Category Archives: A Meeting Of The Minds Webinar

Webinar: Dementia and Wayfinding, by Noelannah Neubauer

Register now to join us for the next DAI “A Meeting Of The Minds” Webinar, on August 28/29, 2019. We are delighted to introduce Noelannah Neubauer to present on this topic, which some members and families may find contentious. However,  we all agree, for a person who is lost, providing support to ensure their safe return home, including people with dementia is important. After the presentation, there is time for you to ask questions, or express your views.

Title: Dementia and Wayfinding
Presenter: Noelannah Neubauer, PhD, MSc, BHK

  • Wednesday, Aug 28, 2019 (USA/CA/UK/EU)
  • Thursday, Aug 29, 2019 (AU/NZ/JP/SGP/TWN)

Please note: this is one event, set in a number of different time zones.

About the Webinar: The changing face of dementia and missing person incidents: The International Consortium on Dementia and Wayfinding

The number of lost and missing person incidents involving those living with dementia has been on a rapid incline in recent years. Despite the increasing number of available strategies to lessen this issue, research focusing on managing and preventing lost incidents among those living with dementia is limited and few key stakeholders, such as persons with dementia have been involved. International collaborations looking at this issue from a global scale has also yet to be explored. This has led to the formulation of an international consortium on dementia and wayfinding. Co-founded by two PhD students in Canada and Scotland, the International Consortium on Dementia and Wayfinding serves as a knowledge mobilization hub for more than 8 countries and includes persons with dementia, care partners, community organizations, police, health professionals and researchers. The goal of the consortium is to help people living with dementia go out and about safely in their local neighbourhoods without fear of stigma, getting lost, or going missing. We plan to do this by doing research and sharing best practices from around the world. These measures will help people live their lives safely, without restricting freedom.

About our speaker:

Noelannah Neubauer is an incoming Post-Doctoral Fellow in the Faculty of Applied Health Science at the University of Waterloo in Canada. She recently completed her PhD August 2019 in the Faculty of Rehabilitation Medicine at the University of Alberta under the supervision of Dr. Lili Liu. She is the co-founder of the International Consortium on Dementia and Wayfinding, is a member of WYLD, and is Highly-Qualified personnel with AGE-WELL NCE. Her research focuses on identifying strategies that balance safety and autonomy among persons living with dementia that are at risk of getting lost.

Wednesday, August 28, 2019 (USA/CA/UK/EU):

  • 11:00 am Honolulu
  • 2:00 pm Pacific
  • 3:00 pm Mountain
  • 4:00 pm Central
  • 5:00 pm Eastern
  • 10:00 pm London/Glasgow/Dublin UK
  • 11:00 pm Paris, Munich, Amsterdam, EU

Thursday, August 29 2019 (AU/NZ/JP/SGP/TWN/CHN):

  • 6:30 am Adelaide AU
  • 7:00 am Brisbane/Sydney/Melbourne/Canberra/Tasmania AU
  • 5:00 am Perth AU/Taipei//Beijing
  • 9:00 am Auckland, NZ

The Webinar runs for 1.5 hours. Check your time if not listed above with this link.

COST TO ATTEND:

  • DAI Members/Care partners: FREE
  • Employed persons: DONATIONS APPRECIATED

WE INVITE YOU TO DONATE TO, OR PARTNER WITH DAI NOW

Dr Daniel Potts, “Learning from Patients and Families”

In May 2019 DAI was delighted to host one of our “A Meeting Of The Minds”  Webinars, “Learnings from Patients and Families”, presented by Dr Daniel Potts.  We thank Dr Potts sincerely for giving up his time, and sharing his incredible insights, expertise and learnings, as well as his own deeply personal story. You can watch it now, if you missed attending on the day.

About the webinar: A neurologist and care partner for his father, Lester, who became an artist after the diagnosis of Alzheimer’s disease, Daniel Potts found his life and practice have changed because of the experience with his father. He feels the experience has produced greater empathy, compassion, and understanding, which has increased his own effectiveness as a physician and educator. Dr. Potts will highlight his experience with his father, show some of Lester’s art, will speak about specific ways his practice has changed, and will give some suggestions that may be helpful for other providers. Additionally, he will discuss some realistic expectations persons living with dementia and care partners should have of their providers and looks forward to gaining knowledge and understanding from the webinar audience, as well.

