membership and free services for our members.

Please consider donating.

As little as $10.00 makes a huge difference.

Dementia and Wayfinding, by Dr Neubauer

In August 2019, Dr Noelannah Neubauer presented a #DAI Webinar, “The changing face of dementia and missing person incidents: The International Consortium on Dementia and Wayfinding”. Watch her presentation here:

The number of lost and missing person incidents involving those living with dementia has been on a rapid incline in recent years. Despite the increasing number of available strategies to lessen this issue, research focusing on managing and preventing lost incidents among those living with dementia is limited and few key stakeholders, such as persons with dementia have been involved. International collaborations looking at this issue from a global scale has also yet to be explored. This has led to the formulation of an international consortium on dementia and wayfinding.

Dementia Alliance International (DAI is a non-profit group of people with dementia from around the world seeking to represent, support, and educate others living with the disease that it is possible to live more positilvey than advised with dementia. It is an organization that promotes a unified voice of strength, advocacy and support in the fight for individual autonomy, improved quality of life, and for the human and legal rights of all with dementia and their families.

Make a difference by Donating or Partnering with DAI

Membership of, and services provided by Dementia Alliance International is FREE, and open to anyone with a diagnosis of any type of dementia.

Join DAI

Read our newsletters or regular blogs, by subscribing to DAI

Beyond-BPSD by Dr Al Power

This week, in our “Meeting Of The Minds” Webinar, we were honoured to listen to Dr Al Power on the urgent need to stop using the framework known as Behavioural and Psychological Symptoms of Dementia (BPSD), and to reframe how we view, and treat people with dementia. Thank you Al.

Note: Al’s slides were too large to upload on our website, so please contact us if you would like a copy emailed to you.

Donating to or partnering with us will make a difference.

Membership of, and services provided by Dementia Alliance International are FREE, and open to anyone with a diagnosis of any type of dementia.

Read our e-newsletters or regular blogs by subscribing to them.

Remembering the DAI online WRAD 2019 event

In March 2019, DAI hosted an online World Rocks Against Dementia (WRAD) event, with a number of recorded and live performances. We are delighted all performers provided consent for us to publish it here, and thank them for their incredible support. Please note, all performers of our WRAD events retain full copyright.

Special thanks to Graeme Atkins and Dr Al Power:

  1. DAI member Graeme Atkins contnues to write songs specifically for, and about DAI, in spite of the additional health issues faced this year.  We thank him for his incredible support.

2.  DAI supporter, Al Power wrote and performed his song for WRAD19 specifically for our event, and we thank him for his ongoing generous support, and look forward to his presentation at our monthly “Meeting Of The Minds” Webinar, Beyond BPSD, later this month. Register now.

Please consider donating or partnering with DAI… by doing so, YOU will make a difference.

Thank you.

#Hello from 49 people with dementia in NZ, Day 3 #WAM2019

Whilst we highlight many  individual voices of people with dementia through our #Hello blog series this month, in todays post, we share our “Meeting Of The Minds” Webinar from June, Living with dementia in New Zealand.

The research involved listening to the voices of 49 people diagnosed with dementia in New Zealand, and we thank Liz and Alister for their contribution during the Webinar. The slides and the Dementia Declaration are available to download below the video.

Download the power point slides

Download the NZ Dementia Declaration

September Webinar: Step Up For Dementia Research

DAI’s monthly “Meeting Of The Minds” Webinars focus on a variety of topics, and provide an opportunity for people with dementia to connect with the wider community of those living with the disease or working in the area of dementia, and vice versa.

In September, we are pleases to announce we will hear from Yun-Hee is the Susan and Isaac Wakil Professor of Healthy Ageing at the Sydney Nursing School, The University of Sydney. Yun-Hee  is passionate about improving quality of care for older people and dementia care and involving the public at all stages of research.

Register now for our September 2019 “A Meeting Of The Minds Webinar”,  on Step Up For Dementia Research

  • Wednesday September 25,  2019 (USA/CA/UK)
  • Thursday September 26,, 2019 (AU/NZ/ASIA)

Please note: this is one event, set in a number of different time zones.

About the Webinar: There is no systematic way for people with dementia to get involved in research, and limited support is available to facilitate a broader public engagement in dementia research. Recruiting participants in dementia research is costly and time consuming. In partnership with University College London and University of Exeter, a team at the university of Sydney has been working to tackle the challenges in Australia through StepUp for Dementia Research. This presentation will focus on what this new initiative aims to deliver and how it will achieve its goal to improve recruitment efficiency and public engagement in dementia research. The session will conclude with Q&A, and time permitting the participants will be given opportunity to sign up in real time.

COST TO ATTEND:

  • DAI Members/Care partners: FREE
  • Employed persons: DONATIONS APPRECIATED

Register here…

PLEASE CONSIDER DONATING TO DAI OR BECOMING AN ASSOCIATE OR PARTNER.

