Your Story matters

This page is dedicated to the voices of people with dementia, where members share their personal stories of being diagnosed, and then living with dementia. Our members will, in their own unique ways, share with you, the good, the bad, and sometimes, the downright ugly.

We are sharing with you from the deepest recesses of our minds and hearts, in the hope that you become not only more aware of dementia, but of the human cost of this condition, but we also want others to know, there is a lot of living to do after the diagnosis, and it is not all doom and gloom.

Our hope is that these stories bring hope to others facing dementia, and that in sharing our stories, we collectively can give each other strength to face the unknown together.

It is not a future we predicted, nor necessarily one that we wanted, and certainly, not one that any of us chose. We have discovered, dementia does not discriminate as anyone at any age can be diagnosed, but is not always a negative experience.

Dementia changes lives, of that there is not doubt, but many also feel they have also been given many gifts since being diagnosed with dementia.

Mary Beth Wighton: A changing melody

Mick Carmody: People can live well: even people with dementia

Dr Jennifer Bute: Dementia as a gift

Kate Swaffer: Dementia My New World

Maggie Weidmark: Sharing my experience with dementia

Sue Stephen on living with PCA

The late Richard Taylor PhD: Alzheimer’s from the inside out

Richard Taylor PhD: Not acting the way that’s expected

The late Dena Dotson, How would you feel if you encountered this?

Of, By, and For People with Dementia

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