If you are watching this and are employed or in a financial position to support DAI, please consider donating to us.

In doing so you assist supporting more Webinars like this one, as well as people living with dementia globally.

Thank you.

May Webinar: Learnings from patients and families by Dr Daniel Potts

DAI is delighted to announce our speaker for the May “A Meeting Of The Minds Webinar is eminent neurologist, Dr Daniel Potts. Please register now and join us for this exciting and more posiive approach to dementia.

 

Faces of Change: How Relationships with Persons Living with Dementia Have Changed My Neurology Practice

Presenter: Dr Daniel Potts, MD, FAAN, Founder, Cognitive Dynamics, Neurologist, Tuscaloosa VA, Faculty, University of Alabama

Wednesday, May 29, 2019 (USA/CA/UK/EU)
Thursday, May 30, 2019 (AU/NZ/JP/SGP/TWN)

Please note: this is one event, set in a number of different time zones.

Register here…

 

About the Webinar: A neurologist and care partner for his father, Lester, who became an artist after the diagnosis of Alzheimer’s disease, Daniel Potts found his life and practice have changed because of the experience with his father. He feels the experience has produced greater empathy, compassion, and understanding, which has increased his own effectiveness as a physician and educator. Dr. Potts will highlight his experience with his father, show some of Lester’s art, will speak about specific ways his practice has changed, and will give some suggestions that may be helpful for other providers. Additionally, he will discuss some realistic expectations persons living with dementia and care partners should have of their providers and looks forward to gaining knowledge and understanding from the webinar audience, as well.

About our speaker: Daniel C. Potts, MD, FAAN is a neurologist, author, educator and champion of those living with Alzheimer’s disease and other dementias and their care partners. Selected by the American Academy of Neurology as the 2008 Donald M. Palatucci Advocate of the Year, he also has been designated an Architect of Change by Maria Shriver. In 2016, he was chosen by the University of Alabama Medical Alumni Association as a recipient of the Martha Myers Role Model Award,which honors physician alumni whose lives epitomize the ideal of service to their communities. Inspired by his father’s transformation from saw miller to watercolor artist in the throes of dementia through person-centered care and the expressive arts, Dr. Potts seeks to make these therapies more widely available through his foundation, Cognitive Dynamics. Additionally, he is passionate about promoting self-preservation and dignity for all persons with cognitive impairment. He lives with his wife and two daughters in Tuscaloosa, Alabama.

Wednesday, May 29, 2019 (USA/CA/UK/EU):
11:00 am Honolulu
2:00 pm Pacific
3:00 pm Mountain
4:00 pm Central
5:00 Eastern
10:00 pm London/Glasgow/Dublin UK
11:00 pm Paris, Munich, Amsterdam, EU

Thursday, May 30, 2019 (AU/NZ/JP/SGP/TWN/CHN):
7:00 am Adelaide AU
7:30 am Brisbane/Sydney/Melbourne/Canberra/Tasmania AU
5:00 am Perth AU/Taipei TWN/Beijing
9:00 am Auckland, NZ

The Webinar runs for 1.5 hours.

Register here…

See you there!

COST TO ATTEND:

DAI Members/Care partners: FREE
Employed people: DONATIONS APPRECIATED
Full time Students: DONATIONS APPRECIATED

PLEASE CONSIDER DONATING TO DAI OR BECOMING AN ASSOCIATE OR PARTNER.