WITHOUT YOUR DONATIONS, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 60.00 covers the average of the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 300.00 covers the current cost of 3 months of website management fees

Support people with dementia: Donate to DAI

Become a DAI Associate or Strategic Partner today

Volunteer for DAI

THANK YOU

Register now for DAI’s July Webinar: Dementia as a Disability

We invite you to register now for DAI’s “A Meeting Of The Minds” Webinar, July 24/25, 2019, with presenter and DAI Board member, Christine Thelker from Canada.

 

 

 

 

 

 

Please note: this is one event, set in a number of different time zones.

About the Webinar: DAI recently held a Side Event at the 12th Session of the Conference Of State Parties (COSP) on the Rights of Persons with Disabilities (CRPD). This webinar will highlight the event, focusing on why dementia must be managed as a disability and why people with dementia are rights bearers as all others, such as universal heath care including rehabilitation. The panel included a group of eminent speakers, and was a rich discussion on dementia as a disability, on people with dementia as rights bearers, and of the rights of all, including people with dementia to rehabilitation and other services, and to full and equal access to the CRPD

The overarching theme was social inclusion and health, two determinants of well-being, both of which are being systematically denied to people with dementia all around the world. Dementia had never been represented formally in a Side Event ever before at the COSP, hence why DAI felt it was so important.

Our disabilities may be more invisible than many others, but we are still, even in 2019, being stigmatised and discriminated against on a daily basis, and we hope this event will be the start of change for the more than 50 million people currently living with dementia, and every person being newly diagnosed every 3.2 seconds.

As an organisation DAI continues to work towards others joining our campaign that dementia is a condition causing acquired cognitive and other disabilities, and for full and equal access to the CRPD and other Conventions, so that no one is left behind, including people with dementia. Rehabilitation, and all other health and disability services and support are essential for maintaining independence and dignity, for longer, and whilst dementia is a terminal condition, we should not all be ‘dying at diagnosis’.

About our speaker: Christine Thelker, a current board member of DAI, is from Vernon, British Columbia, Canada and at 59 says, her sense of humour has grown, since her diagnosis of dementia. She is a Board member of Dementia Alliance International, and previously worked for the Interior Health Authority for 13 years in various sites, including in dementia care and of life care. She advocates for families and patients and for better training for workers in dementia care. She also advocated for better working environments for the employees. Christine designed and taught a program to nursing students at the local colleges on end of life care and dementia care, and designed a program on unattended sorrow, which was in relation to all the deaths workers saw and the cumulative effects. She believes it has many similar effects on people diagnosed with dementia and doing more work around that. Widowed at 47 and then diagnosed with Vascular dementia at 56, Christine is still advocating, using her voice to help others. She loves working with Dementia Alliance International (DAI) and believes whole-heartedly that it helps keep her living well with her dementia. Her motto since being diagnosed is “I’m not done yet”.

Register here…

Wednesday, July 24, 2019 (USA/CA/UK/EU):

  • 11:30 am Honolulu
  • 2:30 pm Pacific
  • 3:30 pm Mountain
  • 4:30 pm Central
  • 5:30 pm Eastern
  • 10:30 pm London/Glasgow/Dublin UK
  • 11:30 pm Paris, Munich, Amsterdam, EU

Thursday, July 25, 2019 (AU/NZ/JP/SGP/TWN/CHN):

  • 7:00 am Adelaide AU
  • 7:30 am Brisbane/Sydney/Melbourne/Canberra/Tasmania AU
  • 5:30 am Perth AU/Taipei//Beijing
  • 9:30 am Auckland, NZ

The Webinar runs for 1.5 hours. Check your time if not listed above by using this link:

COST TO ATTEND:

  • DAI Members/Care partners: FREE
  • Employed people: DONATIONS APPRECIATED
  • Full time Students: DONATIONS APPRECIATED

Register here…

Donations are appreciated.

“Staying engaged without driving”

In April 2019 DAI was delighted to host one of our “A Meeting Of The Minds”  Webinars on an important topic, “Staying engaged without driving”, presented by Dr Jacki Liddle and Dr Theresa Scott, both from Queensland.  Our sincere thanks to them both for giving up their time and sharing their expertise on this topic.

About the webinar: Some people say that stopping driving is the “hardest thing” they face in living with dementia. Our research has explored people’s experiences related to stopping driving, the involvement of health professionals and key times when support is needed. The talk will draw on this to cover ways to prepare, decide and adjust emotionally and practically to life without driving. It will highlight ways to stay engaged in the community and in meaningful activities. It will also show advice for health professionals and family members for ways they can assist people who are retiring from driving. The CarFreeMe program is an example of an education and support program helping people with stopping driving, and we will give an overview of this and ways people could get involved.

Watch the recording of this important presentation here:

Download the slides here: How to stay engaged without driving 

About the speakers:

Jacki Liddle is an Occupational Therapist and Research Fellow. She is involved in researching life transitions, ways of supporting community engagement and ways of measuring meaningful outcomes. Her research with people living with dementia includes codesigning technology and supporting community mobility, particularly after driving cessation.