WITHOUT YOUR DONATIONS, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

$US 5.00 covers the average cost of one of our monthly bank fees
$US 60.00 covers the average of the cost of our monthly Zoom subscription fee
$US 120.00 covers the average monthly cost of the MailChimp subscription
$US 300.00 covers the current cost of 3 months of website management fees

Support people with dementia: Donate to DAI
Become a DAI Associate or Strategic Partner today
Volunteer for DAI

THANK YOU

DAI’s 2019 ROCK AGAINST DEMENTIA EVENT

 

 

 

 

 

PLEASE JOIN US FOR OUR ANNUAL ROCK AGAINST DEMENTIA EVENT

  • Friday, March 22, 2019 (USA/CA/UK/EU)
  • Saturday, March 23, 2019 (AU/NZ/ASIA)

Please note: this will be one event, set in a number of different time zones.

Register here…

About DAI’s online WRAD2019 event: DAI ‘s vision is that all people with dementia are valued and included. We also have a strong philosophy that working together makes us all stronger, and by doing so, we can and will achieve more. Our 2018 “World Rocks Against Dementia” (WRAD) event was hugely successful, and we are hostig another online event for WRAD this year.

This year, we have many new and original songs, performed just for DAI’s Rock Against Dementia online event, and we thank each and every performer for their support. Many of these songs will really speak to your hearts and souls. 

We don’t have a fully finalised program yet, but please know it will be fun. We have some live performances (yes, via Zoom), and like last year, there will be time to chat and ask questions about what is it like living with dementia along the way.

Credit goes to Wayne Mesker who started Rock Against Dementia (RAD) in the USA, and Norrms McNamara in the UK whose idea it was to take the event global. By collaborating together, these two men have helped the World Rock Against Dementia (WRAD) all around the world. DAI is proud to be part of the movement, as we all know music is an important part of our lives, and as discovered by the Alive Inside Foundation, is also a powerful change agent for improving the quality of life, memory recall and pure joy for people with dementia.

Opening and closing live performances are again by DAI member Graeme Atkins, who supported by his wife, is a wonderful example of living positively, alongside the very real challenges of a diagnosis of dementia.

DRAFT PROGRAMME:

  • Live performance by Graeme Atkins: Living Well With Dementia
  • Dr Al Power, supported by: Happy Wanderer
  • Daniella Greenwood: Something For Kate
  • Chris Madsen & Jenny Garbutt: In the Stillness
  • Dubghlas Taylor and the Bay Samba band, Brisbane: tbc
  • Chris Madsen & Jenny Garbutt: It shall always be
  • The ACH Choir, Adelaide: tbc
  • James McKillop: tbc
  • Veda Meneghetti and The Party Girls: Only Your Heart
  • Kate Swaffer: Sadness, followed by Happiness
  • Live performance by Graeme Atkins: The Minimal Mental Test!

NOTE: WE STILL HAVE MANY PERFORMANCES TO BE ADDED TO OUR PROGRAMME


Friday, March 22, 2019 – times (USA/UK/EU/CA):

  • 11:00 am Honolulu
  • 2:00 pm San Francisco USA / Vancouver CA
  • 4:00 pm Des Moines/Chicago/Houston USA
  • 5:00 pm New York USA / oronto CA
  • 9:00 pm London/Glasgow UK
  • 10:00 pm Paris, Munich, Amsterdam, EU

Saturday, March 23, 2019 – times (AU/NZ/JP/IND/TWN):

  • 5:00 am Perth/Taipei
  • 7:00 Brisbane
  • 7:30 am Adelaide
  • 8:00 am Sydney/Melbourne/Canberra
  • 10:00 am Auckland, NZ

The webinar runs for up to 1.5 hours.

Check your time here, if not listed above…


COST TO ATTEND:

  • $10 USD – DAI Members
  • $20 USD – NON DAI Members
  • $50 USD – to be used exclusively to support people with dementia to attend conferences
  • DONATION – other

NOTE: DAI WRAD-2019 performers will be provided with a complimentary ticket

Register here…

PLEASE CONSIDER DONATING TO DAI OR BECOMING AN ASSOCIATE OR PARTNER.

WITHOUT YOUR DONATIONS, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 60.00 covers the average of the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 400.00 covers the current cost of 3 months of website management fees

Support people with dementia: Donate to DAI

Become a DAI Associate or Strategic Partner today

Volunteer for DAI

THANK YOU

 

CERTIFICATES OF ATTENDANCE: If you are still waiting on a certificate of attendance from any of our educational webinars, please email us at [email protected]

 

NEWSFLASH: Dr Laura Booi presents at our next Webinar

We are thrilled to announce Laura Booi, PhD, member of the World Young Leaders in Dementia (WYDL) and Atlantic Fellow with the Global Brain Health Institute, Trinity College Dublin, has agreed to present at our February Webinar. Thank you Dr Booi!

“The World Young Leaders in Dementia: Collaboration Across Disciplines and Countries Among the Next Generation of Dementia Leaders”

Presented by Laura Booi PhD

 

 

 

 

 

 

  • Wednesday, Febuary 27, 2019 (USA/CA/UK/EU)
  • Thursday, Febuary 27, 2019 (AU/NZ/JP/SGP/TWN)

Please note: this will be one event, set in a number of different time zones.

Register here…

About the Webinar: World Young Leaders in Dementia (WYLD), a network of young professionals in the field of dementia. WYLD members represent over 300 individuals, under the age of 40, from 30 countries, spanning across 6 continents, who are working together across disciplines and borders to develop innovative dementia solutions.The network supports the work of the World Dementia Council as well as other NGOs. WYLD offers opportunities for professionals in the dementia space to connect and learn from others across disciplines and geographic boundaries. For more information please visit www.WYLDementia.org and attend this webinar.

About Laura: Laura Booi, PhD is a Gerontologist from Vancouver, Canada. For over the past decade her research has focused on improving the lives of those live with dementia, as well as those who support them. Her doctoral thesis used ethnographic methods to explore the lived experience of care assistance in long-term care settings. She has also conducted large-scale projects examining the role of dementia related stigma within retirement communities. Laura is an outspoken advocate for people living with dementia and one of the the co-founders of the World Young Leaders in Dementia (WYLD). She is currently living in Ireland as an Atlantic Fellow for Equity and Brain Health with the Global Brain Health Institute at Trinity College, Dublin.


Wednesday, February 27, 2019 (USA/CA/UK/EU):

10:30 am  Honolulu
12:30 pm  Oregon Portland/San Francisco USA/Vancouver CA
2:30 pm    Des Moines/Chicago USA
3:30 pm    New York USA/Toronto CA
8:30 pm    London/Glasgow/Dublin UK
9:30 pm  Paris, Munich, Amsterdam, EU

Thursday, February 28, 2019 (AU/NZ/JP/SGP/ASIA):

7:00 am    Adelaide AU
6:30 am    Brisbane AU
8:00 am    Sydney/Melbourne/Canberra/Tasmania AU
4:30 am    Perth AU/Taipei TWN/Beijing
5:30 am    Tokyo, JP
9:30 am  Auckland, NZ

The Webinar runs for up to 1.5 hours. 

Check your time here if not listed above.

See you there!

COST TO ATTEND: 

  • DAI Members or their care partners: FREE
  • Employed people: $50:00 USD
  • Full time Students: $25:00 USD

Register here…

PLEASE CONSIDER DONATING TO DAI OR BECOMING AN ASSOCIATE OR PARTNER.

WITHOUT YOUR DONATIONS, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 60.00 covers the average of the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 400.00 covers the current cost of 3 months of website management fees

Support people with dementia: Donate to DAI

Become a DAI Associate or Strategic Partner today

Volunteer for DAI

THANK YOU

 

CERTIFICATES OF ATTENDANCE: If you are still waiting on a certificate of attendance from any of our educational webinars, please email us at [email protected]

OPTION: Our event ticketer, Eventbrite, charges us a transaction fee to cover fees and other processing costs, to securely process your donation. Please consider adding an additional small amount to your donation so 100% of your donation amount goes to Dementia Alliance International.

Alzheimer’s from the Inside Out, by Dr Richard Taylor

It would have been the late Dr Richard Taylor‘s birthday today (perhaps tomorrow if you are in the USA), and to honour his memory, and his influence on the lives of so many people with and without dementia. we are re-posting a video of him speaking at the first ADI conference DAI members attended, in Puerto Rico in 2014.