Dr Theresa Scott is an NHMRC-ARC Dementia Research Development Fellow and a Psychologist at The University of Queensland. Her fellowship research is focused on the complex issues around dementia and driving. She is particularly interested in how driving cessation might be better managed in primary care settings and in supporting people living with dementia who are transitioning to retirement from driving

Collaboration across disciplines and countries, by Dr Laura Booi

Dr Laura Booi, PhD is a Gerontologist from Vancouver, Canada. For over the past decade her research has focused on improving the lives of those live with dementia, as well as those who support them. In our February 2019 “A Meeting Of The Minds” Webinar, she highlighted the work of the World Young Leaders in Dementia (WYLD). We thank Laura for her time, support of DAI, and expertise.

This is a network of young professionals in the field of dementia. WYLD members represent over 300 individuals, under the age of 40, from 30 countries, spanning across 6 continents, who are working together across disciplines and borders to develop innovative dementia solutions. The network supports the work of the World Dementia Council as well as other NGOs.

WYLD offers opportunities for professionals in the dementia space to connect and learn from others across disciplines and geographic boundaries.

Laura’s slides are available to download here: WYLD Webinar_Laura Booi PhD_DAI

For more information please visit www.WYLDementia.org

Webinar “DAI: 5 years on”

 

Please note: this is one event, set in a number of different time zones.


“Five years on: Why DAI? Where have we been? Where are we going?”

 

ABOUT THE WEBINAR: With a new diagnosis of dementia every 3 seconds, it is not surprising that DAI has continued to grow since its launch five years ago. Our presenters, John Sandblom and Kate Swaffer are both co founders, and are also co hosts of peer to peer support groups and very active board members. They are both often asked why and how DAI was set up. In this Webinar, they will cover the history of DAI, provide an overview of what DAI has achieved to date, and discuss where they see the future of DAI.

The most imporant part of DAI’s work is the weekly peer to peer support groups for members, and the global advocacy for claiming our human rights and disability rights. This webinar will also be an opportuntity for members, families, as well as our sponsors, supporters, academics and professionals working in the field to tell us what they would like to see in terms of DAI’s future direction.

By working together collaboratively, we are all stronger, and can achieve even more than what the original founding members first dreamed of. We welcome everyone to register and join us for this EXCITING Webinar. Without you all, DAI would not be where it is today.

PRESENTERS: Kate Swaffer & John Sandblom

John and Kate are co founders of DAI, and have been active board members from day one of this organization. They were also very in the setting up of DAI prior to the launch on January 1, 2014.

John has lived in central Iowa, in the US for all of his life except for college which was eastern Iowa at the University of Iowa. He spent the majority of his working life in business-to- business sales, first print advertising followed by television advertising and then telecommunications sales. He was diagnosed with Younger Onset Atypical Alzheimer’s Disease at the age of 48 in 2007, by a gerontologist that specialized in dementia.

Kate grew up on a farm in rural South Australia, and has lived in Adelaide Australia since 1977. She commenced her professional career as a nurse, specialising in dementia and aged care, and then worked in operating theatres. She has also worked as a chef, and also in health care sales. She is very active globally for DAI, has published two books on dementia, two poetry books, and is involved in research into dementia at three universities. Kate was diagnosed with younger onset dementia (svPPA) aged 49 by a neurologist in Adelaide.

Register here…

DATES/TIMES:

Wednesday, January 30, 2019 (USA/CA/UK/EU)

10:30 am Honolulu
12:30 pm Oregon Portland/San Francisco USA
12:30 pm Vancouver CA
2:30 pm Des Moines/Chicago USA
3:30 pm New York USA
3:30 pm Toronto CA
8:30 pm London/Glasgow UK
9:30 pm Paris, Munich, Amsterdam, EU

Thursday, January 31, 2019 (AU/NZ/JP/SGP/TWN/CHN)

7:00 am Adelaide AU
6:30 am Brisbane AU
7:30 am Sydney/Melbourne/Canberra/Tasmania AU
4:30 am Perth AU/Taipei TWN/Beijing
5:30 am Tokyo, JP
9:30 am Auckland, NZ

The Webinar runs for 1.5 hours.

Apologies for some of the early or late times; it is really difficult to host one event which suits all time zones; we will record this presentation for those who are unable to attend.

Check your time if not listed above by opening this link.

We hope to see you there!

DONATIONS ARE OUR ONLY SOURCE OF REGULAR REVENUE, AND E INVITE YOU TO MAKE A DONATION.  

WITHOUT DONATIONS, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 60.00 covers the average of the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 400.00 covers the current cost of 3 months of website management fees

PLEASE DONATE HERE… 

CERTIFICATES OF ATTENDANCE: If you are still waiting on a certificate of attendance from any of our educational webinars, please email us at [email protected]

OPTION: Our event ticketer, Eventbrite, charges us a transaction fee to cover fees and other processing costs, to securely process your donation. Please consider adding an additional small amount to your donation so 100% of your donation amount goes to Dementia Alliance International.

Thank you.