Alzheimer’s from the inside out

Watch and listen at the 53 second point of this video…  Richard talks with sincerity, but also with some cynicism about why he believed he was offered an award and invited to speak at the awards event. This is still happening to most people with dementia  today.

https://youtu.be/il9f_YnOZlM

His speech notes are on the original DAI blog published after the conference

The Joy of DAI and Dementia, by Tamara Claunch

The first month of January is almost at an end! Wow, where did it go?! This month has definitely passed quickly, and for DAI, it has included a lot of celebrations for our 5th birthday.

We even have one more DAI event in January to attend, which you still have time to register for!

But, back to our birthday!

Who would have thought someone would be jealous of having dementia?

Our 5th birthday party was held in lieu of our regular Cafe Le Brain and members meeting, with a high attendance. It was an open session, with everyone being welcome, and access details made publicly available.  Most of our events last for up to 90 minutes; this one went for 2.5 hours, and only ended as those of us who were there the whole time we exhausted! People dropped in and out as they were able to, and everyone had a lot of fun.

Today, we are delighted to share a guest blog, written by one of our newest friends and supporters Tamara Claunch, who attended the celebration, and who has also agreed to volunteer for DAI. We will be sharing some exciting news about that in another blog very soon!

The Joy of DAI and dementia

By Tamara Claunch, written on Janauary 17, 2019

Yesterday I experienced being jealous of having dementia for the first time. If I had dementia, I would be allowed in the club. Yes, the club is that good.

Dementia Alliance International celebrated their fifth birthday recently.

I, along with other professionals, friends and family was invited to join the online, global celebration. It lasted longer than expected and was very well attended. Over 80 people called in on video from all over the world and the facilitators did a fantastic job of recognizing all attendees and making sure all had a chance to introduce themselves and say a little about DAI.

As I listened to the attendees speak, what struck me was how each member of DAI evidenced a lightness of the spirit, an openness that comes with wisdom and gratitude. Wisdom because they’ve experienced intense trauma and loss.

Gratitude because they’re together.

At least this is my interpretation of the energy in that communal space; I would not presume to know how it feels to be them.

At first, I was reminded of Alcoholics Anonymous: the old timer success stories inspire the freshly baptized-with-fire newcomers. They befriend and teach and support one another. As the group gets bigger, it adjusts – more local support groups, more online support groups, more specific support and study groups.

Absolute inclusion. Like AA, there’s only one criterion for joining: you must have the same “condition” as everyone else in the group.

How must it feel to being newly diagnosed with Alzheimer’s, frontal lobe or Lewy body dementia and given less than five or ten years to live? To believe the majority of those years will be spent dependent upon others?

Imagine then how it might feel to meet dozens of people all over the world who are living beyond dementia. People who are fighting their illness and defying expectations. People who are still independent, social and active a decade or more after diagnosis.

At the birthday party, I saw new DAI members experiencing hope for the future, perhaps for the first time since their diagnosis. As one member put it, “I can fight this and make it [the time] count”.

I saw “old” DAI members reconnecting and seeing each other for the first time in a while.

People laughed and joked, empathized and encouraged. They held a moment of silence for members who are no longer around.  All appeared to have a sense of purpose and community and to feel that they are part of something bigger than themselves.

While the members of DAI were uniquely individual, as were their stories, I perceived some common threads running through the tapestry of lively conversation and heartfelt congratulations:

  • They are all immensely grateful for DAI and the impact that it has had on their lives.
  • It’s okay to make fun of dementia, only if you have it.
  • Every journey has a purpose.

For a brief time, I was able to experience the humor and humanity and open lightness that exists within these people and between them.

Contrary to how the media, some caregivers and the medical establishment portray dementia, these people are not dumb. They are not dull. They are not incapacitated. They are funny and bright and witty and inclusive.

They are, simply, humans being human. As one member said, “Individually, we have deficits but as a whole we are magnificent.”

As an Integrative Wellness & Life Coach, speaker and writer, I specialize in working with people who have dementia. I am an advocate, a partner and a champion of persons with dementia. But all my passion and all my expertise did not prepare me for what I experienced during DAI’s 5th birthday party.

It ended up being one of the most present, precious experiences of my life.

If only the world could see these people and hear their stories then maybe, just maybe, the world would start to treat them as human beings deserving of dignity, respect, and inclusion.

So while I may not long for a diagnosis of dementia, I would love to belong to an organization like Dementia Alliance International. They have a lot of fun and they do a lot of good for others. They make a real difference in the lives of people all over the world and I am grateful to be a supporter and friend of the group and its members.

Copyright: Tamara Claunch 2019

About Tamara: Tamara Claunch, MEd, is an Integrative Wellness & Life Coach and the Founder of VitaV Wellness in Aging. She has worked extensively in partnership with the Center for Applied Research in Dementia. Her main areas of expertise are dementia risk-reduction and alternative, nonpharmacological interventions for those living with symptoms of dementia and Mild Cognitive Impairment (MCI). She has extensive experience working with individuals, families and the broader medical community to enable independence, dignity and equality in the lives of people living with dementia. Her passion in life is helping others find purpose in their journey, wherever it may take them and whatever it looks like.

Thank you Tamara for this beautful reflection, and thank you Fei Sun for the image below of some of the people who joined us. 

Image source: Fei Sun

Rehabilitation and dementia: evidence & opportunities

Our November “A Meeting Of The Minds” Webinar is by Associate Professor LeeFay Low fom Sydney University. The topic, Rehabilitation and dementia: evidence & opportunities, will be of great interest to members and professionals, and we hope you will join us.

 

 

 

 

 

About the Webinar:  The World Health Organisation has defined rehabilitation as “a set of measures that assist individuals, who experience or are likely to experience disability, to achieve and maintain optimum functioning in interaction with their environments”. Research and practice relating to dementia is predominantly focused on prevention, disease-modifying treatment, and care. This presentation will review the current evidence for rehabilitation strategies (e.g. exercise, cognitive training, occupational therapy) in dementia, and outline several ongoing studies. Barriers to rehabilitation for dementia will also be presented.

Register here…

About A/Professor Low: Lee-Fay Low (BSc Psych (Hons), PhD) is Associate Professor in Ageing and Health, NHMRC Boosting Dementia Research Leadership Development Fellow, and Head of Behavioural and Social Sciences in Health in the Faculty of Health Sciences, University of Sydney. She is a registered psychologist with a PhD in psychiatric epidemiology.

A/Prof Low conducts research that she hopes will make a difference in the world.

Her main areas of expertise are in home and residential care for older people, wellbeing in people with dementia, dementia risk factors for dementia, dementia literacy, and people from culturally and linguistically diverse backgrounds. She is particularly interested in developing and evaluating interventions to improve the quality of life of older people. She has methodological skills in population studies, systematic reviews, clustered randomised trials, instrument development and evaluation, and translation of research into practice.

She has authored over 100 peer-reviewed articles, as well as two books on dementia. She is an active advocate in improving how older people are treated and cared for. Lee-Fay thinks that research is great fun, and even admits to liking statistics.

Register here…

Wednesday, November 28, 2018 – times (USA/UK/EU/CA):

10:00 am  Honolulu
12:00 pm  Oregon Portland/San Francisco USA
12:00 pm  Vancouver CA
2:00 pm    Des Moines/Chicago USA
3:00 pm    New York USA
3:00 pm    Toronto CA
8:00 pm    London/Glasgow UK
9:00 pm    Paris, Munich, Amsterdam, EU

Thursday, November 29, 2018 – times (AU/NZ/JP/IND/TWN):

6:00 am    Adelaide AU
6:30 am    Brisbane AU
7:00 am    Sydney/Melbourne/Canberra/Tasmania AU
4:00 am    Perth AU/Taipei TWN
5:00 am    Tokyo, JP
9:00 am    Auckland, NZ

The webinar runs for 1 hour. 

Check your time if not listed above by using clicking this link… 

Register here…

 

COST TO ATTEND:

  • FREE for DAI members and their care partner (if you have dementia, please join here: www.joindai.org
  • $40 USD for all others
  • $20:00 USD Students (FT, unemployed)
  • DONATION (this is not in lieu of a paid ticket unless it is higher than the fee, if you do not fit into the FREE ticket category)

THE SMALL FEE PAID FOR SOME ATTENDEES OF THIS EVENT IS GREATLY APPRECIATED.

WEBINAR FEES AND DONATIONS ARE OUR ONLY SOURCE OF REGULAR REVENUE. WITHOUT THEM, DAI COULD NOT PROVIDE THE SERVICES WE PROVIDE CURRENTLY FOR MEMBERS, THEIR FAMILIES & THE GLOBAL COMMUNITY.

  • $US 5.00 covers the average cost of one of our monthly bank fees
  • $US 60.00 covers the average of the cost of our monthly Zoom subscription fee
  • $US 120.00 covers the average monthly cost of the MailChimp subscription
  • $US 300.00 covers the current cost of 3 months of website management fees

PLEASE DONATE HERE: https://www.dementiaallianceinternational.org/donate/

If you need a certificate of attendance, please email us at [email protected].org

Note: the Q&A  session at the end of our webinars are never available publicly, and therefore will not be available after the event. Some webinars are available on our YouTube channel, but not all depending on each presenter, or the quality of the recording.

DAI in Chicago #3

Today, we bring you DAI’s Vice Chair Jerry Wylie’s recent Plenary speech from ADI Chicago. Sit down, grab a coffee and put on your seat belts. It is a fabulous, if not challenging ride, especially so for health care professionals and providers, so get yourself ready, relax, and tune in to watch it now here, or later on our YouTube Channel.

Living the U.S. National Dementia Plan

Presented by Jerry Wylie

This is not Jerry’s full speech notes, but a blog he wrote very recently, that goes well with it, and covers many of the key messages in his speech. He also presented his speech again at our monthly Webinar yesterday, so those who could not attend ij erson, could hear him live online.

“Living well with Dementia may well be, the best lived experience of my life now that I have recovered from being inhumanly treated”.

What? Inhumanely treated? How, when and why? Read on……

First, our diagnosis is delivered “Without Any Referrals” to support or disease education. No discussion of rehabilitation and No words of encouragement, No mention of hope, how diet & exercise could help. We are given absolutely nothing, zero, nada. To this day, we are still being told to get our affairs in order and, here are some drugs that might help with your symptoms, temporarily.

The end result; we are “delivered directly into suffering” from depression by the very doctors who are paid to keep us well.

Not long after this wonderful experience, most of us, are “abandoned by one or two members of our own family”.

Below, is a chart that shows exactly how  we process this situation. We no longer have the ability to properly process what happened and, because we need family more than ever, we are driven even deeper into “long term & unnecessary suffering”.

It took me 1.5 years of preventable, unnecessary suffering, to fight, scratch and claw my way out of the most miserable, vegetable like existence of my life.

“THIS IS NOT JUST MY STORY”!

It’s the story of 50 million other people living with Dementia as well. This treatment is our standard treatment world wide, perhaps, due solely to ignorance.

I can confidently say “The only time” a person with Dementia “really suffers” before end stage, is when we are either unintentionally or, intentionally mistreated. Period.

Clearly, this is cruel, unusual and unacceptable abuse. Clearly this is a violation of our human rights.

When someone is caught abusing a pet, it immediately becomes a huge media/news event and people get arrested. When 50 million people are abused by our doctors and sometimes by family members, nothing is reported and no one is as much as reprimanded.

When harsh words are spoken to us, we can’t process what you said but, we “cannot forget” how you made us feel. Once again, we are unintentionally or, intentionally pushed into“constant, ongoing grief” that we cannot shake off or even come close to processing. Unexplained, it is a life sentence of pain at a time when we desperately needed the opposite.

This is the truth. This is the debilitating, mentally abusive, harmful & “INHUMANE TREATMENT” that is currently happening about every 3 seconds somewhere to virtually defenseless people.

NO,  STOP & THINK about this! 50 million people today plus, “10 million more people” every year. This may well be the “Most Inhumane Tragedy of Our Century”!

Now, feel free ask me why I am such a boisterous advocate for people living with Dementia and our Human Rights.

I dare you to ask me why people with Dementia suffer.

“Living well with Dementia may well be, the best lived experience of my life now that I have recovered from being inhumanly treated”.

Jerry Wylie © 2018

DAI Webinar: Living the U.S. National Dementia Plan

 

For DAI’s August monthly “A Meeting Of The Minds” Webinar, as some of us have been in Chicago attending the ADI Conference, we thought we’d bring some of Chicago and the conference to you!

Hence, our presenter is DAI’s Vice Chair, Jerry Wylie, who was an invited Plenary speaker on Day 1 of the ADI Conference.

Living the U.S. National Dementia Plan

About the Webinar: Jerry is an advocate living with dementia, and the Vice Chair of Dementia Alliance International. He was an invited Plenary speaker on Day 1 at the recent ADI Conference in Chicago.

At this DAI Webinar, we will bring Chicago to you, as Jerry has agreed to re-present his very impressive keynote speech.

In this presentation, Jerry shares his personal perspective on his involvement in contributing towards the development of the National Plan to Address Alzheimer’s disease through his work with Ian Kremer (LEAD). This session will address the following key points: momentum achieved in development and implementation of plan; inclusion of individuals impacted by dementia; importance of funding to achieve plan goals.

He also shares how he believes that he was SET UP FOR FAILURE… With NO SUPPORT to live positively with dementia, and how this almost resulted in him taking his life due to the hopelessness this left him. He shares what is in the US National Plan, and what is missing, in a way that is poetrful, with messages that speak clearly to everyone, includign pplicy makers.

About our presenter, Jerry Wylie:

Jerry Wylie was diagnosed with dementia at age 62 in June of 2015. Jerry was Helicopter Crew Chief in the US Army between 1971-1974. He studied Criminal Law at Pikes Peak Community College and Linn-Benton Community College and was the founding Member and Past President of West Salem Rotary Club. Jerry had a 40-year career in Business Management specialising in business growth and increasing profitability.

For Jerry, not having a college degree meant always having to “work” his way up. For a highly specialised division of ICI Americas, Jerry worked his way up to US Western Region Manager, having charge of 1/3 of US and 1/3 of Canada to include manufacturing, distribution and sales of products for repair and restoration of major concrete structures such a bridges, dams and concrete road ways.

Jerry later managed and grew two local Commercial Construction Companies to the point that their owners were able to retire comfortably. He then took on the task of starting a New Branch of a Home Construction Company in a new territory. He was able to take that business from building zero to 70 houses per year in just 5 years, during this last recession.

In 2014 Jerry began having issues with short term memory, multi-tasking and organisation. In June of 2015, Jerry was diagnosed with dementia.

Jerry is a current Member of Dementia Alliance International (DAI) Board of Directors, an active guest speaker at Rotary Clubs across Oregon and works with the Oregon Alzheimer’s Association. This November will mark 44 years of marriage to his wife, Kathy.

Please note: this webinar may not be made publicly available after the event; the Q & A sessions are never made publicly available to view.

Wednesday, August 22, 2018 – times (USA/UK/EU/CA):

  • 2:00 pm Portland/San Francisco USA
  • 4:00 pm Des Moines/Chicago USA
  • 5:00 pm New York USA
  • 11:00 am Honolulu
  • 5:00 pm Toronto CA
  • 2:00 pm Vancouver CA
  • 10:00 pm London/Glasgow UK
  • 11:00 pm Paris, Munich, Amsterdam, EU

Thursday, August 23, 2018 – times (AU/NZ/JP/IND/TWN):

  • 6:30 am Adelaide
  • 7:00 am Brisbane/Sydney/Melbourne/Canberra/Tasmania
  • 5:00 am Perth/Taipei
  • 9:00 am Auckland, NZ

The webinar runs for up to 1.5 hours.

Register here…